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Instruments for assessing social support in social networks and in the self-management and rehabilitation process of persons poststroke : a scoping review protocol

Falk Johansson, Marcus ; Taei, Afsaneh LU orcid ; McCarthy, Linnea ; Gustavsson, Catharina ; Tomsone, Signe ; Kylén, Maya LU orcid and Elf, Marie (2025) In BMJ Open 15(10).
Abstract

Introduction As care and rehabilitation poststroke are increasingly moving into persons’ home environment, the importance of support from social networks in self-management and rehabilitation has emerged as an important topic for research and practice. While there are instruments used to assess social support and collective efficacy, a clearer scope of the availability and quality of these instruments is needed. This clarification will enable the development of interventions integrating social network perspectives in poststroke rehabilitation. Methods and analysis To assess the availability and quality of instruments assessing social support and collective efficacy, a scoping review will be conducted and reported following the Preferred... (More)

Introduction As care and rehabilitation poststroke are increasingly moving into persons’ home environment, the importance of support from social networks in self-management and rehabilitation has emerged as an important topic for research and practice. While there are instruments used to assess social support and collective efficacy, a clearer scope of the availability and quality of these instruments is needed. This clarification will enable the development of interventions integrating social network perspectives in poststroke rehabilitation. Methods and analysis To assess the availability and quality of instruments assessing social support and collective efficacy, a scoping review will be conducted and reported following the Preferred Reporting Items for Systematic Reviews and Meta-analyses Extension for Scoping Reviews guidelines (PRISMA-ScR). Literature searches conducted between 14 November 2024 and 15 November 2024 in the CINAHL and PubMed/Medline databases resulted in 4631 articles potentially eligible. After removing duplicates, 4121 articles’ titles and abstracts were initially screened. Full-text screening, searches of reference lists and data extraction started in June 2025. Starting August 2025, two reviewers will assess the full texts against the inclusion criteria in Covidence using a coding template. Identified instruments will be appraised following the COSMIN (Consensus-based Standards for the selection of health Measurement INstruments guidelines) and analysed using a narrative descriptive method. Results will be reported in February 2026 according to PRISMA-ScR guidelines. Ethics and dissemination Ethical approval is not required for this scoping review, as it does not involve primary data. However, this review follows established ethical guidelines and best practices, and included studies will be reviewed to ensure that they received ethical approval and included informed consent. Results from the review will be disseminated through an article in a scientific journal, at relevant conferences and surmised to stroke organisations. A policy brief will be developed for health and social care professionals and policy makers.

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author
; ; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Rehabilitation medicine, Social Support, Stroke
in
BMJ Open
volume
15
issue
10
article number
e106975
publisher
BMJ Publishing Group
external identifiers
  • pmid:41093326
  • scopus:105018893244
ISSN
2044-6055
DOI
10.1136/bmjopen-2025-106975
language
English
LU publication?
yes
id
80f62303-2016-417b-99f1-47a4c653976a
date added to LUP
2025-12-16 14:28:10
date last changed
2025-12-17 03:00:03
@article{80f62303-2016-417b-99f1-47a4c653976a,
  abstract     = {{<p>Introduction As care and rehabilitation poststroke are increasingly moving into persons’ home environment, the importance of support from social networks in self-management and rehabilitation has emerged as an important topic for research and practice. While there are instruments used to assess social support and collective efficacy, a clearer scope of the availability and quality of these instruments is needed. This clarification will enable the development of interventions integrating social network perspectives in poststroke rehabilitation. Methods and analysis To assess the availability and quality of instruments assessing social support and collective efficacy, a scoping review will be conducted and reported following the Preferred Reporting Items for Systematic Reviews and Meta-analyses Extension for Scoping Reviews guidelines (PRISMA-ScR). Literature searches conducted between 14 November 2024 and 15 November 2024 in the CINAHL and PubMed/Medline databases resulted in 4631 articles potentially eligible. After removing duplicates, 4121 articles’ titles and abstracts were initially screened. Full-text screening, searches of reference lists and data extraction started in June 2025. Starting August 2025, two reviewers will assess the full texts against the inclusion criteria in Covidence using a coding template. Identified instruments will be appraised following the COSMIN (Consensus-based Standards for the selection of health Measurement INstruments guidelines) and analysed using a narrative descriptive method. Results will be reported in February 2026 according to PRISMA-ScR guidelines. Ethics and dissemination Ethical approval is not required for this scoping review, as it does not involve primary data. However, this review follows established ethical guidelines and best practices, and included studies will be reviewed to ensure that they received ethical approval and included informed consent. Results from the review will be disseminated through an article in a scientific journal, at relevant conferences and surmised to stroke organisations. A policy brief will be developed for health and social care professionals and policy makers.</p>}},
  author       = {{Falk Johansson, Marcus and Taei, Afsaneh and McCarthy, Linnea and Gustavsson, Catharina and Tomsone, Signe and Kylén, Maya and Elf, Marie}},
  issn         = {{2044-6055}},
  keywords     = {{Rehabilitation medicine; Social Support; Stroke}},
  language     = {{eng}},
  number       = {{10}},
  publisher    = {{BMJ Publishing Group}},
  series       = {{BMJ Open}},
  title        = {{Instruments for assessing social support in social networks and in the self-management and rehabilitation process of persons poststroke : a scoping review protocol}},
  url          = {{http://dx.doi.org/10.1136/bmjopen-2025-106975}},
  doi          = {{10.1136/bmjopen-2025-106975}},
  volume       = {{15}},
  year         = {{2025}},
}