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Awareness of and attitudes towards public involvement in research on ageing and health among older people in Sweden

Frögren, Joakim LU ; Schmidt, Steven M LU orcid ; Kylén, Maya LU orcid ; Jonsson, Oskar LU orcid ; Slaug, Björn LU orcid and Iwarsson, Susanne LU (2022) In PLoS ONE 17(6).
Abstract

BACKGROUND: While the importance of involving older people in research is increasingly acknowledged, quantitative studies exploring the perspectives of larger samples of older people who take an active role in research on ageing and health are scarce. The aim of this study was to investigate the awareness of and attitudes towards public involvement in research on ageing and health among older people in Sweden.

MATERIALS AND METHODS: Data derived from a survey (N = 881) of people aged 60 years or older in Sweden. Demographics, self-rated health, and attitudes were analysed using descriptive statistics. Awareness of and previous active involvement in research were analysed using chi-square tests and Mann Whitney tests. Factors... (More)

BACKGROUND: While the importance of involving older people in research is increasingly acknowledged, quantitative studies exploring the perspectives of larger samples of older people who take an active role in research on ageing and health are scarce. The aim of this study was to investigate the awareness of and attitudes towards public involvement in research on ageing and health among older people in Sweden.

MATERIALS AND METHODS: Data derived from a survey (N = 881) of people aged 60 years or older in Sweden. Demographics, self-rated health, and attitudes were analysed using descriptive statistics. Awareness of and previous active involvement in research were analysed using chi-square tests and Mann Whitney tests. Factors associated with willingness to be actively involved in research were determined by logistic regressions.

RESULTS: Of the 26% who responded (N = 881), 39% (n = 343) were aware that they could be actively involved in research. Awareness and previous active involvement in research were significantly associated with a higher level of education. Public involvement was believed to enhance research communication and enable valuable contributions related to ageing. The proportion of respondents who were willing to be actively involved in research was significantly higher for respondents with previous experience and a higher level of education.

CONCLUSIONS: Engaging older people in Sweden in research targeting active involvement in research presents a challenge. The study shows an over-representation of people with higher education, who tend to be more aware, have previous experience, and are more willing to be involved in research with public involvement. This implies a risk that groups with lower education are not represented, and that knowledge co-produced with mostly highly educated groups will lead to a biased picture. Further studies are needed to understand how an increased awareness of research and willingness to participate can be achieved. IRRID: RR2-10.2196/17759.

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author
; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
CASE - Centre for Ageing and Supportive Environments
in
PLoS ONE
volume
17
issue
6
article number
e0269993
pages
17 pages
publisher
Public Library of Science (PLoS)
external identifiers
  • pmid:35727745
  • scopus:85132246008
  • pmid:35727745
ISSN
1932-6203
DOI
10.1371/journal.pone.0269993
project
UserAge: Understanding User Participation in Research on Ageing and Health
language
English
LU publication?
yes
id
86d7a72c-c18e-4601-9986-ec900e2a3e3e
date added to LUP
2022-06-22 13:17:36
date last changed
2022-09-12 04:06:46
@article{86d7a72c-c18e-4601-9986-ec900e2a3e3e,
  abstract     = {{<p>BACKGROUND: While the importance of involving older people in research is increasingly acknowledged, quantitative studies exploring the perspectives of larger samples of older people who take an active role in research on ageing and health are scarce. The aim of this study was to investigate the awareness of and attitudes towards public involvement in research on ageing and health among older people in Sweden.</p><p>MATERIALS AND METHODS: Data derived from a survey (N = 881) of people aged 60 years or older in Sweden. Demographics, self-rated health, and attitudes were analysed using descriptive statistics. Awareness of and previous active involvement in research were analysed using chi-square tests and Mann Whitney tests. Factors associated with willingness to be actively involved in research were determined by logistic regressions.</p><p>RESULTS: Of the 26% who responded (N = 881), 39% (n = 343) were aware that they could be actively involved in research. Awareness and previous active involvement in research were significantly associated with a higher level of education. Public involvement was believed to enhance research communication and enable valuable contributions related to ageing. The proportion of respondents who were willing to be actively involved in research was significantly higher for respondents with previous experience and a higher level of education.</p><p>CONCLUSIONS: Engaging older people in Sweden in research targeting active involvement in research presents a challenge. The study shows an over-representation of people with higher education, who tend to be more aware, have previous experience, and are more willing to be involved in research with public involvement. This implies a risk that groups with lower education are not represented, and that knowledge co-produced with mostly highly educated groups will lead to a biased picture. Further studies are needed to understand how an increased awareness of research and willingness to participate can be achieved. IRRID: RR2-10.2196/17759.</p>}},
  author       = {{Frögren, Joakim and Schmidt, Steven M and Kylén, Maya and Jonsson, Oskar and Slaug, Björn and Iwarsson, Susanne}},
  issn         = {{1932-6203}},
  keywords     = {{CASE - Centre for Ageing and Supportive Environments}},
  language     = {{eng}},
  number       = {{6}},
  publisher    = {{Public Library of Science (PLoS)}},
  series       = {{PLoS ONE}},
  title        = {{Awareness of and attitudes towards public involvement in research on ageing and health among older people in Sweden}},
  url          = {{http://dx.doi.org/10.1371/journal.pone.0269993}},
  doi          = {{10.1371/journal.pone.0269993}},
  volume       = {{17}},
  year         = {{2022}},
}