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Patients with rectal cancer are satisfied with in-hospital communication despite insufficient information regarding treatment alternatives and potential side-effects

Walming, Sofie LU ; Asplund, Dan ; Block, Mattias ; Bock, David ; Gonzalez, Elisabeth ; Rosander, Carina ; Rosenberg, Jacob and Angenete, Eva (2018) In Acta Oncologica 57(10). p.1311-1317
Abstract

Aim: Patients with rectal cancer may undergo treatment such as surgery and (chemo)radiotherapy. Before treatment, patients are informed of different options and possible side-effects. The aim of the study was to evaluate the patients’ experience of communication with healthcare personnel at time of diagnosis and after one year. Method: A total of 1085 patients from Denmark and Sweden were included. They answered a detailed questionnaire at diagnosis and at the one year follow-up. Clinical data were retrieved from national quality registries. Results: Response rates were 87% at baseline and 74% at one year. Overall the patients were very satisfied with the communication with healthcare personnel. However, some patients reported... (More)

Aim: Patients with rectal cancer may undergo treatment such as surgery and (chemo)radiotherapy. Before treatment, patients are informed of different options and possible side-effects. The aim of the study was to evaluate the patients’ experience of communication with healthcare personnel at time of diagnosis and after one year. Method: A total of 1085 patients from Denmark and Sweden were included. They answered a detailed questionnaire at diagnosis and at the one year follow-up. Clinical data were retrieved from national quality registries. Results: Response rates were 87% at baseline and 74% at one year. Overall the patients were very satisfied with the communication with healthcare personnel. However, some patients reported insufficient information regarding treatment options and possible side-effects. Only 32% (335/1050) and 24% (248/1053), respectively, stated that they were informed about possible sexual and urinary dysfunction before treatment. Conclusions: Even though patients felt that they received insufficient information regarding side-effects on sexual and urinary function, they were generally satisfied with the communication with the healthcare personnel. Since overall satisfaction with the level of information was very high, it is unlikely that further information to patients with rectal cancer in the surgical and oncological settings will improve satisfaction with communication.

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author
; ; ; ; ; ; and
publishing date
type
Contribution to journal
publication status
published
subject
in
Acta Oncologica
volume
57
issue
10
pages
1311 - 1317
publisher
Taylor & Francis
external identifiers
  • scopus:85049608790
  • pmid:29989469
ISSN
0284-186X
DOI
10.1080/0284186X.2018.1484158
language
English
LU publication?
no
additional info
Publisher Copyright: © 2018, © 2018 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
id
9a48a6ba-4899-49ea-b78b-fd73f832e954
date added to LUP
2024-06-19 12:24:36
date last changed
2024-06-19 16:00:09
@article{9a48a6ba-4899-49ea-b78b-fd73f832e954,
  abstract     = {{<p>Aim: Patients with rectal cancer may undergo treatment such as surgery and (chemo)radiotherapy. Before treatment, patients are informed of different options and possible side-effects. The aim of the study was to evaluate the patients’ experience of communication with healthcare personnel at time of diagnosis and after one year. Method: A total of 1085 patients from Denmark and Sweden were included. They answered a detailed questionnaire at diagnosis and at the one year follow-up. Clinical data were retrieved from national quality registries. Results: Response rates were 87% at baseline and 74% at one year. Overall the patients were very satisfied with the communication with healthcare personnel. However, some patients reported insufficient information regarding treatment options and possible side-effects. Only 32% (335/1050) and 24% (248/1053), respectively, stated that they were informed about possible sexual and urinary dysfunction before treatment. Conclusions: Even though patients felt that they received insufficient information regarding side-effects on sexual and urinary function, they were generally satisfied with the communication with the healthcare personnel. Since overall satisfaction with the level of information was very high, it is unlikely that further information to patients with rectal cancer in the surgical and oncological settings will improve satisfaction with communication.</p>}},
  author       = {{Walming, Sofie and Asplund, Dan and Block, Mattias and Bock, David and Gonzalez, Elisabeth and Rosander, Carina and Rosenberg, Jacob and Angenete, Eva}},
  issn         = {{0284-186X}},
  language     = {{eng}},
  month        = {{10}},
  number       = {{10}},
  pages        = {{1311--1317}},
  publisher    = {{Taylor & Francis}},
  series       = {{Acta Oncologica}},
  title        = {{Patients with rectal cancer are satisfied with in-hospital communication despite insufficient information regarding treatment alternatives and potential side-effects}},
  url          = {{http://dx.doi.org/10.1080/0284186X.2018.1484158}},
  doi          = {{10.1080/0284186X.2018.1484158}},
  volume       = {{57}},
  year         = {{2018}},
}