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"Moving between living in the shadow of pain and living a life with the pain in the shadows" - women's experiences of daily life with chronic widespread pain : a qualitative study

Westergården, Malin ; Aili, Katarina and Larsson, Ingrid LU orcid (2021) In International Journal of Qualitative Studies on Health and Well-being 16.
Abstract

Purpose: Long-term pain is a public health problem but few studies have focused on experiences among women with CWP. This study aimed to explore women's experiences of the impact of CWP on daily life.

Method: The participants were 19 women between 45-67 years old, who had developed CWP between 1995 and 2016. Individual interviews were conducted and analysed with qualitative content analysis.

Results: Daily life with CWP was expressed in the main theme "Moving between living in the shadow of pain or living a life with the pain in the shadows" including three themes and eight subthemes; 1) living with invisible challenges by feeling neglected as a person and feeling lonely among other people; 2) struggling with limitations by... (More)

Purpose: Long-term pain is a public health problem but few studies have focused on experiences among women with CWP. This study aimed to explore women's experiences of the impact of CWP on daily life.

Method: The participants were 19 women between 45-67 years old, who had developed CWP between 1995 and 2016. Individual interviews were conducted and analysed with qualitative content analysis.

Results: Daily life with CWP was expressed in the main theme "Moving between living in the shadow of pain or living a life with the pain in the shadows" including three themes and eight subthemes; 1) living with invisible challenges by feeling neglected as a person and feeling lonely among other people; 2) struggling with limitations by moving between ability and inability, stress and worries, and being dependent on others; and 3) encountering daily life with varying degrees of flexibility by standing still and giving up, moving back and forth by adapting and striving forward with resistance.

Conclusions: Women experienced different ways of how CWP influenced their daily life with challenges, limitations, and flexibility. Daily life with CWP entails moving between living in the shadow of pain and living a life with the pain in the shadows.

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author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Chronic widespread pain (CWP), daily life, experiences, qualitative content analysis, women
in
International Journal of Qualitative Studies on Health and Well-being
volume
16
article number
1926057
publisher
Taylor & Francis
external identifiers
  • scopus:85105905396
  • pmid:33985409
ISSN
1748-2631
DOI
10.1080/17482631.2021.1926057
language
English
LU publication?
yes
id
b056b014-8c1e-4898-a92d-8dbe993d7245
date added to LUP
2021-05-25 12:17:02
date last changed
2024-06-15 11:28:58
@article{b056b014-8c1e-4898-a92d-8dbe993d7245,
  abstract     = {{<p>Purpose: Long-term pain is a public health problem but few studies have focused on experiences among women with CWP. This study aimed to explore women's experiences of the impact of CWP on daily life.</p><p>Method: The participants were 19 women between 45-67 years old, who had developed CWP between 1995 and 2016. Individual interviews were conducted and analysed with qualitative content analysis.</p><p>Results: Daily life with CWP was expressed in the main theme "Moving between living in the shadow of pain or living a life with the pain in the shadows" including three themes and eight subthemes; 1) living with invisible challenges by feeling neglected as a person and feeling lonely among other people; 2) struggling with limitations by moving between ability and inability, stress and worries, and being dependent on others; and 3) encountering daily life with varying degrees of flexibility by standing still and giving up, moving back and forth by adapting and striving forward with resistance. <br/></p><p>Conclusions: Women experienced different ways of how CWP influenced their daily life with challenges, limitations, and flexibility. Daily life with CWP entails moving between living in the shadow of pain and living a life with the pain in the shadows.</p>}},
  author       = {{Westergården, Malin and Aili, Katarina and Larsson, Ingrid}},
  issn         = {{1748-2631}},
  keywords     = {{Chronic widespread pain (CWP); daily life; experiences; qualitative content analysis; women}},
  language     = {{eng}},
  month        = {{12}},
  publisher    = {{Taylor & Francis}},
  series       = {{International Journal of Qualitative Studies on Health and Well-being}},
  title        = {{"Moving between living in the shadow of pain and living a life with the pain in the shadows" - women's experiences of daily life with chronic widespread pain : a qualitative study}},
  url          = {{http://dx.doi.org/10.1080/17482631.2021.1926057}},
  doi          = {{10.1080/17482631.2021.1926057}},
  volume       = {{16}},
  year         = {{2021}},
}