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Probability of independent walking and wheeled mobility in individuals with cerebral palsy

Noten, Suzie ; Pettersson, Katina LU ; Czuba, Tomasz LU ; Cloodt, Erika LU ; Casey, Jackie LU and Rodby-Bousquet, Elisabet LU (2023) In Developmental Medicine and Child Neurology
Abstract

Aim: To estimate the probability of independent walking and wheeled mobility in individuals with cerebral palsy (CP) at home and in the community in relation to age and gross motor function. Method: This was a longitudinal cohort study using data reported into the combined Swedish CP follow-up programme and national quality registry from October 2000 to October 2022. Walking, walking with aids, wheeled mobility, and assisted mobility defined independent or assisted mobility at home and in the community, based on the Functional Mobility Scale with additional data on wheelchair performance, were assessed. Results: There were 52 858 examinations reported for 6647 individuals with CP (age range 0–32 years, follow-up period 0–22 years). Most... (More)

Aim: To estimate the probability of independent walking and wheeled mobility in individuals with cerebral palsy (CP) at home and in the community in relation to age and gross motor function. Method: This was a longitudinal cohort study using data reported into the combined Swedish CP follow-up programme and national quality registry from October 2000 to October 2022. Walking, walking with aids, wheeled mobility, and assisted mobility defined independent or assisted mobility at home and in the community, based on the Functional Mobility Scale with additional data on wheelchair performance, were assessed. Results: There were 52 858 examinations reported for 6647 individuals with CP (age range 0–32 years, follow-up period 0–22 years). Most children and adults in Gross Motor Function Classification System (GMFCS) levels I or II walked without assistive devices. The probability of dependence on others for mobility in the community was high for both children and adults in GMFCS levels III to V. Interpretation: Although independent mobility is vital for participation and social inclusion, many children and adults with CP are dependent on others for mobility. We recommend clinicians, together with families and individuals with CP, explore how to increase access to independent mobility from an early age and continuously throughout the life course.

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author
; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
epub
subject
in
Developmental Medicine and Child Neurology
publisher
John Wiley & Sons Inc.
external identifiers
  • pmid:37559231
  • scopus:85167420394
ISSN
0012-1622
DOI
10.1111/dmcn.15731
language
English
LU publication?
yes
id
75692966-d7f6-4c28-92b9-89bae93138fd
date added to LUP
2023-11-21 12:52:39
date last changed
2024-04-18 16:07:59
@article{75692966-d7f6-4c28-92b9-89bae93138fd,
  abstract     = {{<p>Aim: To estimate the probability of independent walking and wheeled mobility in individuals with cerebral palsy (CP) at home and in the community in relation to age and gross motor function. Method: This was a longitudinal cohort study using data reported into the combined Swedish CP follow-up programme and national quality registry from October 2000 to October 2022. Walking, walking with aids, wheeled mobility, and assisted mobility defined independent or assisted mobility at home and in the community, based on the Functional Mobility Scale with additional data on wheelchair performance, were assessed. Results: There were 52 858 examinations reported for 6647 individuals with CP (age range 0–32 years, follow-up period 0–22 years). Most children and adults in Gross Motor Function Classification System (GMFCS) levels I or II walked without assistive devices. The probability of dependence on others for mobility in the community was high for both children and adults in GMFCS levels III to V. Interpretation: Although independent mobility is vital for participation and social inclusion, many children and adults with CP are dependent on others for mobility. We recommend clinicians, together with families and individuals with CP, explore how to increase access to independent mobility from an early age and continuously throughout the life course.</p>}},
  author       = {{Noten, Suzie and Pettersson, Katina and Czuba, Tomasz and Cloodt, Erika and Casey, Jackie and Rodby-Bousquet, Elisabet}},
  issn         = {{0012-1622}},
  language     = {{eng}},
  publisher    = {{John Wiley & Sons Inc.}},
  series       = {{Developmental Medicine and Child Neurology}},
  title        = {{Probability of independent walking and wheeled mobility in individuals with cerebral palsy}},
  url          = {{http://dx.doi.org/10.1111/dmcn.15731}},
  doi          = {{10.1111/dmcn.15731}},
  year         = {{2023}},
}