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Feeling controlled or being in control? Apps for self-management among older people with neurological disability

Winberg, Cecilia LU ; Kylberg, Marianne LU ; Pettersson, Cecilia LU ; Harnett, Tove LU ; Hedvall, Per-Olof LU ; Mattsson, Titti LU and Månsson Lexell, Eva LU (2019) In Disability and Rehabilitation
Abstract
Purpose: The aim of this paper was to describe how people living with a neurological disability such as multiple sclerosis, Parkinson’s disease and stroke reason regarding using apps to facilitate self-management in everyday life.

Material and methods: A qualitative research approach with a focus group methodology was used. The sample comprised 16 participants, 11 men and 5 women, with an average age of 64 years (ranging from 51–80 years). Six participants were diagnosed with multiple sclerosis, six with Parkinson’s disease and four with stroke. Data were analyzed using thematic analysis, which is a method for identifying, analyzing and reporting patterns.

Results: The results formed two themes. The first theme “using... (More)
Purpose: The aim of this paper was to describe how people living with a neurological disability such as multiple sclerosis, Parkinson’s disease and stroke reason regarding using apps to facilitate self-management in everyday life.

Material and methods: A qualitative research approach with a focus group methodology was used. The sample comprised 16 participants, 11 men and 5 women, with an average age of 64 years (ranging from 51–80 years). Six participants were diagnosed with multiple sclerosis, six with Parkinson’s disease and four with stroke. Data were analyzed using thematic analysis, which is a method for identifying, analyzing and reporting patterns.

Results: The results formed two themes. The first theme “using apps to have control of my health” comprises two subthemes; “monitor and take responsibility for a healthy lifestyle” and “compensate to facilitate everyday life”. The second theme “using the app as a tool and means for communication” also comprised two subthemes; “dare to trust the app” and “feeling safe when sharing information with health care professionals”.

Conclusions: The use of apps put increased responsibility on the person and had the possibility to make them more involved in their own care. The use of an app can facilitate a healthy lifestyle and help to monitor disease-specific symptoms. In order to be able to use apps for communication with the health care sector legislation and safety issues need to be considered.

Implications for rehabilitation

Apps can be used for self-management if they are safe and can be trusted.

People with neurological disabilities want to be involved in their healthcare and needs to be addressed by health care professionals.

The use of apps grasp over a wide variety of areas this is something that may be considered in health care and something that can be addressed by interdisciplinary approaches.

Ordinary health-oriented apps and disease-specific apps were used differently and for different purposes. (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
epub
subject
keywords
Elder law, Äldrerätt
in
Disability and Rehabilitation
pages
6 pages
publisher
Taylor & Francis
external identifiers
  • scopus:85074986675
  • pmid:31711351
ISSN
0963-8288
DOI
10.1080/17483107.2019.1685017
language
English
LU publication?
yes
id
aa5a3ff9-4f3b-4e53-8cc3-78391a3e8a0e
date added to LUP
2019-11-13 11:02:52
date last changed
2019-12-04 07:24:14
@article{aa5a3ff9-4f3b-4e53-8cc3-78391a3e8a0e,
  abstract     = {Purpose: The aim of this paper was to describe how people living with a neurological disability such as multiple sclerosis, Parkinson’s disease and stroke reason regarding using apps to facilitate self-management in everyday life.<br/><br/>Material and methods: A qualitative research approach with a focus group methodology was used. The sample comprised 16 participants, 11 men and 5 women, with an average age of 64 years (ranging from 51–80 years). Six participants were diagnosed with multiple sclerosis, six with Parkinson’s disease and four with stroke. Data were analyzed using thematic analysis, which is a method for identifying, analyzing and reporting patterns.<br/><br/>Results: The results formed two themes. The first theme “using apps to have control of my health” comprises two subthemes; “monitor and take responsibility for a healthy lifestyle” and “compensate to facilitate everyday life”. The second theme “using the app as a tool and means for communication” also comprised two subthemes; “dare to trust the app” and “feeling safe when sharing information with health care professionals”.<br/><br/>Conclusions: The use of apps put increased responsibility on the person and had the possibility to make them more involved in their own care. The use of an app can facilitate a healthy lifestyle and help to monitor disease-specific symptoms. In order to be able to use apps for communication with the health care sector legislation and safety issues need to be considered.<br/><br/>    Implications for rehabilitation<br/><br/>    Apps can be used for self-management if they are safe and can be trusted.<br/><br/>    People with neurological disabilities want to be involved in their healthcare and needs to be addressed by health care professionals.<br/><br/>    The use of apps grasp over a wide variety of areas this is something that may be considered in health care and something that can be addressed by interdisciplinary approaches.<br/><br/>    Ordinary health-oriented apps and disease-specific apps were used differently and for different purposes.},
  author       = {Winberg, Cecilia and Kylberg, Marianne and Pettersson, Cecilia and Harnett, Tove and Hedvall, Per-Olof and Mattsson, Titti and Månsson Lexell, Eva},
  issn         = {0963-8288},
  language     = {eng},
  month        = {11},
  publisher    = {Taylor & Francis},
  series       = {Disability and Rehabilitation},
  title        = {Feeling controlled or being in control? Apps for self-management among older people with neurological disability},
  url          = {https://lup.lub.lu.se/search/ws/files/72654534/Feeling_controlled_or_being_in_control_Apps_for_self_management_among_older_people_with_neurological_disability.pdf},
  doi          = {10.1080/17483107.2019.1685017},
  year         = {2019},
}