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“Black race”, “Schwarze Hautfarbe”, “Origine africaine”, or “Etnia nera”? The absent presence of race in European pharmaceutical regulation

Mulinari, Shai LU and Bredström, Anna (2022) In BioSocieties
Abstract
Current scholarship on race in Europe has described race as an “absent presence”. However, little is known about the dynamics of the absentness and presentness of race, including how various social processes operating at distinct levels (e.g., supranational and national) influence the uses of race and ethnicity concepts. We begin addressing this gap by examining racialised pharmaceutical regulation in the EU and its operationalisation in European countries. We analysed patterns of English-language uses of race and ethnicity terms at the EU level for all new drugs approved in 2014–2018, and systematically compared official translations into 24 languages . We found that “race” was promoted in plain sight and often retained when translated,... (More)
Current scholarship on race in Europe has described race as an “absent presence”. However, little is known about the dynamics of the absentness and presentness of race, including how various social processes operating at distinct levels (e.g., supranational and national) influence the uses of race and ethnicity concepts. We begin addressing this gap by examining racialised pharmaceutical regulation in the EU and its operationalisation in European countries. We analysed patterns of English-language uses of race and ethnicity terms at the EU level for all new drugs approved in 2014–2018, and systematically compared official translations into 24 languages . We found that “race” was promoted in plain sight and often retained when translated, albeit with much inconsistency across languages, creating peculiar patterns of presentness and absentness of race. Finnish, French, Swedish, and German stood out, as “race” was often translated into ethnicity terms, but even in those languages, “race” lingered despite claims that these countries vehemently opposed “race”. Our findings should inform scholarly and political debates about race, ethnicity and medicine in Europe that tend to assume, incorrectly, an anti-racialist consensus. There are also policy implications, because prescribers may interpret regulator-approved information about race and ethnicity differently because of inconsistent translations. (Less)
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author
and
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
BioSocieties
publisher
Palgrave Macmillan
external identifiers
  • scopus:85143896339
ISSN
1745-8552
DOI
10.1057/s41292-022-00291-7
project
A New Biologism? How Medical Research, Policy and Clinical Practice Approach Ethnic Differences in Health
language
English
LU publication?
yes
id
ac9b598e-20ca-4047-92bb-1c9000108935
date added to LUP
2022-10-19 08:54:34
date last changed
2023-04-09 21:30:00
@article{ac9b598e-20ca-4047-92bb-1c9000108935,
  abstract     = {{Current scholarship on race in Europe has described race as an “absent presence”. However, little is known about the dynamics of the absentness and presentness of race, including how various social processes operating at distinct levels (e.g., supranational and national) influence the uses of race and ethnicity concepts. We begin addressing this gap by examining racialised pharmaceutical regulation in the EU and its operationalisation in European countries. We analysed patterns of English-language uses of race and ethnicity terms at the EU level for all new drugs approved in 2014–2018, and systematically compared official translations into 24 languages . We found that “race” was promoted in plain sight and often retained when translated, albeit with much inconsistency across languages, creating peculiar patterns of presentness and absentness of race. Finnish, French, Swedish, and German stood out, as “race” was often translated into ethnicity terms, but even in those languages, “race” lingered despite claims that these countries vehemently opposed “race”. Our findings should inform scholarly and political debates about race, ethnicity and medicine in Europe that tend to assume, incorrectly, an anti-racialist consensus. There are also policy implications, because prescribers may interpret regulator-approved information about race and ethnicity differently because of inconsistent translations.}},
  author       = {{Mulinari, Shai and Bredström, Anna}},
  issn         = {{1745-8552}},
  language     = {{eng}},
  month        = {{12}},
  publisher    = {{Palgrave Macmillan}},
  series       = {{BioSocieties}},
  title        = {{“Black race”, “Schwarze Hautfarbe”, “Origine africaine”, or “Etnia nera”? The absent presence of race in European pharmaceutical regulation}},
  url          = {{https://lup.lub.lu.se/search/files/131444521/s41292_022_00291_7.pdf}},
  doi          = {{10.1057/s41292-022-00291-7}},
  year         = {{2022}},
}