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Transfer to Adult Care-Experiences of Young Adults with Congenital Heart Disease.

Asp, Ann; Bratt, Ewa-Lena and Bramhagen, Ann-Cathrine LU (2015) In Journal of Pediatric Nursing: Nursing Care of Children and Families 30(5). p.3-10
Abstract
More than 90% of children born with congenital heart disease survive into adulthood due to successes of cardiac surgery and medical management. Interviews with 16 young adults with congenital heart disease to explore their experiences of transfer from pediatric to adult care were performed. The analysis identified five themes; Feeling secure during the transfer process, Experiencing trust in the care, Expecting to be involved, Assuming responsibility for one's health is a process and Lack of knowledge leads to uncertainty. In conclusion; a structured and gradual transfer process was necessary to enable the informants to shoulder the responsibility for self-care.
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Journal of Pediatric Nursing: Nursing Care of Children and Families
volume
30
issue
5
pages
3 - 10
publisher
Elsevier
external identifiers
  • pmid:26199097
  • wos:000360980800001
  • scopus:84940896223
ISSN
1532-8449
DOI
10.1016/j.pedn.2015.05.025
language
English
LU publication?
yes
id
5403e333-d0f2-40e1-aaef-76eec4ec6a9c (old id 7721585)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/26199097?dopt=Abstract
date added to LUP
2015-08-10 15:53:06
date last changed
2017-07-30 03:08:12
@article{5403e333-d0f2-40e1-aaef-76eec4ec6a9c,
  abstract     = {More than 90% of children born with congenital heart disease survive into adulthood due to successes of cardiac surgery and medical management. Interviews with 16 young adults with congenital heart disease to explore their experiences of transfer from pediatric to adult care were performed. The analysis identified five themes; Feeling secure during the transfer process, Experiencing trust in the care, Expecting to be involved, Assuming responsibility for one's health is a process and Lack of knowledge leads to uncertainty. In conclusion; a structured and gradual transfer process was necessary to enable the informants to shoulder the responsibility for self-care.},
  author       = {Asp, Ann and Bratt, Ewa-Lena and Bramhagen, Ann-Cathrine},
  issn         = {1532-8449},
  language     = {eng},
  number       = {5},
  pages        = {3--10},
  publisher    = {Elsevier},
  series       = {Journal of Pediatric Nursing: Nursing Care of Children and Families},
  title        = {Transfer to Adult Care-Experiences of Young Adults with Congenital Heart Disease.},
  url          = {http://dx.doi.org/10.1016/j.pedn.2015.05.025},
  volume       = {30},
  year         = {2015},
}