Probability of independent walking and wheeled mobility in individuals with cerebral palsy
(2023) In Developmental Medicine and Child Neurology- Abstract
Aim: To estimate the probability of independent walking and wheeled mobility in individuals with cerebral palsy (CP) at home and in the community in relation to age and gross motor function. Method: This was a longitudinal cohort study using data reported into the combined Swedish CP follow-up programme and national quality registry from October 2000 to October 2022. Walking, walking with aids, wheeled mobility, and assisted mobility defined independent or assisted mobility at home and in the community, based on the Functional Mobility Scale with additional data on wheelchair performance, were assessed. Results: There were 52 858 examinations reported for 6647 individuals with CP (age range 0–32 years, follow-up period 0–22 years). Most... (More)
Aim: To estimate the probability of independent walking and wheeled mobility in individuals with cerebral palsy (CP) at home and in the community in relation to age and gross motor function. Method: This was a longitudinal cohort study using data reported into the combined Swedish CP follow-up programme and national quality registry from October 2000 to October 2022. Walking, walking with aids, wheeled mobility, and assisted mobility defined independent or assisted mobility at home and in the community, based on the Functional Mobility Scale with additional data on wheelchair performance, were assessed. Results: There were 52 858 examinations reported for 6647 individuals with CP (age range 0–32 years, follow-up period 0–22 years). Most children and adults in Gross Motor Function Classification System (GMFCS) levels I or II walked without assistive devices. The probability of dependence on others for mobility in the community was high for both children and adults in GMFCS levels III to V. Interpretation: Although independent mobility is vital for participation and social inclusion, many children and adults with CP are dependent on others for mobility. We recommend clinicians, together with families and individuals with CP, explore how to increase access to independent mobility from an early age and continuously throughout the life course.
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- author
- Noten, Suzie ; Pettersson, Katina LU ; Czuba, Tomasz LU ; Cloodt, Erika LU ; Casey, Jackie LU and Rodby-Bousquet, Elisabet LU
- organization
- publishing date
- 2023
- type
- Contribution to journal
- publication status
- epub
- subject
- in
- Developmental Medicine and Child Neurology
- publisher
- John Wiley & Sons Inc.
- external identifiers
-
- pmid:37559231
- scopus:85167420394
- ISSN
- 0012-1622
- DOI
- 10.1111/dmcn.15731
- language
- English
- LU publication?
- yes
- id
- 75692966-d7f6-4c28-92b9-89bae93138fd
- date added to LUP
- 2023-11-21 12:52:39
- date last changed
- 2024-04-18 16:07:59
@article{75692966-d7f6-4c28-92b9-89bae93138fd, abstract = {{<p>Aim: To estimate the probability of independent walking and wheeled mobility in individuals with cerebral palsy (CP) at home and in the community in relation to age and gross motor function. Method: This was a longitudinal cohort study using data reported into the combined Swedish CP follow-up programme and national quality registry from October 2000 to October 2022. Walking, walking with aids, wheeled mobility, and assisted mobility defined independent or assisted mobility at home and in the community, based on the Functional Mobility Scale with additional data on wheelchair performance, were assessed. Results: There were 52 858 examinations reported for 6647 individuals with CP (age range 0–32 years, follow-up period 0–22 years). Most children and adults in Gross Motor Function Classification System (GMFCS) levels I or II walked without assistive devices. The probability of dependence on others for mobility in the community was high for both children and adults in GMFCS levels III to V. Interpretation: Although independent mobility is vital for participation and social inclusion, many children and adults with CP are dependent on others for mobility. We recommend clinicians, together with families and individuals with CP, explore how to increase access to independent mobility from an early age and continuously throughout the life course.</p>}}, author = {{Noten, Suzie and Pettersson, Katina and Czuba, Tomasz and Cloodt, Erika and Casey, Jackie and Rodby-Bousquet, Elisabet}}, issn = {{0012-1622}}, language = {{eng}}, publisher = {{John Wiley & Sons Inc.}}, series = {{Developmental Medicine and Child Neurology}}, title = {{Probability of independent walking and wheeled mobility in individuals with cerebral palsy}}, url = {{http://dx.doi.org/10.1111/dmcn.15731}}, doi = {{10.1111/dmcn.15731}}, year = {{2023}}, }