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The experiences of treatment from other people as narrated by people with moderate or severe traumatic brain injury and their close relatives

Jumisko, Eija; Lexell, Jan LU and Soderberg, Siv (2007) In Disability and Rehabilitation 29(19). p.1535-1543
Abstract
Purpose. The aim of this study was to describe the treatment from other people as experienced by people with moderate or severe traumatic brain injury (TBI) and their close relatives. Method. Twelve people with moderate or severe TBI and eight of their close relatives were interviewed. The interviews were analysed using thematic content analysis. Results. The results were described by the means of two themes: being excluded and missing confirmation. People with TBI and their close relatives had experiences of being avoided, being ruled by the authorities, being met with distrustfulness and being misjudged. They also searched for answers and longed for the right kind of help. People who listened to them, believed them and tried to... (More)
Purpose. The aim of this study was to describe the treatment from other people as experienced by people with moderate or severe traumatic brain injury (TBI) and their close relatives. Method. Twelve people with moderate or severe TBI and eight of their close relatives were interviewed. The interviews were analysed using thematic content analysis. Results. The results were described by the means of two themes: being excluded and missing confirmation. People with TBI and their close relatives had experiences of being avoided, being ruled by the authorities, being met with distrustfulness and being misjudged. They also searched for answers and longed for the right kind of help. People who listened to them, believed them and tried to understand and help them were appreciated. Conclusions. This study showed a lack of treatment which promotes well-being of the people with TBI and their close relatives. They experienced bad treatment also from authorities. Therefore, we emphasize that authorities should continuously reflect on how to make their practice a place which promotes dignity. Treatment of people with TBI and close relatives may be improved by increased knowledge about TBI, living with it and being a close relative to a person with TBI. This is a challenge to health care and rehabilitation professionals. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
experiences, treatment, relatives, brain injury, traumatic, interviews
in
Disability and Rehabilitation
volume
29
issue
19
pages
1535 - 1543
publisher
Taylor & Francis
external identifiers
  • wos:000250171800007
  • scopus:34648840231
ISSN
0963-8288
DOI
10.1080/09638280601055816
language
English
LU publication?
yes
id
aafeab95-3ee8-458f-869c-66c6ba6ee019 (old id 655377)
date added to LUP
2007-12-13 14:40:17
date last changed
2017-01-01 04:53:52
@article{aafeab95-3ee8-458f-869c-66c6ba6ee019,
  abstract     = {Purpose. The aim of this study was to describe the treatment from other people as experienced by people with moderate or severe traumatic brain injury (TBI) and their close relatives. Method. Twelve people with moderate or severe TBI and eight of their close relatives were interviewed. The interviews were analysed using thematic content analysis. Results. The results were described by the means of two themes: being excluded and missing confirmation. People with TBI and their close relatives had experiences of being avoided, being ruled by the authorities, being met with distrustfulness and being misjudged. They also searched for answers and longed for the right kind of help. People who listened to them, believed them and tried to understand and help them were appreciated. Conclusions. This study showed a lack of treatment which promotes well-being of the people with TBI and their close relatives. They experienced bad treatment also from authorities. Therefore, we emphasize that authorities should continuously reflect on how to make their practice a place which promotes dignity. Treatment of people with TBI and close relatives may be improved by increased knowledge about TBI, living with it and being a close relative to a person with TBI. This is a challenge to health care and rehabilitation professionals.},
  author       = {Jumisko, Eija and Lexell, Jan and Soderberg, Siv},
  issn         = {0963-8288},
  keyword      = {experiences,treatment,relatives,brain injury,traumatic,interviews},
  language     = {eng},
  number       = {19},
  pages        = {1535--1543},
  publisher    = {Taylor & Francis},
  series       = {Disability and Rehabilitation},
  title        = {The experiences of treatment from other people as narrated by people with moderate or severe traumatic brain injury and their close relatives},
  url          = {http://dx.doi.org/10.1080/09638280601055816},
  volume       = {29},
  year         = {2007},
}