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A Dialogue about Vaccine Side Effects : Understanding Difficult Pandemic Experiences

Hammarlin, Mia Marie LU orcid and Dellson, Pia LU (2025) In Journal of Medical Humanities 46. p.91-114
Abstract

This paper investigates the relationship between the experiences of mass vaccinations against two pandemic viruses: the swine flu in 2009–2010 and COVID-19 in the early 2020s. We show how distressing memories from the swine flu vaccination, which led to the rare but severe adverse effect of narcolepsy in approximately 500 children in Sweden, were triggered by the COVID-19 pandemic. The narcolepsy illness story has rarely been told in academic contexts; therefore, we will provide space for this story. It is presented through a dialogue with the aim of shedding light on the interrelationship between pandemics—and between mass vaccinations—to investigate what could be termed cultural wounds that influence societies because they are... (More)

This paper investigates the relationship between the experiences of mass vaccinations against two pandemic viruses: the swine flu in 2009–2010 and COVID-19 in the early 2020s. We show how distressing memories from the swine flu vaccination, which led to the rare but severe adverse effect of narcolepsy in approximately 500 children in Sweden, were triggered by the COVID-19 pandemic. The narcolepsy illness story has rarely been told in academic contexts; therefore, we will provide space for this story. It is presented through a dialogue with the aim of shedding light on the interrelationship between pandemics—and between mass vaccinations—to investigate what could be termed cultural wounds that influence societies because they are characterized by the difficulty of talking about them. The paper explores the multiple shocks of illness in life and what can be learned from them by sharing them.

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Please use this url to cite or link to this publication:
author
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organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
COVID-19, dialogue, narcolepsy, side effects, swine flu, vaccine hesitancy
in
Journal of Medical Humanities
volume
46
pages
91 - 114
publisher
Springer
external identifiers
  • pmid:38951319
  • scopus:85197242279
ISSN
1041-3545
DOI
10.1007/s10912-024-09850-4
language
English
LU publication?
yes
id
9eb7ae04-6668-40d1-9953-993ec1d45517
date added to LUP
2024-12-12 11:57:18
date last changed
2025-07-11 05:06:11
@article{9eb7ae04-6668-40d1-9953-993ec1d45517,
  abstract     = {{<p>This paper investigates the relationship between the experiences of mass vaccinations against two pandemic viruses: the swine flu in 2009–2010 and COVID-19 in the early 2020s. We show how distressing memories from the swine flu vaccination, which led to the rare but severe adverse effect of narcolepsy in approximately 500 children in Sweden, were triggered by the COVID-19 pandemic. The narcolepsy illness story has rarely been told in academic contexts; therefore, we will provide space for this story. It is presented through a dialogue with the aim of shedding light on the interrelationship between pandemics—and between mass vaccinations—to investigate what could be termed cultural wounds that influence societies because they are characterized by the difficulty of talking about them. The paper explores the multiple shocks of illness in life and what can be learned from them by sharing them.</p>}},
  author       = {{Hammarlin, Mia Marie and Dellson, Pia}},
  issn         = {{1041-3545}},
  keywords     = {{COVID-19; dialogue; narcolepsy; side effects; swine flu; vaccine hesitancy}},
  language     = {{eng}},
  pages        = {{91--114}},
  publisher    = {{Springer}},
  series       = {{Journal of Medical Humanities}},
  title        = {{A Dialogue about Vaccine Side Effects : Understanding Difficult Pandemic Experiences}},
  url          = {{http://dx.doi.org/10.1007/s10912-024-09850-4}},
  doi          = {{10.1007/s10912-024-09850-4}},
  volume       = {{46}},
  year         = {{2025}},
}