Sheltering in chaos : parents’ experiences when facing moral challenges in childhood cancer care
(2023) In Ethics and Behavior- Abstract
Childhood cancers are life-threatening diseases that affect the whole family. During the treatment moral situations might arise. Research on how parents perceive moral challenges in childhood cancer care is sparse. The aim was to explore parents’ main concern, and how they deal with their main concern, when facing moral challenges in childhood cancer care. Data collection included focus group interviews with parents. The data analysis was carried out according to a classical theory and revealed the core category “Sheltering in chaos”. The strategies to handle the main concern included “To bring the child through a life-saving trajectory” by “Balancing control” and “Deliberating of suffering. The consequences included feelings of being... (More)
Childhood cancers are life-threatening diseases that affect the whole family. During the treatment moral situations might arise. Research on how parents perceive moral challenges in childhood cancer care is sparse. The aim was to explore parents’ main concern, and how they deal with their main concern, when facing moral challenges in childhood cancer care. Data collection included focus group interviews with parents. The data analysis was carried out according to a classical theory and revealed the core category “Sheltering in chaos”. The strategies to handle the main concern included “To bring the child through a life-saving trajectory” by “Balancing control” and “Deliberating of suffering. The consequences included feelings of being “Torn between roles”. “Familiarity” emerged as a facilitating factor to handle moral challenges. The results indicate that parents are torn between different roles, and that the care experience is improved through familiarity with the healthcare professionals. The following findings may inspire new ways of offering moral support to families in childhood cancer care.
(Less)
- author
- Weiner, Charlotte ; Pergert, Pernilla ; Castor, Anders LU ; Molewijk, Bert and Bartholdson, Cecilia
- organization
- publishing date
- 2023
- type
- Contribution to journal
- publication status
- epub
- subject
- keywords
- Childhood cancer, concerns, moral, parents, qualitative research
- in
- Ethics and Behavior
- publisher
- Routledge
- external identifiers
-
- scopus:85176131011
- ISSN
- 1050-8422
- DOI
- 10.1080/10508422.2023.2267708
- language
- English
- LU publication?
- yes
- id
- 75327ef5-2c83-40b2-9b9f-0e7a80b5708a
- date added to LUP
- 2023-11-24 11:17:32
- date last changed
- 2023-11-24 11:19:19
@article{75327ef5-2c83-40b2-9b9f-0e7a80b5708a,
abstract = {{<p>Childhood cancers are life-threatening diseases that affect the whole family. During the treatment moral situations might arise. Research on how parents perceive moral challenges in childhood cancer care is sparse. The aim was to explore parents’ main concern, and how they deal with their main concern, when facing moral challenges in childhood cancer care. Data collection included focus group interviews with parents. The data analysis was carried out according to a classical theory and revealed the core category “Sheltering in chaos”. The strategies to handle the main concern included “To bring the child through a life-saving trajectory” by “Balancing control” and “Deliberating of suffering. The consequences included feelings of being “Torn between roles”. “Familiarity” emerged as a facilitating factor to handle moral challenges. The results indicate that parents are torn between different roles, and that the care experience is improved through familiarity with the healthcare professionals. The following findings may inspire new ways of offering moral support to families in childhood cancer care.</p>}},
author = {{Weiner, Charlotte and Pergert, Pernilla and Castor, Anders and Molewijk, Bert and Bartholdson, Cecilia}},
issn = {{1050-8422}},
keywords = {{Childhood cancer; concerns; moral; parents; qualitative research}},
language = {{eng}},
publisher = {{Routledge}},
series = {{Ethics and Behavior}},
title = {{Sheltering in chaos : parents’ experiences when facing moral challenges in childhood cancer care}},
url = {{http://dx.doi.org/10.1080/10508422.2023.2267708}},
doi = {{10.1080/10508422.2023.2267708}},
year = {{2023}},
}