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Ambivalence about Race : Expert opinions on using racial and ethnic categories in clinical research in Sweden

Bredström, Anna and Mulinari, Shai LU (2025) p.193-208
Abstract
This chapter examines the localized ambivalence surrounding the use of race in contemporary biomedicine: how race is constructed as both valid/relevant and invalid/irrelevant in a specific national setting. It is based on interviews with twenty-six expert professionals in Sweden who are directly or indirectly involved in clinical pharmaceutical research, including clinical researchers, research nurses, pharmacists, regulators, statisticians, and professionals from the pharmaceutical industry and clinical trial companies. The analysis explores how the professionals narrate their experiences and understandings of racialized concepts and categories. Most interviewees express strong postracial sentiments by rejecting race as a scientifically... (More)
This chapter examines the localized ambivalence surrounding the use of race in contemporary biomedicine: how race is constructed as both valid/relevant and invalid/irrelevant in a specific national setting. It is based on interviews with twenty-six expert professionals in Sweden who are directly or indirectly involved in clinical pharmaceutical research, including clinical researchers, research nurses, pharmacists, regulators, statisticians, and professionals from the pharmaceutical industry and clinical trial companies. The analysis explores how the professionals narrate their experiences and understandings of racialized concepts and categories. Most interviewees express strong postracial sentiments by rejecting race as a scientifically valid and useful concept. However, our analysis shows that race is nonetheless present in their professional experiences and discourses, enacted in three ways: through the mundane, everyday use of racial categories in clinical trials; through the conflation of ethnicity and race; and through a population genetics discourse about the scientific usefulness of race. We conclude that, despite moral, political, and scientific arguments against race, many informants express ideas about racial differences, and we discuss whether this may be explained by a high level of trust in medical knowledge production and the institutions regulating this knowledge production, including drug regulatory agencies. (Less)
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author
and
organization
publishing date
type
Chapter in Book/Report/Conference proceeding
publication status
published
subject
host publication
The Order of People. Contesting Bio-Scientific Human Classifications
editor
Ellebrecht, Nils ; Plümecke, Tino ; Bartram, Isabelle ; Lipphardt, Veronika ; Reardon, Jenny and zur Nieden, Andrea
pages
193 - 208
publisher
Transcript-Verlag
ISBN
978-3-8376-7237-4
DOI
10.14361/9783839472378-011
project
Are you Caucasian, Black, or Asian? A study of the current Swedish biopolitical paradigm of race and ethnicity in medicine
language
English
LU publication?
yes
id
78507717-f2c5-427d-ab66-05aebb7f0a3f
date added to LUP
2026-02-11 15:05:05
date last changed
2026-02-16 10:11:48
@inbook{78507717-f2c5-427d-ab66-05aebb7f0a3f,
  abstract     = {{This chapter examines the localized ambivalence surrounding the use of race in contemporary biomedicine: how race is constructed as both valid/relevant and invalid/irrelevant in a specific national setting. It is based on interviews with twenty-six expert professionals in Sweden who are directly or indirectly involved in clinical pharmaceutical research, including clinical researchers, research nurses, pharmacists, regulators, statisticians, and professionals from the pharmaceutical industry and clinical trial companies. The analysis explores how the professionals narrate their experiences and understandings of racialized concepts and categories. Most interviewees express strong postracial sentiments by rejecting race as a scientifically valid and useful concept. However, our analysis shows that race is nonetheless present in their professional experiences and discourses, enacted in three ways: through the mundane, everyday use of racial categories in clinical trials; through the conflation of ethnicity and race; and through a population genetics discourse about the scientific usefulness of race. We conclude that, despite moral, political, and scientific arguments against race, many informants express ideas about racial differences, and we discuss whether this may be explained by a high level of trust in medical knowledge production and the institutions regulating this knowledge production, including drug regulatory agencies.}},
  author       = {{Bredström, Anna and Mulinari, Shai}},
  booktitle    = {{The Order of People. Contesting Bio-Scientific Human Classifications}},
  editor       = {{Ellebrecht, Nils and Plümecke, Tino and Bartram, Isabelle and Lipphardt, Veronika and Reardon, Jenny and zur Nieden, Andrea}},
  isbn         = {{978-3-8376-7237-4}},
  language     = {{eng}},
  month        = {{12}},
  pages        = {{193--208}},
  publisher    = {{Transcript-Verlag}},
  title        = {{Ambivalence about Race : Expert opinions on using racial and ethnic categories in clinical research in Sweden}},
  url          = {{https://lup.lub.lu.se/search/files/242042954/9783839472378-011.pdf}},
  doi          = {{10.14361/9783839472378-011}},
  year         = {{2025}},
}