Transfer to Adult Care-Experiences of Young Adults with Congenital Heart Disease.
(2015) In Journal of Pediatric Nursing: Nursing Care of Children and Families 30(5). p.3-10- Abstract
- More than 90% of children born with congenital heart disease survive into adulthood due to successes of cardiac surgery and medical management. Interviews with 16 young adults with congenital heart disease to explore their experiences of transfer from pediatric to adult care were performed. The analysis identified five themes; Feeling secure during the transfer process, Experiencing trust in the care, Expecting to be involved, Assuming responsibility for one's health is a process and Lack of knowledge leads to uncertainty. In conclusion; a structured and gradual transfer process was necessary to enable the informants to shoulder the responsibility for self-care.
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/7721585
- author
- Asp, Ann ; Bratt, Ewa-Lena and Bramhagen, Ann-Cathrine LU
- organization
- publishing date
- 2015
- type
- Contribution to journal
- publication status
- published
- subject
- in
- Journal of Pediatric Nursing: Nursing Care of Children and Families
- volume
- 30
- issue
- 5
- pages
- 3 - 10
- publisher
- Elsevier
- external identifiers
-
- pmid:26199097
- wos:000360980800001
- scopus:84940896223
- pmid:26199097
- ISSN
- 1532-8449
- DOI
- 10.1016/j.pedn.2015.05.025
- language
- English
- LU publication?
- yes
- id
- 5403e333-d0f2-40e1-aaef-76eec4ec6a9c (old id 7721585)
- alternative location
- http://www.ncbi.nlm.nih.gov/pubmed/26199097?dopt=Abstract
- date added to LUP
- 2016-04-01 10:10:46
- date last changed
- 2025-04-04 14:54:22
@article{5403e333-d0f2-40e1-aaef-76eec4ec6a9c,
abstract = {{More than 90% of children born with congenital heart disease survive into adulthood due to successes of cardiac surgery and medical management. Interviews with 16 young adults with congenital heart disease to explore their experiences of transfer from pediatric to adult care were performed. The analysis identified five themes; Feeling secure during the transfer process, Experiencing trust in the care, Expecting to be involved, Assuming responsibility for one's health is a process and Lack of knowledge leads to uncertainty. In conclusion; a structured and gradual transfer process was necessary to enable the informants to shoulder the responsibility for self-care.}},
author = {{Asp, Ann and Bratt, Ewa-Lena and Bramhagen, Ann-Cathrine}},
issn = {{1532-8449}},
language = {{eng}},
number = {{5}},
pages = {{3--10}},
publisher = {{Elsevier}},
series = {{Journal of Pediatric Nursing: Nursing Care of Children and Families}},
title = {{Transfer to Adult Care-Experiences of Young Adults with Congenital Heart Disease.}},
url = {{http://dx.doi.org/10.1016/j.pedn.2015.05.025}},
doi = {{10.1016/j.pedn.2015.05.025}},
volume = {{30}},
year = {{2015}},
}