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Predicting institutional long-term care admission in dementia: a mixed-methods study of informal caregivers' reports

Afram, Basema; Verbeek, Hilde; Bleijlevens, Michel H. C.; Challis, David; Leino-Kilpi, Helena; Karlsson, Staffan LU ; Soto, Maria E.; Renom-Guiteras, Anna; Saks, Kai and Zabalegui, Adelaida, et al. (2015) In Journal of Advanced Nursing 71(6). p.1351-1362
Abstract
AimTo investigate agreement between: (1) expected reasons and actual reasons for admission of people with dementia according to informal caregivers; (2) scores on measurement instruments prior to admission and the actual reasons for admission according to informal caregivers. BackgroundTimely admission of people with dementia is a crucial issue. Information is highly warranted on whether informal caregivers are capable of prior identification of causes of admission and, can thus be considered a reliable prospective source on causes of admission. DesignA cohort study among informal caregivers of people with dementia who made a transition to institutional long-term care. MethodsQualitative data on the expected and actual reasons for... (More)
AimTo investigate agreement between: (1) expected reasons and actual reasons for admission of people with dementia according to informal caregivers; (2) scores on measurement instruments prior to admission and the actual reasons for admission according to informal caregivers. BackgroundTimely admission of people with dementia is a crucial issue. Information is highly warranted on whether informal caregivers are capable of prior identification of causes of admission and, can thus be considered a reliable prospective source on causes of admission. DesignA cohort study among informal caregivers of people with dementia who made a transition to institutional long-term care. MethodsQualitative data on the expected and actual reasons for admission were collected via open-ended questions at baseline and follow-up. Furthermore, at baseline, data were collected using measurement instruments to measure pre-admission characteristics. Interviews took place between November 2010-April 2012. After categorizing the answers, the agreement between the expected and actual reasons was calculated. Furthermore, bivariate associations were calculated between the actual reasons for admission and scores on corresponding measurement instruments. Results/FindingsFor most informal caregivers, there was agreement between their statements on the expected reason and the actual reason for admission. A third of the caregivers showed no conformity. Bivariate associations showed that there is also agreement between the actual reasons for admission and scores on corresponding measurement instruments. ConclusionInformal caregivers can be considered reliable sources of information regarding what causes the admission of a person with dementia. Professional care should anticipate informal caregivers' statements and collaborate with them to strive for timely and appropriate admission. (Less)
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Contribution to journal
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published
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keywords
care transition, dementia, family care, informal care, institutional, long-term care, nursing, nursing home, predicting admission, reasons for, admission
in
Journal of Advanced Nursing
volume
71
issue
6
pages
1351 - 1362
publisher
Wiley-Blackwell
external identifiers
  • wos:000354394800015
  • scopus:84929512131
ISSN
0309-2402
DOI
10.1111/jan.12479
language
English
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yes
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41bcb868-97f6-4232-a0fe-e406f5099f00 (old id 7425259)
date added to LUP
2015-07-03 07:06:42
date last changed
2017-01-01 04:17:14
@article{41bcb868-97f6-4232-a0fe-e406f5099f00,
  abstract     = {AimTo investigate agreement between: (1) expected reasons and actual reasons for admission of people with dementia according to informal caregivers; (2) scores on measurement instruments prior to admission and the actual reasons for admission according to informal caregivers. BackgroundTimely admission of people with dementia is a crucial issue. Information is highly warranted on whether informal caregivers are capable of prior identification of causes of admission and, can thus be considered a reliable prospective source on causes of admission. DesignA cohort study among informal caregivers of people with dementia who made a transition to institutional long-term care. MethodsQualitative data on the expected and actual reasons for admission were collected via open-ended questions at baseline and follow-up. Furthermore, at baseline, data were collected using measurement instruments to measure pre-admission characteristics. Interviews took place between November 2010-April 2012. After categorizing the answers, the agreement between the expected and actual reasons was calculated. Furthermore, bivariate associations were calculated between the actual reasons for admission and scores on corresponding measurement instruments. Results/FindingsFor most informal caregivers, there was agreement between their statements on the expected reason and the actual reason for admission. A third of the caregivers showed no conformity. Bivariate associations showed that there is also agreement between the actual reasons for admission and scores on corresponding measurement instruments. ConclusionInformal caregivers can be considered reliable sources of information regarding what causes the admission of a person with dementia. Professional care should anticipate informal caregivers' statements and collaborate with them to strive for timely and appropriate admission.},
  author       = {Afram, Basema and Verbeek, Hilde and Bleijlevens, Michel H. C. and Challis, David and Leino-Kilpi, Helena and Karlsson, Staffan and Soto, Maria E. and Renom-Guiteras, Anna and Saks, Kai and Zabalegui, Adelaida and Hamers, Jan P. H.},
  issn         = {0309-2402},
  keyword      = {care transition,dementia,family care,informal care,institutional,long-term care,nursing,nursing home,predicting admission,reasons for,admission},
  language     = {eng},
  number       = {6},
  pages        = {1351--1362},
  publisher    = {Wiley-Blackwell},
  series       = {Journal of Advanced Nursing},
  title        = {Predicting institutional long-term care admission in dementia: a mixed-methods study of informal caregivers' reports},
  url          = {http://dx.doi.org/10.1111/jan.12479},
  volume       = {71},
  year         = {2015},
}