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Cross-cutting view of current challenges in paediatric solid organ and haematopoietic stem cell transplantation in Europe : The European Reference Network TransplantChild

Jara, P. ; Baker, A. ; Baumann, U. ; Borobia, A. M. ; Branchereu, S. ; Candusso, M. ; Carcas, A. J. ; Chardot, C. ; Cobas, J. and D'Antiga, L. , et al. (2020) In Orphanet Journal of Rare Diseases 15(1).
Abstract

The low prevalence of European paediatric transplanted patients and scarcity of resources and expertise led to the need for a multidisciplinary network able to improve the quality of life of paediatric patients and families requiring a solid organ or haematopoietic stem cell transplantation. The European Reference Network (ERN) TransplantChild is one of the 24 ERNs established in a European legal framework to improve the care of patients with rare diseases. ERN TransplantChild is the only ERN focused on both solid organ and haematopoietic stem cell paediatric transplantation, based on the understanding of paediatric transplantation as a complex and highly specialised process where specific complications appear regardless the organ... (More)

The low prevalence of European paediatric transplanted patients and scarcity of resources and expertise led to the need for a multidisciplinary network able to improve the quality of life of paediatric patients and families requiring a solid organ or haematopoietic stem cell transplantation. The European Reference Network (ERN) TransplantChild is one of the 24 ERNs established in a European legal framework to improve the care of patients with rare diseases. ERN TransplantChild is the only ERN focused on both solid organ and haematopoietic stem cell paediatric transplantation, based on the understanding of paediatric transplantation as a complex and highly specialised process where specific complications appear regardless the organ involved, thus linking the skills and knowledge of different organ disciplines. Gathering European centres of expertise in paediatric transplantation will give access to a correct and timely diagnosis, share expertise and knowledge and collect a critical mass of patients and data that increases the speed and value of clinical research outcomes. Therefore, the ERN TransplantChild aims for a paediatric Pan-European, Pan-transplant approach.

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publishing date
type
Contribution to journal
publication status
published
subject
keywords
Haematopoietic stem cell transplantation, Paediatric, Post-transplant management, Quality of life, Solid organ transplantation, Surgical procedures, Transplantation
in
Orphanet Journal of Rare Diseases
volume
15
issue
1
article number
16
publisher
BioMed Central (BMC)
external identifiers
  • pmid:31941528
  • scopus:85077941403
ISSN
1750-1172
DOI
10.1186/s13023-020-1293-0
language
English
LU publication?
no
id
73ac12f8-572e-4bd3-bf1f-af15c791fe2c
date added to LUP
2020-02-03 10:46:36
date last changed
2024-05-29 07:29:00
@article{73ac12f8-572e-4bd3-bf1f-af15c791fe2c,
  abstract     = {{<p>The low prevalence of European paediatric transplanted patients and scarcity of resources and expertise led to the need for a multidisciplinary network able to improve the quality of life of paediatric patients and families requiring a solid organ or haematopoietic stem cell transplantation. The European Reference Network (ERN) TransplantChild is one of the 24 ERNs established in a European legal framework to improve the care of patients with rare diseases. ERN TransplantChild is the only ERN focused on both solid organ and haematopoietic stem cell paediatric transplantation, based on the understanding of paediatric transplantation as a complex and highly specialised process where specific complications appear regardless the organ involved, thus linking the skills and knowledge of different organ disciplines. Gathering European centres of expertise in paediatric transplantation will give access to a correct and timely diagnosis, share expertise and knowledge and collect a critical mass of patients and data that increases the speed and value of clinical research outcomes. Therefore, the ERN TransplantChild aims for a paediatric Pan-European, Pan-transplant approach.</p>}},
  author       = {{Jara, P. and Baker, A. and Baumann, U. and Borobia, A. M. and Branchereu, S. and Candusso, M. and Carcas, A. J. and Chardot, C. and Cobas, J. and D'Antiga, L. and Ferreras, C. and Fitzpatrick, E. and Frauca, E. and Hernández-Oliveros, F. and Kaliciński, P. and Lindemans, C. and Lopes, M. F. and López-Granados, E. and De Magnée, C. and Mota, C. and Muñoz, J. M. and Ojeda, J. J. and Pérez-Martínez, A. and Perilongo, G. and Rascon, J. and Sciveres, M. and Stone, R. and Tarutis, V. and Toporski, J. and Torres, J. M. and Wennberg, L.}},
  issn         = {{1750-1172}},
  keywords     = {{Haematopoietic stem cell transplantation; Paediatric; Post-transplant management; Quality of life; Solid organ transplantation; Surgical procedures; Transplantation}},
  language     = {{eng}},
  number       = {{1}},
  publisher    = {{BioMed Central (BMC)}},
  series       = {{Orphanet Journal of Rare Diseases}},
  title        = {{Cross-cutting view of current challenges in paediatric solid organ and haematopoietic stem cell transplantation in Europe : The European Reference Network TransplantChild}},
  url          = {{http://dx.doi.org/10.1186/s13023-020-1293-0}},
  doi          = {{10.1186/s13023-020-1293-0}},
  volume       = {{15}},
  year         = {{2020}},
}