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Perceived Stigmatization among Dermatological Outpatients Compared with Controls : An Observational Multicentre Study in 17 European Countries

Van Beugen, Sylvia ; Schut, Christina ; Kupfer, Jörg ; Bewley, Antony P ; Finlay, Andrew Y ; Gieler, Uwe ; Thompson, Andrew R ; Gracia-Cazaña, Tamara ; Balieva, Flora and Ferreira, Bárbara R , et al. (2023) In Acta Dermato-Venereologica 103. p.1-8
Abstract

Perceived stigmatization places a large psychosocial burden on patients with some skin conditions. Little is known about the experience of stigmatization across a wide range of skin diseases. This observational cross-sectional study aimed to quantify perceived stigmatization and identify its predictors among patients with a broad spectrum of skin diseases across 17 European countries. Self-report questionnaires assessing perceived stigmatization and its potential predictors were completed by 5,487 dermatology outpatients and 2,808 skin-healthy controls. Dermatological diagnosis, severity, and comorbidity were clinician-assessed. Patients experienced higher levels of perceived stigmatization than controls (p < 0.001, d   = 0.26);... (More)

Perceived stigmatization places a large psychosocial burden on patients with some skin conditions. Little is known about the experience of stigmatization across a wide range of skin diseases. This observational cross-sectional study aimed to quantify perceived stigmatization and identify its predictors among patients with a broad spectrum of skin diseases across 17 European countries. Self-report questionnaires assessing perceived stigmatization and its potential predictors were completed by 5,487 dermatology outpatients and 2,808 skin-healthy controls. Dermatological diagnosis, severity, and comorbidity were clinician-assessed. Patients experienced higher levels of perceived stigmatization than controls (p < 0.001, d   = 0.26); patients with psoriasis, atopic dermatitis, alopecia, and bullous disorders were particularly affected. Multivariate regression analyses showed that perceived stigmatization was related to sociodemographic (lower age, male sex, being single), general health-related (higher body mass index, lower overall health), disease-related (higher clinician-assessed disease severity, presence of itch, longer disease duration), and psychological (greater distress, presence of suicidal ideation, greater body dysmorphic concerns, lower appearance satisfaction) variables. To conclude, perceived stigmatization is common in patients with skin diseases. Factors have been identified that will help clinicians and policymakers to target vulnerable patient groups, offer adequate patient management, and to ultimately develop evidence-based interventions.

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author collaboration
publishing date
type
Contribution to journal
publication status
published
keywords
Humans, Male, Stereotyping, Outpatients, Quality of Life/psychology, Skin Diseases/diagnosis, Psoriasis/diagnosis, Surveys and Questionnaires
in
Acta Dermato-Venereologica
volume
103
article number
adv6485
pages
1 - 8
publisher
Medical Journals Limited
external identifiers
  • pmid:37345973
  • scopus:85164042008
ISSN
1651-2057
DOI
10.2340/actadv.v103.6485
language
English
LU publication?
no
id
6d8ded8f-f98f-4a7e-81c4-0b75554f15ea
date added to LUP
2026-06-27 11:29:28
date last changed
2026-09-07 15:40:25
@article{6d8ded8f-f98f-4a7e-81c4-0b75554f15ea,
  abstract     = {{<p>Perceived stigmatization places a large psychosocial burden on patients with some skin conditions. Little is known about the experience of stigmatization across a wide range of skin diseases. This observational cross-sectional study aimed to quantify perceived stigmatization and identify its predictors among patients with a broad spectrum of skin diseases across 17 European countries. Self-report questionnaires assessing perceived stigmatization and its potential predictors were completed by 5,487 dermatology outpatients and 2,808 skin-healthy controls. Dermatological diagnosis, severity, and comorbidity were clinician-assessed. Patients experienced higher levels of perceived stigmatization than controls (p &lt; 0.001, d   = 0.26); patients with psoriasis, atopic dermatitis, alopecia, and bullous disorders were particularly affected. Multivariate regression analyses showed that perceived stigmatization was related to sociodemographic (lower age, male sex, being single), general health-related (higher body mass index, lower overall health), disease-related (higher clinician-assessed disease severity, presence of itch, longer disease duration), and psychological (greater distress, presence of suicidal ideation, greater body dysmorphic concerns, lower appearance satisfaction) variables. To conclude, perceived stigmatization is common in patients with skin diseases. Factors have been identified that will help clinicians and policymakers to target vulnerable patient groups, offer adequate patient management, and to ultimately develop evidence-based interventions.</p>}},
  author       = {{Van Beugen, Sylvia and Schut, Christina and Kupfer, Jörg and Bewley, Antony P and Finlay, Andrew Y and Gieler, Uwe and Thompson, Andrew R and Gracia-Cazaña, Tamara and Balieva, Flora and Ferreira, Bárbara R and Jemec, Gregor B and Lien, Lars and Misery, Laurent and Marron, Servando E and Ständer, Sonja and Zeidler, Claudia and Szabó, Csanád and Szepietowski, Jacek C and Reich, Adam and Elyas, Amna and Altunay, Ilknur K and Legat, Franz J and Grivcheva-Panovska, Vesna and Romanov, Dmitry V and Lvov, Andrey N and Titeca, Géraldine and Sampogna, Francesca and Vulink, Nienke C and Tomás-Aragones, Lucia and Evers, Andrea W M and Dalgard, Florence J}},
  issn         = {{1651-2057}},
  keywords     = {{Humans; Male; Stereotyping; Outpatients; Quality of Life/psychology; Skin Diseases/diagnosis; Psoriasis/diagnosis; Surveys and Questionnaires}},
  language     = {{eng}},
  month        = {{06}},
  pages        = {{1--8}},
  publisher    = {{Medical Journals Limited}},
  series       = {{Acta Dermato-Venereologica}},
  title        = {{Perceived Stigmatization among Dermatological Outpatients Compared with Controls : An Observational Multicentre Study in 17 European Countries}},
  url          = {{http://dx.doi.org/10.2340/actadv.v103.6485}},
  doi          = {{10.2340/actadv.v103.6485}},
  volume       = {{103}},
  year         = {{2023}},
}