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The European multistakeholder PanCareFollowUp project: novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers

van Kalsbeek, Rebecca J. ; Hjorth, Lars LU ; Follin, Cecilia LU and Te Dorsthorst, Jeroen (2021) In European Journal of Cancer 153. p.74-85
Abstract
Background: The majority of childhood cancer survivors are at risk of treatment-related adverse health outcomes. Survivorship care to mitigate these late effects is endorsed, but it is not available for many adult survivors of childhood cancer in Europe. The PanCareFollowUp project was initiated to improve their health and quality of life (QoL) by facilitating person-centred survivorship care. Methods: The PanCareFollowUp consortium was established in 2018, consisting of 14 project partners from ten European countries, including survivor representatives. The consortium will develop two PanCareFollowUp Interventions, including a person-centred guideline–based model of care (Care Intervention) and eHealth lifestyle coaching (Lifestyle... (More)
Background: The majority of childhood cancer survivors are at risk of treatment-related adverse health outcomes. Survivorship care to mitigate these late effects is endorsed, but it is not available for many adult survivors of childhood cancer in Europe. The PanCareFollowUp project was initiated to improve their health and quality of life (QoL) by facilitating person-centred survivorship care. Methods: The PanCareFollowUp consortium was established in 2018, consisting of 14 project partners from ten European countries, including survivor representatives. The consortium will develop two PanCareFollowUp Interventions, including a person-centred guideline–based model of care (Care Intervention) and eHealth lifestyle coaching (Lifestyle Intervention). Their development will be informed by several qualitative studies and systematic reviews on barriers and facilitators for implementation and needs and preferences of healthcare providers (HCPs) and survivors. Implementation of the PanCareFollowUp Care Intervention as usual care will be evaluated prospectively among 800 survivors from Belgium, Czech Republic, Italy and Sweden for survivor empowerment, detection of adverse health conditions, satisfaction among survivors and HCPs, cost-effectiveness and feasibility. The feasibility of the PanCareFollowUp Lifestyle Intervention will be evaluated in the Netherlands among 60 survivors. Results: Replication manuals, allowing for replication of the PanCareFollowUp Care and Lifestyle Intervention, will be published and made freely available after the project. Moreover, results of the corresponding studies are expected within the next five years. Conclusions: The PanCareFollowUp project is a novel European collaboration aiming to improve the health and QoL of all survivors across Europe by developing and prospectively evaluating the person-centred PanCareFollowUp Care and Lifestyle Interventions. © 2021 Elsevier Ltd (Less)
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author
; ; and
author collaboration
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Aftercare, Cancer survivors, Decision-making, Empowerment, Neoplasms, Patient-centred care, Practice guideline, Quality of life, Shared, Survivorship, Article, Belgium, caregiver, child, childhood cancer, childhood cancer survivor, controlled study, cost effectiveness analysis, Czech Republic, empowerment, feasibility study, follow up, health care access, health care quality, healthy lifestyle, human, information dissemination, interpersonal communication, Italy, lifestyle modification, Netherlands, practice guideline, Sweden, systematic review (topic), telehealth, total quality management
in
European Journal of Cancer
volume
153
pages
12 pages
publisher
Elsevier
external identifiers
  • scopus:85110461857
  • pmid:34153717
ISSN
0959-8049
DOI
10.1016/j.ejca.2021.05.030
language
English
LU publication?
yes
id
865e6c74-cf80-4cd2-9d4b-b4670253b58f
date added to LUP
2021-09-14 15:17:11
date last changed
2024-02-20 12:05:18
@article{865e6c74-cf80-4cd2-9d4b-b4670253b58f,
  abstract     = {{Background: The majority of childhood cancer survivors are at risk of treatment-related adverse health outcomes. Survivorship care to mitigate these late effects is endorsed, but it is not available for many adult survivors of childhood cancer in Europe. The PanCareFollowUp project was initiated to improve their health and quality of life (QoL) by facilitating person-centred survivorship care. Methods: The PanCareFollowUp consortium was established in 2018, consisting of 14 project partners from ten European countries, including survivor representatives. The consortium will develop two PanCareFollowUp Interventions, including a person-centred guideline–based model of care (Care Intervention) and eHealth lifestyle coaching (Lifestyle Intervention). Their development will be informed by several qualitative studies and systematic reviews on barriers and facilitators for implementation and needs and preferences of healthcare providers (HCPs) and survivors. Implementation of the PanCareFollowUp Care Intervention as usual care will be evaluated prospectively among 800 survivors from Belgium, Czech Republic, Italy and Sweden for survivor empowerment, detection of adverse health conditions, satisfaction among survivors and HCPs, cost-effectiveness and feasibility. The feasibility of the PanCareFollowUp Lifestyle Intervention will be evaluated in the Netherlands among 60 survivors. Results: Replication manuals, allowing for replication of the PanCareFollowUp Care and Lifestyle Intervention, will be published and made freely available after the project. Moreover, results of the corresponding studies are expected within the next five years. Conclusions: The PanCareFollowUp project is a novel European collaboration aiming to improve the health and QoL of all survivors across Europe by developing and prospectively evaluating the person-centred PanCareFollowUp Care and Lifestyle Interventions. © 2021 Elsevier Ltd}},
  author       = {{van Kalsbeek, Rebecca J. and Hjorth, Lars and Follin, Cecilia and Te Dorsthorst, Jeroen}},
  issn         = {{0959-8049}},
  keywords     = {{Aftercare; Cancer survivors; Decision-making; Empowerment; Neoplasms; Patient-centred care; Practice guideline; Quality of life; Shared; Survivorship; Article; Belgium; caregiver; child; childhood cancer; childhood cancer survivor; controlled study; cost effectiveness analysis; Czech Republic; empowerment; feasibility study; follow up; health care access; health care quality; healthy lifestyle; human; information dissemination; interpersonal communication; Italy; lifestyle modification; Netherlands; practice guideline; Sweden; systematic review (topic); telehealth; total quality management}},
  language     = {{eng}},
  pages        = {{74--85}},
  publisher    = {{Elsevier}},
  series       = {{European Journal of Cancer}},
  title        = {{The European multistakeholder PanCareFollowUp project: novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers}},
  url          = {{http://dx.doi.org/10.1016/j.ejca.2021.05.030}},
  doi          = {{10.1016/j.ejca.2021.05.030}},
  volume       = {{153}},
  year         = {{2021}},
}