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Hoping to reach a safe haven - Swedish families' lived experience when a family member is diagnosed with breast cancer

Holst-Hansson, Annette LU ; Idvall, Ewa; Bolmsjö, Ingrid LU and Wennick, Anne LU (2017) In European journal of oncology nursing : the official journal of European Oncology Nursing Society 31. p.52-58
Abstract

PURPOSE: When a woman is diagnosed with breast cancer, it affects all family members. Therefore, the aim of this study was to elucidate family members lived experience when a family member is diagnosed with breast cancer.

METHOD: The study had a hermeneutic phenomenological design including individual conversational interviews conducted face-to-face with six women with breast cancer and their family members at two different points of time, in order to elucidate families' lived experience, both as individuals and as a unit, from each family member's perspective.

RESULTS: Living as a family in the presence of breast cancer is a challenging endeavour to regain an ordinary, safe life, hoping to reach a safe haven. The families... (More)

PURPOSE: When a woman is diagnosed with breast cancer, it affects all family members. Therefore, the aim of this study was to elucidate family members lived experience when a family member is diagnosed with breast cancer.

METHOD: The study had a hermeneutic phenomenological design including individual conversational interviews conducted face-to-face with six women with breast cancer and their family members at two different points of time, in order to elucidate families' lived experience, both as individuals and as a unit, from each family member's perspective.

RESULTS: Living as a family in the presence of breast cancer is a challenging endeavour to regain an ordinary, safe life, hoping to reach a safe haven. The families felt that life as they knew it had disappeared and they were fumbling in the dark, trying to find support and guidance on their path to ordinary life. The family members were pursuing balance by attempting to keep the family together and maintaining a positive attitude while battling against fear and treatment-related side effects. Finally, the families were struggling with guilt and inadequacy, due to their difficulties in communicating the emotional distress that the illness brought upon them, at the same time as they felt abandoned by the healthcare professionals.

CONCLUSIONS: Families experience an unmet need of information and support, which implies that healthcare professionals may want to acknowledge and include the family already at the time of diagnosis in order to help them endure and cope with the distressing experience and thus increase their wellbeing.

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author
publishing date
type
Contribution to journal
publication status
published
subject
in
European journal of oncology nursing : the official journal of European Oncology Nursing Society
volume
31
pages
7 pages
publisher
Elsevier
external identifiers
  • scopus:85046863346
ISSN
1462-3889
DOI
10.1016/j.ejon.2017.10.003
language
English
LU publication?
no
id
8efc40f4-6928-41d9-b1b9-da6e3c3e1175
date added to LUP
2018-05-28 13:39:33
date last changed
2019-11-13 05:09:05
@article{8efc40f4-6928-41d9-b1b9-da6e3c3e1175,
  abstract     = {<p>PURPOSE: When a woman is diagnosed with breast cancer, it affects all family members. Therefore, the aim of this study was to elucidate family members lived experience when a family member is diagnosed with breast cancer.</p><p>METHOD: The study had a hermeneutic phenomenological design including individual conversational interviews conducted face-to-face with six women with breast cancer and their family members at two different points of time, in order to elucidate families' lived experience, both as individuals and as a unit, from each family member's perspective.</p><p>RESULTS: Living as a family in the presence of breast cancer is a challenging endeavour to regain an ordinary, safe life, hoping to reach a safe haven. The families felt that life as they knew it had disappeared and they were fumbling in the dark, trying to find support and guidance on their path to ordinary life. The family members were pursuing balance by attempting to keep the family together and maintaining a positive attitude while battling against fear and treatment-related side effects. Finally, the families were struggling with guilt and inadequacy, due to their difficulties in communicating the emotional distress that the illness brought upon them, at the same time as they felt abandoned by the healthcare professionals.</p><p>CONCLUSIONS: Families experience an unmet need of information and support, which implies that healthcare professionals may want to acknowledge and include the family already at the time of diagnosis in order to help them endure and cope with the distressing experience and thus increase their wellbeing.</p>},
  author       = {Holst-Hansson, Annette and Idvall, Ewa and Bolmsjö, Ingrid and Wennick, Anne},
  issn         = {1462-3889},
  language     = {eng},
  month        = {12},
  pages        = {52--58},
  publisher    = {Elsevier},
  series       = {European journal of oncology nursing : the official journal of European Oncology Nursing Society},
  title        = {Hoping to reach a safe haven - Swedish families' lived experience when a family member is diagnosed with breast cancer},
  url          = {http://dx.doi.org/10.1016/j.ejon.2017.10.003},
  volume       = {31},
  year         = {2017},
}