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Building a bridge between patients and transplant healthcare professionals – a descriptive study

Jansen, Nichon ; Maple, Hannah ; Forsberg, Anna LU ; Loud, Fiona ; McColaugh, Lone ; Murphy, Mark ; Fuertes, Juan ; Gallego, Daniel and Paredes, David (2021) In Transplant International 34(11). p.2098-2105
Abstract

This article describes a pathway for collaboration between transplant healthcare professionals and organ recipients. Under the umbrella of the European Society for Organ Transplantation (ESOT) a joint initiative started from three Sections and Committees of ESOT: EDTCO (European Donation and Transplant Coordination Organisation), ETHAP (European Transplant Allied Healthcare Professionals) and ELPAT (Ethical, Legal and Psycho-social Aspects of Transplantation). The formal ‘kick-off’ of the Advisory Board Meeting of the European Transplant Patient Organisation (ETPO) was during the ESOT congress in 2019. The aim was to produce a series of statements to serve as a path to dialogue between patients and transplant professionals and to define... (More)

This article describes a pathway for collaboration between transplant healthcare professionals and organ recipients. Under the umbrella of the European Society for Organ Transplantation (ESOT) a joint initiative started from three Sections and Committees of ESOT: EDTCO (European Donation and Transplant Coordination Organisation), ETHAP (European Transplant Allied Healthcare Professionals) and ELPAT (Ethical, Legal and Psycho-social Aspects of Transplantation). The formal ‘kick-off’ of the Advisory Board Meeting of the European Transplant Patient Organisation (ETPO) was during the ESOT congress in 2019. The aim was to produce a series of statements to serve as a path to dialogue between patients and transplant professionals and to define the next steps towards giving a voice to the patient network. To include the patients’ perspectives, two surveys have been performed. The results identified the unmet needs and lead to a proposal for future plans. Educational activities have since started leading to a patient learning workstream. All initiatives taken have one purpose: to include patients, give them a voice and build a foundation for collaboration between patients and transplant professionals. ESOT has created a platform for mutual understanding, learning and a collaborative partnership between ETPO and European donation and transplant professionals.

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author collaboration
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
European Transplant Patient Organisation, organ recipients, patient inclusion, transplant healthcare professionals
in
Transplant International
volume
34
issue
11
pages
2098 - 2105
publisher
Springer
external identifiers
  • scopus:85116802270
  • pmid:34525242
ISSN
0934-0874
DOI
10.1111/tri.14111
language
English
LU publication?
yes
additional info
Publisher Copyright: © 2021 Steunstichting ESOT. Published by John Wiley & Sons Ltd
id
a9ca03fe-003d-4540-aaca-c8a6ed041c75
date added to LUP
2021-11-18 09:50:11
date last changed
2025-01-13 17:51:35
@article{a9ca03fe-003d-4540-aaca-c8a6ed041c75,
  abstract     = {{<p>This article describes a pathway for collaboration between transplant healthcare professionals and organ recipients. Under the umbrella of the European Society for Organ Transplantation (ESOT) a joint initiative started from three Sections and Committees of ESOT: EDTCO (European Donation and Transplant Coordination Organisation), ETHAP (European Transplant Allied Healthcare Professionals) and ELPAT (Ethical, Legal and Psycho-social Aspects of Transplantation). The formal ‘kick-off’ of the Advisory Board Meeting of the European Transplant Patient Organisation (ETPO) was during the ESOT congress in 2019. The aim was to produce a series of statements to serve as a path to dialogue between patients and transplant professionals and to define the next steps towards giving a voice to the patient network. To include the patients’ perspectives, two surveys have been performed. The results identified the unmet needs and lead to a proposal for future plans. Educational activities have since started leading to a patient learning workstream. All initiatives taken have one purpose: to include patients, give them a voice and build a foundation for collaboration between patients and transplant professionals. ESOT has created a platform for mutual understanding, learning and a collaborative partnership between ETPO and European donation and transplant professionals.</p>}},
  author       = {{Jansen, Nichon and Maple, Hannah and Forsberg, Anna and Loud, Fiona and McColaugh, Lone and Murphy, Mark and Fuertes, Juan and Gallego, Daniel and Paredes, David}},
  issn         = {{0934-0874}},
  keywords     = {{European Transplant Patient Organisation; organ recipients; patient inclusion; transplant healthcare professionals}},
  language     = {{eng}},
  number       = {{11}},
  pages        = {{2098--2105}},
  publisher    = {{Springer}},
  series       = {{Transplant International}},
  title        = {{Building a bridge between patients and transplant healthcare professionals – a descriptive study}},
  url          = {{http://dx.doi.org/10.1111/tri.14111}},
  doi          = {{10.1111/tri.14111}},
  volume       = {{34}},
  year         = {{2021}},
}