Health and social service access among family caregivers of people with Parkinson's disease
(2016) In Journal of Parkinson's Disease 6(3). p.581-587- Abstract
Background: Being a family caregiver for a person with Parkinson s disease (PD) can negatively impact health and wellbeing, but it appears less clear to what extent caregivers health/social service needs are met. Objective: We explored the extent to which PD family caregivers experience sufficient access to health/social services, as compared to age-matched controls; and the associations between this and demographic and health-related variables. Methods: A cross-sectional survey of 66 PD family caregivers and 79 age-matched control subjects including the SF-36 health survey, the Nottingham Health Profile Sleep section (NHP-Sleep), and questions regarding contacts with various health/social related services and whether these were... (More)
Background: Being a family caregiver for a person with Parkinson s disease (PD) can negatively impact health and wellbeing, but it appears less clear to what extent caregivers health/social service needs are met. Objective: We explored the extent to which PD family caregivers experience sufficient access to health/social services, as compared to age-matched controls; and the associations between this and demographic and health-related variables. Methods: A cross-sectional survey of 66 PD family caregivers and 79 age-matched control subjects including the SF-36 health survey, the Nottingham Health Profile Sleep section (NHP-Sleep), and questions regarding contacts with various health/social related services and whether these were perceived as sufficient. Results: People reporting insufficient access (n = 29) were more often PD family caregivers than controls (83% vs. 37%), did more often have a disease of their own (79% vs. 46%), and reported poorer health according to the SF-36 and the NHPSleep. Being a PD family caregiver (OR, 8.90), reporting more pain (OR, 1.02) and having an own disease (OR, 3.46) were independently associated with insufficient health/social service access. Conclusions: Our results imply that those in greatest need for health/social services (i.e., those with poorer health, an own disease, and who are PD family caregivers) are those whose health/social service needs are least met. Larger studies are needed for firmer conclusions and regarding how unmet health/social service needs impacts caregiver health and wellbeing. Health/social service providers should not only focus on patients but also consider their family members needs.
(Less)
- author
- Olsson, Yvonne ; Clarén, Lena ; Alvariza, Anette ; Årestedt, Kristofer and Hagell, Peter
- organization
- publishing date
- 2016
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Caregivers, health, health services needs and demand, Parkinson disease
- in
- Journal of Parkinson's Disease
- volume
- 6
- issue
- 3
- pages
- 7 pages
- publisher
- IOS Press
- external identifiers
-
- pmid:27176624
- wos:000383803000012
- scopus:84983751678
- ISSN
- 1877-7171
- DOI
- 10.3233/JPD-160811
- language
- English
- LU publication?
- no
- id
- 80537cf4-7ff7-4154-adf6-f8bb04140853
- date added to LUP
- 2016-09-16 09:37:30
- date last changed
- 2025-06-29 01:52:47
@article{80537cf4-7ff7-4154-adf6-f8bb04140853,
abstract = {{<p>Background: Being a family caregiver for a person with Parkinson s disease (PD) can negatively impact health and wellbeing, but it appears less clear to what extent caregivers health/social service needs are met. Objective: We explored the extent to which PD family caregivers experience sufficient access to health/social services, as compared to age-matched controls; and the associations between this and demographic and health-related variables. Methods: A cross-sectional survey of 66 PD family caregivers and 79 age-matched control subjects including the SF-36 health survey, the Nottingham Health Profile Sleep section (NHP-Sleep), and questions regarding contacts with various health/social related services and whether these were perceived as sufficient. Results: People reporting insufficient access (n = 29) were more often PD family caregivers than controls (83% vs. 37%), did more often have a disease of their own (79% vs. 46%), and reported poorer health according to the SF-36 and the NHPSleep. Being a PD family caregiver (OR, 8.90), reporting more pain (OR, 1.02) and having an own disease (OR, 3.46) were independently associated with insufficient health/social service access. Conclusions: Our results imply that those in greatest need for health/social services (i.e., those with poorer health, an own disease, and who are PD family caregivers) are those whose health/social service needs are least met. Larger studies are needed for firmer conclusions and regarding how unmet health/social service needs impacts caregiver health and wellbeing. Health/social service providers should not only focus on patients but also consider their family members needs.</p>}},
author = {{Olsson, Yvonne and Clarén, Lena and Alvariza, Anette and Årestedt, Kristofer and Hagell, Peter}},
issn = {{1877-7171}},
keywords = {{Caregivers; health; health services needs and demand; Parkinson disease}},
language = {{eng}},
number = {{3}},
pages = {{581--587}},
publisher = {{IOS Press}},
series = {{Journal of Parkinson's Disease}},
title = {{Health and social service access among family caregivers of people with Parkinson's disease}},
url = {{http://dx.doi.org/10.3233/JPD-160811}},
doi = {{10.3233/JPD-160811}},
volume = {{6}},
year = {{2016}},
}