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Self-management from the perspective of people with stroke – An interview study

Klockar, Erika ; Kylén, Maya LU orcid ; Gustavsson, Catharina ; Finch, Tracy ; Jones, Fiona and Elf, Marie (2023) In Patient Education and Counseling 112.
Abstract
Objective
Self-management support can improve quality of life, mood, self-efficacy, and physical function following a stroke. Knowledge of how people with stroke understand and experience self-management in different contexts is crucial to developing effective self-management support. This study explored how people with stroke understand and practice self-management during the post-acute phase.
Method
A descriptive study using qualitative content analysis to explore data from semistructured interviews
Results
Eighteen participants were interviewed. Most participants interpreted self-management as ‘taking care of their business’ and ‘being independent”. However, they encountered difficulties performing daily activities,... (More)
Objective
Self-management support can improve quality of life, mood, self-efficacy, and physical function following a stroke. Knowledge of how people with stroke understand and experience self-management in different contexts is crucial to developing effective self-management support. This study explored how people with stroke understand and practice self-management during the post-acute phase.
Method
A descriptive study using qualitative content analysis to explore data from semistructured interviews
Results
Eighteen participants were interviewed. Most participants interpreted self-management as ‘taking care of their business’ and ‘being independent”. However, they encountered difficulties performing daily activities, for which they felt unprepared. Although interest in implementing self-management support increases, participants did not report receiving specific advice from healthcare professionals.
Conclusion
People continue to feel unprepared to manage everyday activities after hospital discharge and must largely work things out for themselves. There is an overlooked opportunity to start the process of self-management support earlier in the stroke pathway, with healthcare professionals and people with stroke combining their skills, ideas and expertise. This would enable confidence to self-management to flourish rather than decrease during the transition from hospital to home.
Practical implications
Individual tailored self-management support could help people with stroke more successfully manage their daily lives post-stroke. (Less)
Please use this url to cite or link to this publication:
author
; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Patient Education and Counseling
volume
112
article number
107740
publisher
Elsevier
external identifiers
  • pmid:37059027
  • scopus:85152146746
ISSN
0738-3991
DOI
10.1016/j.pec.2023.107740
language
English
LU publication?
yes
id
9c722087-1ff4-49f3-9684-2c133447f060
date added to LUP
2023-05-25 08:42:45
date last changed
2023-05-26 04:04:49
@article{9c722087-1ff4-49f3-9684-2c133447f060,
  abstract     = {{Objective<br/>Self-management support can improve quality of life, mood, self-efficacy, and physical function following a stroke. Knowledge of how people with stroke understand and experience self-management in different contexts is crucial to developing effective self-management support. This study explored how people with stroke understand and practice self-management during the post-acute phase.<br/>Method<br/>A descriptive study using qualitative content analysis to explore data from semistructured interviews<br/>Results<br/>Eighteen participants were interviewed. Most participants interpreted self-management as ‘taking care of their business’ and ‘being independent”. However, they encountered difficulties performing daily activities, for which they felt unprepared. Although interest in implementing self-management support increases, participants did not report receiving specific advice from healthcare professionals.<br/>Conclusion<br/>People continue to feel unprepared to manage everyday activities after hospital discharge and must largely work things out for themselves. There is an overlooked opportunity to start the process of self-management support earlier in the stroke pathway, with healthcare professionals and people with stroke combining their skills, ideas and expertise. This would enable confidence to self-management to flourish rather than decrease during the transition from hospital to home.<br/>Practical implications<br/>Individual tailored self-management support could help people with stroke more successfully manage their daily lives post-stroke.}},
  author       = {{Klockar, Erika and Kylén, Maya and Gustavsson, Catharina and Finch, Tracy and Jones, Fiona and Elf, Marie}},
  issn         = {{0738-3991}},
  language     = {{eng}},
  month        = {{07}},
  publisher    = {{Elsevier}},
  series       = {{Patient Education and Counseling}},
  title        = {{Self-management from the perspective of people with stroke – An interview study}},
  url          = {{http://dx.doi.org/10.1016/j.pec.2023.107740}},
  doi          = {{10.1016/j.pec.2023.107740}},
  volume       = {{112}},
  year         = {{2023}},
}