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A joint venture : patients’ experiences with goal setting in rheumatology rehabilitation–a qualitative study

Nielsen, Lisbeth Skovly ; Primdahl, Jette ; Clausen, Brian and Bremander, Ann LU (2024) In Disability and Rehabilitation
Abstract

Purpose: To explore how patients with rheumatic musculoskeletal diseases (RMDs) perceive participation in the goal setting process prior to interdisciplinary rehabilitation. Methods: We conducted semi-structured interviews with 22 participants admitted to an interdisciplinary rehabilitation stay for patients with RMDs at two Danish rehabilitation centres. Qualitative content analysis was applied. Results: The participants perceived goal setting as a joint venture between two parties: the health professionals and the participant. Three categories were formed, which described both facilitators and barriers in the process. Responsibility for goal setting described the importance of shared responsibility, or health professionals as experts,... (More)

Purpose: To explore how patients with rheumatic musculoskeletal diseases (RMDs) perceive participation in the goal setting process prior to interdisciplinary rehabilitation. Methods: We conducted semi-structured interviews with 22 participants admitted to an interdisciplinary rehabilitation stay for patients with RMDs at two Danish rehabilitation centres. Qualitative content analysis was applied. Results: The participants perceived goal setting as a joint venture between two parties: the health professionals and the participant. Three categories were formed, which described both facilitators and barriers in the process. Responsibility for goal setting described the importance of shared responsibility, or health professionals as experts, taking full responsibility for goal setting. Equipped for goal setting included perceptions of being well prepared for the process, or considerations that goal setting was difficult because of a lack of information. An equal member of the team entailed both the feeling of being recognised as one in the team, or feeling like an outsider. Conclusion: Goal setting is perceived as a challenge by some patients. Participation in goal setting depends on both the capacity and the opportunity to participate which are factors linked to patients’ level of health literacy.

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author
; ; and
organization
publishing date
type
Contribution to journal
publication status
epub
subject
keywords
content analysis, Goal setting, health literacy, interviews, rehabilitation, rheumatic and musculoskeletal diseases, shared decision making
in
Disability and Rehabilitation
publisher
Taylor & Francis
external identifiers
  • pmid:38375771
  • scopus:85186190978
ISSN
0963-8288
DOI
10.1080/09638288.2024.2313122
language
English
LU publication?
yes
id
b910b1e1-16b8-4c83-b114-d9907e178761
date added to LUP
2024-03-18 14:35:13
date last changed
2024-04-15 11:58:47
@article{b910b1e1-16b8-4c83-b114-d9907e178761,
  abstract     = {{<p>Purpose: To explore how patients with rheumatic musculoskeletal diseases (RMDs) perceive participation in the goal setting process prior to interdisciplinary rehabilitation. Methods: We conducted semi-structured interviews with 22 participants admitted to an interdisciplinary rehabilitation stay for patients with RMDs at two Danish rehabilitation centres. Qualitative content analysis was applied. Results: The participants perceived goal setting as a joint venture between two parties: the health professionals and the participant. Three categories were formed, which described both facilitators and barriers in the process. Responsibility for goal setting described the importance of shared responsibility, or health professionals as experts, taking full responsibility for goal setting. Equipped for goal setting included perceptions of being well prepared for the process, or considerations that goal setting was difficult because of a lack of information. An equal member of the team entailed both the feeling of being recognised as one in the team, or feeling like an outsider. Conclusion: Goal setting is perceived as a challenge by some patients. Participation in goal setting depends on both the capacity and the opportunity to participate which are factors linked to patients’ level of health literacy.</p>}},
  author       = {{Nielsen, Lisbeth Skovly and Primdahl, Jette and Clausen, Brian and Bremander, Ann}},
  issn         = {{0963-8288}},
  keywords     = {{content analysis; Goal setting; health literacy; interviews; rehabilitation; rheumatic and musculoskeletal diseases; shared decision making}},
  language     = {{eng}},
  publisher    = {{Taylor & Francis}},
  series       = {{Disability and Rehabilitation}},
  title        = {{A joint venture : patients’ experiences with goal setting in rheumatology rehabilitation–a qualitative study}},
  url          = {{http://dx.doi.org/10.1080/09638288.2024.2313122}},
  doi          = {{10.1080/09638288.2024.2313122}},
  year         = {{2024}},
}