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Navigating between rules and reality : a qualitative study of HIV positive MSM’s experiences of communication at HIV clinics in Sweden about the rules of conduct and infectiousness

Herder, Tobias LU and Agardh, Anette LU (2019) In AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV 31(10). p.1304-1310
Abstract

The rules of conduct given to people living with HIV in Sweden in accordance with the Swedish Communicable Diseases Act stipulate disclosure obligation to sexual partners and mandatory condom use. Since 2013, treating physicians have the possibility to exempt patients from this disclosure obligation when no considerable risk of transmission is present. This study explored experiences of communication with clinical staff at HIV clinics regarding rules of conduct and infectiousness among men who have sex with men (MSM) living with HIV in Sweden. In-depth interviews were carried out with 10 MSM living with HIV in Sweden. Study participants all reported unmeasurable viral loads. Data were analyzed using qualitative content analysis. Five... (More)

The rules of conduct given to people living with HIV in Sweden in accordance with the Swedish Communicable Diseases Act stipulate disclosure obligation to sexual partners and mandatory condom use. Since 2013, treating physicians have the possibility to exempt patients from this disclosure obligation when no considerable risk of transmission is present. This study explored experiences of communication with clinical staff at HIV clinics regarding rules of conduct and infectiousness among men who have sex with men (MSM) living with HIV in Sweden. In-depth interviews were carried out with 10 MSM living with HIV in Sweden. Study participants all reported unmeasurable viral loads. Data were analyzed using qualitative content analysis. Five categories and one theme, “Navigating between rules and reality”, were identified. We found that MSM living with HIV had good relationships with clinical staff at HIV clinics. Inconsistencies emerged regarding how they experienced receiving information about the rules of conduct and infectiousness. The findings indicate that lack of sound routines regarding how information and rules of conduct are communicated negatively affects MSM living with HIV and poses potential risks for the individual. The participants’ expressed trust in staff at HIV clinics can provide a good basis for improved communication.

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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
communication, disclosure, HIV, law, MSM, qualitative content analysis
in
AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV
volume
31
issue
10
pages
1304 - 1310
publisher
Taylor & Francis
external identifiers
  • scopus:85060058281
ISSN
0954-0121
DOI
10.1080/09540121.2019.1566590
language
English
LU publication?
yes
id
a0d6bf96-4d4e-47c7-a34d-cde5fe12ac27
date added to LUP
2019-01-29 14:06:36
date last changed
2019-08-23 16:24:27
@article{a0d6bf96-4d4e-47c7-a34d-cde5fe12ac27,
  abstract     = {<p>The rules of conduct given to people living with HIV in Sweden in accordance with the Swedish Communicable Diseases Act stipulate disclosure obligation to sexual partners and mandatory condom use. Since 2013, treating physicians have the possibility to exempt patients from this disclosure obligation when no considerable risk of transmission is present. This study explored experiences of communication with clinical staff at HIV clinics regarding rules of conduct and infectiousness among men who have sex with men (MSM) living with HIV in Sweden. In-depth interviews were carried out with 10 MSM living with HIV in Sweden. Study participants all reported unmeasurable viral loads. Data were analyzed using qualitative content analysis. Five categories and one theme, “Navigating between rules and reality”, were identified. We found that MSM living with HIV had good relationships with clinical staff at HIV clinics. Inconsistencies emerged regarding how they experienced receiving information about the rules of conduct and infectiousness. The findings indicate that lack of sound routines regarding how information and rules of conduct are communicated negatively affects MSM living with HIV and poses potential risks for the individual. The participants’ expressed trust in staff at HIV clinics can provide a good basis for improved communication.</p>},
  author       = {Herder, Tobias and Agardh, Anette},
  issn         = {0954-0121},
  keyword      = {communication,disclosure,HIV,law,MSM,qualitative content analysis},
  language     = {eng},
  month        = {01},
  number       = {10},
  pages        = {1304--1310},
  publisher    = {Taylor & Francis},
  series       = {AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV},
  title        = {Navigating between rules and reality : a qualitative study of HIV positive MSM’s experiences of communication at HIV clinics in Sweden about the rules of conduct and infectiousness},
  url          = {http://dx.doi.org/10.1080/09540121.2019.1566590},
  volume       = {31},
  year         = {2019},
}