Skip to main content

Lund University Publications

LUND UNIVERSITY LIBRARIES

The "Managing Fatigue" programme - experiences shared by MS participants

Gillisdotter, Anna ; Regardt, Malin and Månsson Lexell, Eva LU orcid (2023) In Scandinavian Journal of Occupational Therapy 30(5). p.693-702
Abstract

BACKGROUND: The "Managing Fatigue" (MF) programme can help people living with Multiple sclerosis (MS) manage fatigue in their everyday lives. The programme has been proven feasible with Swedish occupational therapists, but there is a lack of knowledge of how MS participants experience the programme, and what they learned from participating in the programme.

AIM: To describe how Swedish MS participants experience the content and structure of the Swedish MF programme, as well as what they learned from participating in the programme.

MATERIAL AND METHODS: Qualitative interviews were performed with nine MS participants, and data were analysed according to direct content analysis.

RESULTS: Participants experienced programme... (More)

BACKGROUND: The "Managing Fatigue" (MF) programme can help people living with Multiple sclerosis (MS) manage fatigue in their everyday lives. The programme has been proven feasible with Swedish occupational therapists, but there is a lack of knowledge of how MS participants experience the programme, and what they learned from participating in the programme.

AIM: To describe how Swedish MS participants experience the content and structure of the Swedish MF programme, as well as what they learned from participating in the programme.

MATERIAL AND METHODS: Qualitative interviews were performed with nine MS participants, and data were analysed according to direct content analysis.

RESULTS: Participants experienced programme material was relevant, and they valued the structured sessions that utilised different teaching forms. Participants described the group format and the experienced course leader nurtured their learning process. They learned occupational skills to save energy, to re-value daily occupations, and initiated a process of change, but individual support is needed after programme completion.

CONCLUSION AND SIGNIFICANCE: Findings support programme feasibility among MS participants, and show the importance of being able to practice skills to handle fatigue in everyday life. Future studies should consider adding outcome measures focussing on engagement in occupations when evaluating programme effectiveness.

(Less)
Please use this url to cite or link to this publication:
author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Scandinavian Journal of Occupational Therapy
volume
30
issue
5
pages
693 - 702
publisher
Taylor & Francis
external identifiers
  • pmid:33861175
  • scopus:85104779052
ISSN
1651-2014
DOI
10.1080/11038128.2021.1905057
language
English
LU publication?
yes
id
88b73fc9-bd8d-4021-99d8-33ff98b5e129
date added to LUP
2021-04-29 11:37:45
date last changed
2024-06-15 10:41:51
@article{88b73fc9-bd8d-4021-99d8-33ff98b5e129,
  abstract     = {{<p>BACKGROUND: The "Managing Fatigue" (MF) programme can help people living with Multiple sclerosis (MS) manage fatigue in their everyday lives. The programme has been proven feasible with Swedish occupational therapists, but there is a lack of knowledge of how MS participants experience the programme, and what they learned from participating in the programme.</p><p>AIM: To describe how Swedish MS participants experience the content and structure of the Swedish MF programme, as well as what they learned from participating in the programme.</p><p>MATERIAL AND METHODS: Qualitative interviews were performed with nine MS participants, and data were analysed according to direct content analysis.</p><p>RESULTS: Participants experienced programme material was relevant, and they valued the structured sessions that utilised different teaching forms. Participants described the group format and the experienced course leader nurtured their learning process. They learned occupational skills to save energy, to re-value daily occupations, and initiated a process of change, but individual support is needed after programme completion.</p><p>CONCLUSION AND SIGNIFICANCE: Findings support programme feasibility among MS participants, and show the importance of being able to practice skills to handle fatigue in everyday life. Future studies should consider adding outcome measures focussing on engagement in occupations when evaluating programme effectiveness.</p>}},
  author       = {{Gillisdotter, Anna and Regardt, Malin and Månsson Lexell, Eva}},
  issn         = {{1651-2014}},
  language     = {{eng}},
  number       = {{5}},
  pages        = {{693--702}},
  publisher    = {{Taylor & Francis}},
  series       = {{Scandinavian Journal of Occupational Therapy}},
  title        = {{The "Managing Fatigue" programme - experiences shared by MS participants}},
  url          = {{http://dx.doi.org/10.1080/11038128.2021.1905057}},
  doi          = {{10.1080/11038128.2021.1905057}},
  volume       = {{30}},
  year         = {{2023}},
}