Adolescents with anorectal malfromation: physical outcome, sexual health and quality of life
Stenström, Pernilla LU
; Clementson Kockum, Christina
LU
; Katsianikou Benér, Despina
; Ivarsson, Camilla
and Arnbjörnsson, Einar
LU
(2014)
In International Journal of Adolescent Medicine and Health
26(1).
p.49-59
- Abstract
- Background: The necessity of referral of adolescents with anorectal malformation (ARM) from pediatric units to adult care is unclear. The issue requires knowledge about the adolescents´ health.
Objective: To examine the physical outcome, sexual health and quality of life (QoL) in adolescents with ARM.
Material and method: At medical counseling twenty-four adolescents with ARM, 15-21 years of age, answered questionnaires about physical outcome according to the Krickenbeck and QoL according to SF 36 and gastrointestinal quality of life (Giqli). Matched control groups were used. Fifteen adolescents participated in deep interviews about sexual health and body imaging.
Results: Fecal soiling, constipation and gas... (More) - Background: The necessity of referral of adolescents with anorectal malformation (ARM) from pediatric units to adult care is unclear. The issue requires knowledge about the adolescents´ health.
Objective: To examine the physical outcome, sexual health and quality of life (QoL) in adolescents with ARM.
Material and method: At medical counseling twenty-four adolescents with ARM, 15-21 years of age, answered questionnaires about physical outcome according to the Krickenbeck and QoL according to SF 36 and gastrointestinal quality of life (Giqli). Matched control groups were used. Fifteen adolescents participated in deep interviews about sexual health and body imaging.
Results: Fecal soiling, constipation and gas incontinence were much higher for ARM patients compared with the controls (p<0.05). QoL regarding large bowel function was lower for both genders compared with the controls (p<0.05). Females scored lower in physically related QoL (p<0.05). Social and sexual adaption was transparent in the deep interviews.
Conclusion: Adolescents with ARM have considerable intestinal symptoms, influencing QoL and requiring adaption in intimate situations. A referral to adult care seems important and a continuous cooperation between the pediatric surgeon and adult care is suggested. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/4407190
- author
- Stenström, Pernilla
LU
; Clementson Kockum, Christina
LU
; Katsianikou Benér, Despina
; Ivarsson, Camilla
and Arnbjörnsson, Einar
LU
- organization
- publishing date
- 2014
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- anorectal malformations, adolescence, fecal incontinence, quality of life, sexual health
- in
- International Journal of Adolescent Medicine and Health
- volume
- 26
- issue
- 1
- pages
- 49 - 59
- publisher
- De Gruyter
- external identifiers
-
- scopus:84901721995
- pmid:23633464
- ISSN
- 0334-0139
- DOI
- 10.1515/ijamh-2012-0111
- language
- English
- LU publication?
- yes
- id
- 6a0b0cd8-9b84-42e7-85cb-45c69d681967 (old id 4407190)
- date added to LUP
- 2016-04-01 14:28:07
- date last changed
- 2022-10-20 03:20:24
@article{6a0b0cd8-9b84-42e7-85cb-45c69d681967,
abstract = {{Background: The necessity of referral of adolescents with anorectal malformation (ARM) from pediatric units to adult care is unclear. The issue requires knowledge about the adolescents´ health. <br/><br>
Objective: To examine the physical outcome, sexual health and quality of life (QoL) in adolescents with ARM.<br/><br>
Material and method: At medical counseling twenty-four adolescents with ARM, 15-21 years of age, answered questionnaires about physical outcome according to the Krickenbeck and QoL according to SF 36 and gastrointestinal quality of life (Giqli). Matched control groups were used. Fifteen adolescents participated in deep interviews about sexual health and body imaging.<br/><br>
Results: Fecal soiling, constipation and gas incontinence were much higher for ARM patients compared with the controls (p<0.05). QoL regarding large bowel function was lower for both genders compared with the controls (p<0.05). Females scored lower in physically related QoL (p<0.05). Social and sexual adaption was transparent in the deep interviews.<br/><br>
Conclusion: Adolescents with ARM have considerable intestinal symptoms, influencing QoL and requiring adaption in intimate situations. A referral to adult care seems important and a continuous cooperation between the pediatric surgeon and adult care is suggested.}},
author = {{Stenström, Pernilla and Clementson Kockum, Christina and Katsianikou Benér, Despina and Ivarsson, Camilla and Arnbjörnsson, Einar}},
issn = {{0334-0139}},
keywords = {{anorectal malformations; adolescence; fecal incontinence; quality of life; sexual health}},
language = {{eng}},
number = {{1}},
pages = {{49--59}},
publisher = {{De Gruyter}},
series = {{International Journal of Adolescent Medicine and Health}},
title = {{Adolescents with anorectal malfromation: physical outcome, sexual health and quality of life}},
url = {{https://lup.lub.lu.se/search/files/3993803/4407191.doc}},
doi = {{10.1515/ijamh-2012-0111}},
volume = {{26}},
year = {{2014}},
}