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Health and social service access among family caregivers of people with Parkinson's disease

Olsson, Yvonne ; Clarén, Lena ; Alvariza, Anette ; Årestedt, Kristofer and Hagell, Peter (2016) In Journal of Parkinson's Disease 6(3). p.581-587
Abstract

Background: Being a family caregiver for a person with Parkinson s disease (PD) can negatively impact health and wellbeing, but it appears less clear to what extent caregivers health/social service needs are met. Objective: We explored the extent to which PD family caregivers experience sufficient access to health/social services, as compared to age-matched controls; and the associations between this and demographic and health-related variables. Methods: A cross-sectional survey of 66 PD family caregivers and 79 age-matched control subjects including the SF-36 health survey, the Nottingham Health Profile Sleep section (NHP-Sleep), and questions regarding contacts with various health/social related services and whether these were... (More)

Background: Being a family caregiver for a person with Parkinson s disease (PD) can negatively impact health and wellbeing, but it appears less clear to what extent caregivers health/social service needs are met. Objective: We explored the extent to which PD family caregivers experience sufficient access to health/social services, as compared to age-matched controls; and the associations between this and demographic and health-related variables. Methods: A cross-sectional survey of 66 PD family caregivers and 79 age-matched control subjects including the SF-36 health survey, the Nottingham Health Profile Sleep section (NHP-Sleep), and questions regarding contacts with various health/social related services and whether these were perceived as sufficient. Results: People reporting insufficient access (n = 29) were more often PD family caregivers than controls (83% vs. 37%), did more often have a disease of their own (79% vs. 46%), and reported poorer health according to the SF-36 and the NHPSleep. Being a PD family caregiver (OR, 8.90), reporting more pain (OR, 1.02) and having an own disease (OR, 3.46) were independently associated with insufficient health/social service access. Conclusions: Our results imply that those in greatest need for health/social services (i.e., those with poorer health, an own disease, and who are PD family caregivers) are those whose health/social service needs are least met. Larger studies are needed for firmer conclusions and regarding how unmet health/social service needs impacts caregiver health and wellbeing. Health/social service providers should not only focus on patients but also consider their family members needs.

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author
; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Caregivers, health, health services needs and demand, Parkinson disease
in
Journal of Parkinson's Disease
volume
6
issue
3
pages
7 pages
publisher
IOS Press
external identifiers
  • scopus:84983751678
  • pmid:27176624
  • wos:000383803000012
ISSN
1877-7171
DOI
10.3233/JPD-160811
language
English
LU publication?
no
id
80537cf4-7ff7-4154-adf6-f8bb04140853
date added to LUP
2016-09-16 09:37:30
date last changed
2024-02-02 23:36:03
@article{80537cf4-7ff7-4154-adf6-f8bb04140853,
  abstract     = {{<p>Background: Being a family caregiver for a person with Parkinson s disease (PD) can negatively impact health and wellbeing, but it appears less clear to what extent caregivers health/social service needs are met. Objective: We explored the extent to which PD family caregivers experience sufficient access to health/social services, as compared to age-matched controls; and the associations between this and demographic and health-related variables. Methods: A cross-sectional survey of 66 PD family caregivers and 79 age-matched control subjects including the SF-36 health survey, the Nottingham Health Profile Sleep section (NHP-Sleep), and questions regarding contacts with various health/social related services and whether these were perceived as sufficient. Results: People reporting insufficient access (n = 29) were more often PD family caregivers than controls (83% vs. 37%), did more often have a disease of their own (79% vs. 46%), and reported poorer health according to the SF-36 and the NHPSleep. Being a PD family caregiver (OR, 8.90), reporting more pain (OR, 1.02) and having an own disease (OR, 3.46) were independently associated with insufficient health/social service access. Conclusions: Our results imply that those in greatest need for health/social services (i.e., those with poorer health, an own disease, and who are PD family caregivers) are those whose health/social service needs are least met. Larger studies are needed for firmer conclusions and regarding how unmet health/social service needs impacts caregiver health and wellbeing. Health/social service providers should not only focus on patients but also consider their family members needs.</p>}},
  author       = {{Olsson, Yvonne and Clarén, Lena and Alvariza, Anette and Årestedt, Kristofer and Hagell, Peter}},
  issn         = {{1877-7171}},
  keywords     = {{Caregivers; health; health services needs and demand; Parkinson disease}},
  language     = {{eng}},
  number       = {{3}},
  pages        = {{581--587}},
  publisher    = {{IOS Press}},
  series       = {{Journal of Parkinson's Disease}},
  title        = {{Health and social service access among family caregivers of people with Parkinson's disease}},
  url          = {{http://dx.doi.org/10.3233/JPD-160811}},
  doi          = {{10.3233/JPD-160811}},
  volume       = {{6}},
  year         = {{2016}},
}