Skip to main content

Lund University Publications

LUND UNIVERSITY LIBRARIES

Patient Perspectives on Serious Illness Conversations in Primary Care

Xu, Luyi ; Sommer, Robert K. ; Nyeko, Liza ; Michael, Carol ; Traeger, Lara and Jacobsen, Juliet LU (2022) In Journal of Palliative Medicine 25(6). p.940-944
Abstract

Background: The Serious Illness Care Program has been shown to improve quality and feasibility of value-based end-of-life conversations in primary care. Objectives: To elicit patients' perspectives on serious illness conversations conducted by primary care clinicians. Subjects and Methods: Telephone interviews were conducted with patients at an academic center in the United States, who had a recent serious illness conversation with their primary care clinician. Interviews were audio-recorded and qualitatively analyzed using thematic analysis. Results: A total of eleven patients were enrolled. We identified three major themes: (1) positive emotional experiences are facilitated by established patient-clinician relationships and/or... (More)

Background: The Serious Illness Care Program has been shown to improve quality and feasibility of value-based end-of-life conversations in primary care. Objectives: To elicit patients' perspectives on serious illness conversations conducted by primary care clinicians. Subjects and Methods: Telephone interviews were conducted with patients at an academic center in the United States, who had a recent serious illness conversation with their primary care clinician. Interviews were audio-recorded and qualitatively analyzed using thematic analysis. Results: A total of eleven patients were enrolled. We identified three major themes: (1) positive emotional experiences are facilitated by established patient-clinician relationships and/or clinicians' skills in navigating emotional challenges, (2) patients appreciate a personalized conversation, and (3) clinicians should orchestrate the experience of the conversation, from preparation through follow-up. Conclusion: Patients appreciate having serious illness conversations in the primary care setting. Future efforts can be focused on improving clinicians' skills in navigating emotional challenges during conversations and implementing system changes to optimize orchestration.

(Less)
Please use this url to cite or link to this publication:
author
; ; ; ; and
publishing date
type
Contribution to journal
publication status
published
keywords
advance care planning, communication, end of life, primary care, serious illness conversation
in
Journal of Palliative Medicine
volume
25
issue
6
pages
940 - 944
publisher
Mary Ann Liebert, Inc.
external identifiers
  • pmid:35196134
  • scopus:85131267951
ISSN
1096-6218
DOI
10.1089/jpm.2021.0420
language
English
LU publication?
no
additional info
Publisher Copyright: © Copyright 2022, Mary Ann Liebert, Inc., publishers 2022.
id
95d9e468-f0e5-4258-8a7e-07f6b0bc8cd8
date added to LUP
2023-04-18 11:15:02
date last changed
2024-06-16 04:34:04
@article{95d9e468-f0e5-4258-8a7e-07f6b0bc8cd8,
  abstract     = {{<p>Background: The Serious Illness Care Program has been shown to improve quality and feasibility of value-based end-of-life conversations in primary care. Objectives: To elicit patients' perspectives on serious illness conversations conducted by primary care clinicians. Subjects and Methods: Telephone interviews were conducted with patients at an academic center in the United States, who had a recent serious illness conversation with their primary care clinician. Interviews were audio-recorded and qualitatively analyzed using thematic analysis. Results: A total of eleven patients were enrolled. We identified three major themes: (1) positive emotional experiences are facilitated by established patient-clinician relationships and/or clinicians' skills in navigating emotional challenges, (2) patients appreciate a personalized conversation, and (3) clinicians should orchestrate the experience of the conversation, from preparation through follow-up. Conclusion: Patients appreciate having serious illness conversations in the primary care setting. Future efforts can be focused on improving clinicians' skills in navigating emotional challenges during conversations and implementing system changes to optimize orchestration.</p>}},
  author       = {{Xu, Luyi and Sommer, Robert K. and Nyeko, Liza and Michael, Carol and Traeger, Lara and Jacobsen, Juliet}},
  issn         = {{1096-6218}},
  keywords     = {{advance care planning; communication; end of life; primary care; serious illness conversation}},
  language     = {{eng}},
  month        = {{06}},
  number       = {{6}},
  pages        = {{940--944}},
  publisher    = {{Mary Ann Liebert, Inc.}},
  series       = {{Journal of Palliative Medicine}},
  title        = {{Patient Perspectives on Serious Illness Conversations in Primary Care}},
  url          = {{http://dx.doi.org/10.1089/jpm.2021.0420}},
  doi          = {{10.1089/jpm.2021.0420}},
  volume       = {{25}},
  year         = {{2022}},
}