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Teenagers and young adults with cancer in Europe: from national programmes to a European integrated coordinated project.

Stark, D; Bielack, S; Brugieres, L; Dirksen, U; Duarte, X; Dunn, S; Erdelyi, D J; Grew, T; Hjorth, Lars LU and Jazbec, J, et al. (2015) In European Journal of Cancer Care
Abstract
Over 14 000 patients aged 15-24 are estimated to be diagnosed with cancer in the European Union (EU) each year. Teenagers and young adults (TYA) often fall down gaps between children's and adults cancer services. The specific challenges of providing optimal care to them are described, but we present a summary of recent progress. Progress to overcome these challenges is happening at different rates across Europe. We summarise the European national projects in this field but more recently we have seen the beginnings of European coordination. Within the EU 7th Funding Programme (FP7) European Network for Cancer Research in Children and Adolescents programme (ENCCA), a specific European Network for Teenagers and Young Adults with Cancer has... (More)
Over 14 000 patients aged 15-24 are estimated to be diagnosed with cancer in the European Union (EU) each year. Teenagers and young adults (TYA) often fall down gaps between children's and adults cancer services. The specific challenges of providing optimal care to them are described, but we present a summary of recent progress. Progress to overcome these challenges is happening at different rates across Europe. We summarise the European national projects in this field but more recently we have seen the beginnings of European coordination. Within the EU 7th Funding Programme (FP7) European Network for Cancer Research in Children and Adolescents programme (ENCCA), a specific European Network for Teenagers and Young Adults with Cancer has held a series of scientific meetings, including professionals, patients and caregivers. This group has proposed unanswered research questions and agreed key features of a high-quality service that can improve outcomes for TYA with cancer, including the primacy of collaboration between adult and paediatric services to eliminate the gap in the management of TYA with cancer. (Less)
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European Journal of Cancer Care
publisher
John Wiley & Sons
external identifiers
  • pmid:26239724
  • scopus:84939220962
ISSN
1365-2354
DOI
10.1111/ecc.12365
language
English
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yes
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59f86fc5-a11d-4c16-919c-457f587d7f1c (old id 7844748)
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http://www.ncbi.nlm.nih.gov/pubmed/26239724?dopt=Abstract
date added to LUP
2015-09-05 13:42:10
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2017-11-12 04:07:02
@article{59f86fc5-a11d-4c16-919c-457f587d7f1c,
  abstract     = {Over 14 000 patients aged 15-24 are estimated to be diagnosed with cancer in the European Union (EU) each year. Teenagers and young adults (TYA) often fall down gaps between children's and adults cancer services. The specific challenges of providing optimal care to them are described, but we present a summary of recent progress. Progress to overcome these challenges is happening at different rates across Europe. We summarise the European national projects in this field but more recently we have seen the beginnings of European coordination. Within the EU 7th Funding Programme (FP7) European Network for Cancer Research in Children and Adolescents programme (ENCCA), a specific European Network for Teenagers and Young Adults with Cancer has held a series of scientific meetings, including professionals, patients and caregivers. This group has proposed unanswered research questions and agreed key features of a high-quality service that can improve outcomes for TYA with cancer, including the primacy of collaboration between adult and paediatric services to eliminate the gap in the management of TYA with cancer.},
  author       = {Stark, D and Bielack, S and Brugieres, L and Dirksen, U and Duarte, X and Dunn, S and Erdelyi, D J and Grew, T and Hjorth, Lars and Jazbec, J and Kabickova, E and Konsoulova, A and Kowalczyk, J R and Lassaletta, A and Laurence, V and Lewis, I and Monrabal, A and Morgan, S and Mountzios, G and Olsen, P R and Renard, M and Saeter, G and van der Graaf, W T and Ferrari, A},
  issn         = {1365-2354},
  language     = {eng},
  month        = {08},
  publisher    = {John Wiley & Sons},
  series       = {European Journal of Cancer Care},
  title        = {Teenagers and young adults with cancer in Europe: from national programmes to a European integrated coordinated project.},
  url          = {http://dx.doi.org/10.1111/ecc.12365},
  year         = {2015},
}