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Models of care for survivors of childhood cancer from across the globe : Advancing survivorship care in the next decade

Tonorezos, Emily S. ; Barnea, Dana ; Cohn, Richard J. ; Cypriano, Monica S. ; Fresneau, Brice C. ; Haupt, Riccardo ; Hjorth, Lars LU ; Ishida, Yasushi ; Kruseova, Jarmila and Kuehni, Claudia E. , et al. (2018) In Journal of Clinical Oncology 36(21). p.2223-2230
Abstract

With improvements in cancer treatment and supportive care, a growing population of survivors of childhood cancer at risk for significant and potentially life-threatening late effects has been identified. To provide a current snapshot of the models of care from countries with varying levels of resources and health care systems, stakeholders in childhood cancer survivorship clinical care and research were identified from 18 countries across five continents. Stakeholders responded to a survey and provided a brief narrative regarding the current state of survivorship care. Findings indicate that among pediatric-age survivors of childhood cancer (allowing for differences in age cutoffs across countries), resources are generally available,... (More)

With improvements in cancer treatment and supportive care, a growing population of survivors of childhood cancer at risk for significant and potentially life-threatening late effects has been identified. To provide a current snapshot of the models of care from countries with varying levels of resources and health care systems, stakeholders in childhood cancer survivorship clinical care and research were identified from 18 countries across five continents. Stakeholders responded to a survey and provided a brief narrative regarding the current state of survivorship care. Findings indicate that among pediatric-age survivors of childhood cancer (allowing for differences in age cutoffs across countries), resources are generally available, and a large proportion of survivors are seen by a physician familiar with late effects in most countries. After survivors transition to adulthood, only a minority are seen by a physician familiar with late effects. Despite the need to improve communication between pediatric oncology and primary care, only a few countries have existing national efforts to educate primary care physicians, although many more reported that educational programs are in development. These data highlight common challenges and potential solutions for the lifelong care of survivors of childhood cancer. Combining risk-based and patient-oriented solutions for this population is likely to benefit both providers and patients.

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@article{6ca94a06-d37e-4c13-aff4-fd7c3c80bbee,
  abstract     = {<p>With improvements in cancer treatment and supportive care, a growing population of survivors of childhood cancer at risk for significant and potentially life-threatening late effects has been identified. To provide a current snapshot of the models of care from countries with varying levels of resources and health care systems, stakeholders in childhood cancer survivorship clinical care and research were identified from 18 countries across five continents. Stakeholders responded to a survey and provided a brief narrative regarding the current state of survivorship care. Findings indicate that among pediatric-age survivors of childhood cancer (allowing for differences in age cutoffs across countries), resources are generally available, and a large proportion of survivors are seen by a physician familiar with late effects in most countries. After survivors transition to adulthood, only a minority are seen by a physician familiar with late effects. Despite the need to improve communication between pediatric oncology and primary care, only a few countries have existing national efforts to educate primary care physicians, although many more reported that educational programs are in development. These data highlight common challenges and potential solutions for the lifelong care of survivors of childhood cancer. Combining risk-based and patient-oriented solutions for this population is likely to benefit both providers and patients.</p>},
  author       = {Tonorezos, Emily S. and Barnea, Dana and Cohn, Richard J. and Cypriano, Monica S. and Fresneau, Brice C. and Haupt, Riccardo and Hjorth, Lars and Ishida, Yasushi and Kruseova, Jarmila and Kuehni, Claudia E. and Kurkure, Purna A. and Langer, Thorsten and Nathan, Paul C. and Skeen, Jane E. and Skinner, Roderick and Tacyildiz, Nurdan and Van Den Heuvel-Eibrink, Marry M. and Winther, Jeanette F. and Hudson, Melissa M. and Oeffinger, Kevin C.},
  issn         = {0732-183X},
  language     = {eng},
  month        = {07},
  number       = {21},
  pages        = {2223--2230},
  publisher    = {American Society of Clinical Oncology},
  series       = {Journal of Clinical Oncology},
  title        = {Models of care for survivors of childhood cancer from across the globe : Advancing survivorship care in the next decade},
  url          = {http://dx.doi.org/10.1200/JCO.2017.76.5180},
  doi          = {10.1200/JCO.2017.76.5180},
  volume       = {36},
  year         = {2018},
}