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The SWEDEHEART secondary prevention and cardiac rehabilitation registry (SWEDEHEART CR registry)

Bäck, Maria ; Leosdottir, Margret LU ; Hagström, Emil ; Norhammar, Anna ; Hag, Emma ; Jernberg, Tomas ; Wallentin, Lars LU ; Lindahl, Bertil and Hambraeus, Kristina (2021) In European Heart Journal - Quality of Care and Clinical Outcomes 7(5). p.431-437
Abstract

Aims: The quality registry SWEDEHEART covers data across the patient pathway after an acute myocardial infarction (MI), from hospital care to secondary prevention. Although cardiac rehabilitation (CR) is strongly recommended after an MI, there is still heterogeneity regarding standards, uptake, and adherence rates. The aim of the SWEDEHEART-CR registry is to provide continuous information on secondary prevention and CR performance to support the audit and development of evidence-based practice. To facilitate quality improvement and research initiatives, a description of the characteristics and development of the SWEDEHEART-CR registry is needed. Methods and results: The SWEDEHEART-CR registry starts with data obtained during hospital... (More)

Aims: The quality registry SWEDEHEART covers data across the patient pathway after an acute myocardial infarction (MI), from hospital care to secondary prevention. Although cardiac rehabilitation (CR) is strongly recommended after an MI, there is still heterogeneity regarding standards, uptake, and adherence rates. The aim of the SWEDEHEART-CR registry is to provide continuous information on secondary prevention and CR performance to support the audit and development of evidence-based practice. To facilitate quality improvement and research initiatives, a description of the characteristics and development of the SWEDEHEART-CR registry is needed. Methods and results: The SWEDEHEART-CR registry starts with data obtained during hospital care and then collects data at out-patient visits 2 months and 1-year after discharge, and at start and end of an exercise-based CR programme. The registry data covers comorbidities, biochemistry, blood pressure, anthropometric variables, medication, psychosocial- and lifestyle variables, readmissions, patient-reported outcome measures, attendance in CR-related programmes, and physical fitness variables. Over 100 000 patients with MI have been included in the SWEDEHEART-CR registry since its start in 2005. From initially covering 35 centres (47%) and 2200 patients annually (27%), SWEDEHEART-CR has developed to a nation-wide registry with 75 centres (100%) and 8800 patients annually (80%) in 2020. Conclusion: The SWEDEHEART-CR registry includes a high proportion of the national MI population entering a CR programme and is a powerful tool for quality audit, improvement, and research. The registry provides insights into the characteristics, treatment, and outcomes of evidence-based secondary preventive practice, ultimately leading to better cardiovascular health.

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author
; ; ; ; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Cardiac rehabilitation, Cohort, Coronary artery disease, Myocardial infarction, Quality registry, Secondary prevention
in
European Heart Journal - Quality of Care and Clinical Outcomes
volume
7
issue
5
pages
7 pages
publisher
Oxford University Press
external identifiers
  • scopus:85116463893
  • pmid:34097023
ISSN
2058-5225
DOI
10.1093/ehjqcco/qcab039
language
English
LU publication?
yes
additional info
Publisher Copyright: © 2021 Published on behalf of the European Society of Cardiology.
id
9798857b-33d2-4ea5-9fd2-82a6f7a82bb2
date added to LUP
2021-10-22 10:33:00
date last changed
2022-09-17 18:44:32
@article{9798857b-33d2-4ea5-9fd2-82a6f7a82bb2,
  abstract     = {{<p>Aims: The quality registry SWEDEHEART covers data across the patient pathway after an acute myocardial infarction (MI), from hospital care to secondary prevention. Although cardiac rehabilitation (CR) is strongly recommended after an MI, there is still heterogeneity regarding standards, uptake, and adherence rates. The aim of the SWEDEHEART-CR registry is to provide continuous information on secondary prevention and CR performance to support the audit and development of evidence-based practice. To facilitate quality improvement and research initiatives, a description of the characteristics and development of the SWEDEHEART-CR registry is needed. Methods and results: The SWEDEHEART-CR registry starts with data obtained during hospital care and then collects data at out-patient visits 2 months and 1-year after discharge, and at start and end of an exercise-based CR programme. The registry data covers comorbidities, biochemistry, blood pressure, anthropometric variables, medication, psychosocial- and lifestyle variables, readmissions, patient-reported outcome measures, attendance in CR-related programmes, and physical fitness variables. Over 100 000 patients with MI have been included in the SWEDEHEART-CR registry since its start in 2005. From initially covering 35 centres (47%) and 2200 patients annually (27%), SWEDEHEART-CR has developed to a nation-wide registry with 75 centres (100%) and 8800 patients annually (80%) in 2020. Conclusion: The SWEDEHEART-CR registry includes a high proportion of the national MI population entering a CR programme and is a powerful tool for quality audit, improvement, and research. The registry provides insights into the characteristics, treatment, and outcomes of evidence-based secondary preventive practice, ultimately leading to better cardiovascular health.</p>}},
  author       = {{Bäck, Maria and Leosdottir, Margret and Hagström, Emil and Norhammar, Anna and Hag, Emma and Jernberg, Tomas and Wallentin, Lars and Lindahl, Bertil and Hambraeus, Kristina}},
  issn         = {{2058-5225}},
  keywords     = {{Cardiac rehabilitation; Cohort; Coronary artery disease; Myocardial infarction; Quality registry; Secondary prevention}},
  language     = {{eng}},
  month        = {{11}},
  number       = {{5}},
  pages        = {{431--437}},
  publisher    = {{Oxford University Press}},
  series       = {{European Heart Journal - Quality of Care and Clinical Outcomes}},
  title        = {{The SWEDEHEART secondary prevention and cardiac rehabilitation registry (SWEDEHEART CR registry)}},
  url          = {{http://dx.doi.org/10.1093/ehjqcco/qcab039}},
  doi          = {{10.1093/ehjqcco/qcab039}},
  volume       = {{7}},
  year         = {{2021}},
}