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What do pediatric surgeons think about sexual issues in dealing with patients with anorectal malformations? The ARM-Net consortium members’ opinion

Amerstorfer, Eva Elisa ; Grano, Caterina ; Verhaak, Chris ; García-Vasquez, Araceli ; Miserez, Marc ; Radleff-Schlimme, Annemone ; Schwarzer, Nicole ; Haanen, Michel ; de Blaauw, Ivo and Jenetzky, Ekkehart , et al. (2019) In Pediatric Surgery International 35(9). p.935-943
Abstract

Purpose: Since pediatric surgeons aim to follow their patients with anorectal malformations (ARM) into adulthood the aim of this study was to investigate how pediatric surgeons deal with sexual issues related to ARM. Methods: In 2018, a questionnaire was developed by the working group “Follow-up and sexuality” of the ARM-Net consortium and sent to all consortium-linked pediatric surgeons from 31 European pediatric surgical centers. Obtained data were statistically analyzed. Results: Twenty-eight of 37 pediatric surgeons (18 males/10 females) answered the questionnaire. The majority of pediatric surgeons (82%) think they should talk about sexual issues with their patient. More than 50% of pediatric surgeons do not feel at all or only... (More)

Purpose: Since pediatric surgeons aim to follow their patients with anorectal malformations (ARM) into adulthood the aim of this study was to investigate how pediatric surgeons deal with sexual issues related to ARM. Methods: In 2018, a questionnaire was developed by the working group “Follow-up and sexuality” of the ARM-Net consortium and sent to all consortium-linked pediatric surgeons from 31 European pediatric surgical centers. Obtained data were statistically analyzed. Results: Twenty-eight of 37 pediatric surgeons (18 males/10 females) answered the questionnaire. The majority of pediatric surgeons (82%) think they should talk about sexual issues with their patient. More than 50% of pediatric surgeons do not feel at all or only moderately confident discussing the topic of sexuality. Most pediatric surgeons require more support (96%) and wish to be trained in sexuality and sexual issues (78%) to feel confident towards their ARM-patients/parents. For optimal care, sexual issues with ARM-patients should be managed by a multidisciplinary team. Conclusions: Pediatric surgeons feel that sexuality is an important issue for their ARM-patients, which they are primarily responsible of but should be managed in concert with a multidisciplinary team. A training in sexuality is wished to feel more confident about this specific issue.

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LU orcid
author collaboration
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Adolescence, Anorectal malformation, ARM-Net, Sexual functioning, Sexuality, Training
in
Pediatric Surgery International
volume
35
issue
9
pages
935 - 943
publisher
Springer
external identifiers
  • pmid:31278477
  • scopus:85068855610
ISSN
0179-0358
DOI
10.1007/s00383-019-04506-0
language
English
LU publication?
yes
additional info
Publisher Copyright: © 2019, The Author(s). Copyright: Copyright 2019 Elsevier B.V., All rights reserved.
id
746d56d3-eb07-47f7-987c-fba37add2611
date added to LUP
2021-06-28 17:15:35
date last changed
2024-05-04 09:15:47
@article{746d56d3-eb07-47f7-987c-fba37add2611,
  abstract     = {{<p>Purpose: Since pediatric surgeons aim to follow their patients with anorectal malformations (ARM) into adulthood the aim of this study was to investigate how pediatric surgeons deal with sexual issues related to ARM. Methods: In 2018, a questionnaire was developed by the working group “Follow-up and sexuality” of the ARM-Net consortium and sent to all consortium-linked pediatric surgeons from 31 European pediatric surgical centers. Obtained data were statistically analyzed. Results: Twenty-eight of 37 pediatric surgeons (18 males/10 females) answered the questionnaire. The majority of pediatric surgeons (82%) think they should talk about sexual issues with their patient. More than 50% of pediatric surgeons do not feel at all or only moderately confident discussing the topic of sexuality. Most pediatric surgeons require more support (96%) and wish to be trained in sexuality and sexual issues (78%) to feel confident towards their ARM-patients/parents. For optimal care, sexual issues with ARM-patients should be managed by a multidisciplinary team. Conclusions: Pediatric surgeons feel that sexuality is an important issue for their ARM-patients, which they are primarily responsible of but should be managed in concert with a multidisciplinary team. A training in sexuality is wished to feel more confident about this specific issue.</p>}},
  author       = {{Amerstorfer, Eva Elisa and Grano, Caterina and Verhaak, Chris and García-Vasquez, Araceli and Miserez, Marc and Radleff-Schlimme, Annemone and Schwarzer, Nicole and Haanen, Michel and de Blaauw, Ivo and Jenetzky, Ekkehart and van der Steeg, Alida and van Rooij, Iris A.L.M. and Aminoff, Dalia and Bagolan, Piero and Iacobelli, Barbara and Broens, Paul and Deluggi, Stefan and Ludwiczek, Johanna and Fanjul, Maria and Fascetti-Leon, Francesco and Gamba, Piergiorgio and Giné, Carlos and Giuliani, Stefano and Goseman, Jan and Lacher, Martin and Grasshoff-Derr, Sabine and Holland-Cunz, Stefan and Leva, Ernesto and Morandi, Anna and Lisi, Gabriele and Madadi-Sanjan, Omid and Makedonsky, Igor and Marcelis, Carlo and Midrio, Paola and Ozen, Onur and PiniPrato, Alessio and Reck-Burneo, Carlos and Reutter, Heiko and Rohleder, Stephan and Samuk, Inbal and Schmiedeke, Eberhard and Sloots, Pim and van der Steeg, Herjan and Till, Holger and Volk, Patrick and Wester, Tomas}},
  issn         = {{0179-0358}},
  keywords     = {{Adolescence; Anorectal malformation; ARM-Net; Sexual functioning; Sexuality; Training}},
  language     = {{eng}},
  number       = {{9}},
  pages        = {{935--943}},
  publisher    = {{Springer}},
  series       = {{Pediatric Surgery International}},
  title        = {{What do pediatric surgeons think about sexual issues in dealing with patients with anorectal malformations? The ARM-Net consortium members’ opinion}},
  url          = {{http://dx.doi.org/10.1007/s00383-019-04506-0}},
  doi          = {{10.1007/s00383-019-04506-0}},
  volume       = {{35}},
  year         = {{2019}},
}