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What factors are important to patients when assessing treatment response : An international cross-sectional survey

Von Kobyletzki, Laura B. LU ; Thomas, Kim S.; Schmitt, Jochen; Chalmers, Joanne R.; Deckert, Stefanie; Aoki, Valeria; Weisshaar, Elke; Ahubelem Ojo, Jumoke and Svensson, Åke LU (2017) In Acta Dermato-Venereologica 97(1). p.86-90
Abstract

This study investigated the perspective of international patients on individual symptoms of atopic dermatitis (eczema) in determining treatment response. A questionnaire was developed to evaluate the importance of symptoms from the patient’s perspective. Patients were asked: “How important are these features in deciding whether or not a treatment is working?”, and rated symptoms on a 5-point Likert scale. Patients were approached via Harmonising Outcome Measures for Eczema (HOME) collaborators and selfselected to take part in the on-line survey. Patients from 34 countries (n = 1,111) completed the survey; of these, 423 (38.3%) were parents of children with eczema. Ten items were rated as being “quite important” or “very important” by... (More)

This study investigated the perspective of international patients on individual symptoms of atopic dermatitis (eczema) in determining treatment response. A questionnaire was developed to evaluate the importance of symptoms from the patient’s perspective. Patients were asked: “How important are these features in deciding whether or not a treatment is working?”, and rated symptoms on a 5-point Likert scale. Patients were approached via Harmonising Outcome Measures for Eczema (HOME) collaborators and selfselected to take part in the on-line survey. Patients from 34 countries (n = 1,111) completed the survey; of these, 423 (38.3%) were parents of children with eczema. Ten items were rated as being “quite important” or “very important” by more than 80% of the respondents: itch, pain/soreness, skin feels hot or inflamed, bleeding, involvement of visible or sensitive body sites, cracks, sleep difficulties, amount of body affected, and weeping/oozing. These results may be of use in determining the face validity of scales from a crosscultural patients’ perspective.

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Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Atopic, Dermatitis, Eczema, Outcome assessment
in
Acta Dermato-Venereologica
volume
97
issue
1
pages
5 pages
publisher
Medical Journals Limited
external identifiers
  • scopus:85006999831
  • wos:000393894700017
ISSN
0001-5555
DOI
10.2340/00015555-2480
language
English
LU publication?
yes
id
7236d6c3-54dd-4249-8782-96ff609e12d6
date added to LUP
2017-01-13 15:23:25
date last changed
2018-01-07 11:45:01
@article{7236d6c3-54dd-4249-8782-96ff609e12d6,
  abstract     = {<p>This study investigated the perspective of international patients on individual symptoms of atopic dermatitis (eczema) in determining treatment response. A questionnaire was developed to evaluate the importance of symptoms from the patient’s perspective. Patients were asked: “How important are these features in deciding whether or not a treatment is working?”, and rated symptoms on a 5-point Likert scale. Patients were approached via Harmonising Outcome Measures for Eczema (HOME) collaborators and selfselected to take part in the on-line survey. Patients from 34 countries (n = 1,111) completed the survey; of these, 423 (38.3%) were parents of children with eczema. Ten items were rated as being “quite important” or “very important” by more than 80% of the respondents: itch, pain/soreness, skin feels hot or inflamed, bleeding, involvement of visible or sensitive body sites, cracks, sleep difficulties, amount of body affected, and weeping/oozing. These results may be of use in determining the face validity of scales from a crosscultural patients’ perspective.</p>},
  author       = {Von Kobyletzki, Laura B. and Thomas, Kim S. and Schmitt, Jochen and Chalmers, Joanne R. and Deckert, Stefanie and Aoki, Valeria and Weisshaar, Elke and Ahubelem Ojo, Jumoke and Svensson, Åke},
  issn         = {0001-5555},
  keyword      = {Atopic,Dermatitis,Eczema,Outcome assessment},
  language     = {eng},
  month        = {01},
  number       = {1},
  pages        = {86--90},
  publisher    = {Medical Journals Limited},
  series       = {Acta Dermato-Venereologica},
  title        = {What factors are important to patients when assessing treatment response : An international cross-sectional survey},
  url          = {http://dx.doi.org/10.2340/00015555-2480},
  volume       = {97},
  year         = {2017},
}