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Ostomy patients' perceptions of quality of care

Persson, Eva LU ; Gustavsson, Bengt; Hellström, Anna-Lena; Lappas, George and Hultén, Leif (2005) In Journal of Advanced Nursing 49(1). p.8-51
Abstract

AIM: This paper reports a study whose aim was to assess the quality of care in ostomy patients seen from a patient perspective.

BACKGROUND: A stoma operation causes profound changes in a patient's life because of resulting physical damage, disfigurement, loss of bodily function, and change in personal hygiene. Such changes are a cause of major concern for patients and raise important issue for the quality of care.

METHODS: The study group comprised patients who had undergone a colostomy for rectal cancer or an ileostomy for ulcerative colitis, all attending a stoma outpatient clinic. Quality of care was assessed using the identity-oriented dimension of the validated questionnaire 'Quality of Care from the Patient's... (More)

AIM: This paper reports a study whose aim was to assess the quality of care in ostomy patients seen from a patient perspective.

BACKGROUND: A stoma operation causes profound changes in a patient's life because of resulting physical damage, disfigurement, loss of bodily function, and change in personal hygiene. Such changes are a cause of major concern for patients and raise important issue for the quality of care.

METHODS: The study group comprised patients who had undergone a colostomy for rectal cancer or an ileostomy for ulcerative colitis, all attending a stoma outpatient clinic. Quality of care was assessed using the identity-oriented dimension of the validated questionnaire 'Quality of Care from the Patient's Perspective'. Forty-two ileostomy and 49 colostomy patients completed the questionnaire.

RESULT: While the vast majority of patients in both groups thought that most topics in the questionnaire were important, most rated many aspects of their quality of care as unsatisfactory. One-third of the colostomy patients and one-half of the ileostomy patients were dissatisfied with the information they received about the results of medical examinations and laboratory tests, and an even higher proportion was dissatisfied with their opportunities to participate in the decision-making process or to discuss sexual matters. Stoma-related complications, which occurred in 71% of the ileostomy patients and in 43% of the colostomy patients, had no impact on these results.

CONCLUSION: Information and counselling for patients having ostomies, both on the part of specialist nurses and colorectal surgeons, appeared to deficient, suggesting that standards for quality of care require continuous evaluation and revision.

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author
publishing date
type
Contribution to journal
publication status
published
keywords
Adult, Aged, Aged, 80 and over, Attitude to Health, Colitis, Ulcerative, Female, Humans, Male, Middle Aged, Nurse-Patient Relations, Ostomy, Postoperative Care, Quality of Health Care, Rectal Neoplasms, Surveys and Questionnaires, Journal Article, Research Support, Non-U.S. Gov't
in
Journal of Advanced Nursing
volume
49
issue
1
pages
8 pages
publisher
Wiley-Blackwell
external identifiers
  • scopus:12344282698
ISSN
0309-2402
DOI
10.1111/j.1365-2648.2004.03263.x
language
English
LU publication?
no
id
86c9ff51-3785-4755-820c-0bbaca9fc614
date added to LUP
2017-03-14 17:00:14
date last changed
2017-10-22 05:28:11
@article{86c9ff51-3785-4755-820c-0bbaca9fc614,
  abstract     = {<p>AIM: This paper reports a study whose aim was to assess the quality of care in ostomy patients seen from a patient perspective.</p><p>BACKGROUND: A stoma operation causes profound changes in a patient's life because of resulting physical damage, disfigurement, loss of bodily function, and change in personal hygiene. Such changes are a cause of major concern for patients and raise important issue for the quality of care.</p><p>METHODS: The study group comprised patients who had undergone a colostomy for rectal cancer or an ileostomy for ulcerative colitis, all attending a stoma outpatient clinic. Quality of care was assessed using the identity-oriented dimension of the validated questionnaire 'Quality of Care from the Patient's Perspective'. Forty-two ileostomy and 49 colostomy patients completed the questionnaire.</p><p>RESULT: While the vast majority of patients in both groups thought that most topics in the questionnaire were important, most rated many aspects of their quality of care as unsatisfactory. One-third of the colostomy patients and one-half of the ileostomy patients were dissatisfied with the information they received about the results of medical examinations and laboratory tests, and an even higher proportion was dissatisfied with their opportunities to participate in the decision-making process or to discuss sexual matters. Stoma-related complications, which occurred in 71% of the ileostomy patients and in 43% of the colostomy patients, had no impact on these results.</p><p>CONCLUSION: Information and counselling for patients having ostomies, both on the part of specialist nurses and colorectal surgeons, appeared to deficient, suggesting that standards for quality of care require continuous evaluation and revision.</p>},
  author       = {Persson, Eva and Gustavsson, Bengt and Hellström, Anna-Lena and Lappas, George and Hultén, Leif},
  issn         = {0309-2402},
  keyword      = {Adult,Aged,Aged, 80 and over,Attitude to Health,Colitis, Ulcerative,Female,Humans,Male,Middle Aged,Nurse-Patient Relations,Ostomy,Postoperative Care,Quality of Health Care,Rectal Neoplasms,Surveys and Questionnaires,Journal Article,Research Support, Non-U.S. Gov't},
  language     = {eng},
  number       = {1},
  pages        = {8--51},
  publisher    = {Wiley-Blackwell},
  series       = {Journal of Advanced Nursing},
  title        = {Ostomy patients' perceptions of quality of care},
  url          = {http://dx.doi.org/10.1111/j.1365-2648.2004.03263.x},
  volume       = {49},
  year         = {2005},
}