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Active participation of people with disabilities in disaster preparedness and contingency work : a systematic literature review on methods, outcomes, and challenges

Stjernholm, Linda LU ; Borell, Jonas LU orcid and Osvalder, Anna-Lisa (2025) In Progress in Disaster Science 29.
Abstract
Disaster risk reduction (DRR) strategies must actively include people with disabilities (PWD) to ensure equitable and effective preparedness. Although awareness of disability inclusion in DRR is growing, the literature remains fragmented, and no prior structured literature review has focused specifically on participatory methods involving PWD. This review addresses that gap by identifying and synthesizing evidence on how PWD have been engaged in disaster preparedness and contingency planning. Following a structured process inspired by PRISMA and using the PICO framework, searches in Scopus and Web of Science yielded 720 articles, of which 20 peer-reviewed studies from 12 countries were included. The studies employed diverse participatory... (More)
Disaster risk reduction (DRR) strategies must actively include people with disabilities (PWD) to ensure equitable and effective preparedness. Although awareness of disability inclusion in DRR is growing, the literature remains fragmented, and no prior structured literature review has focused specifically on participatory methods involving PWD. This review addresses that gap by identifying and synthesizing evidence on how PWD have been engaged in disaster preparedness and contingency planning. Following a structured process inspired by PRISMA and using the PICO framework, searches in Scopus and Web of Science yielded 720 articles, of which 20 peer-reviewed studies from 12 countries were included. The studies employed diverse participatory methods such as interviews, focus groups, co-design workshops, photovoice, and multi-stakeholder consultations. These approaches led to increased preparedness, empowerment, and leadership among PWD, while also strengthening community networks and collaboration with DRR personnel. However, challenges such as communication barriers, limited resources, and exclusion of marginalized groups were common. To conclude, this review offers the first comprehensive synthesis of participatory methods for disability-inclusive DRR, highlighting both their transformative potential and the need for more inclusive, tailored strategies in future research and practice. (Less)
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author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Disability, Disaster risk reduction, Participation, Crisis management, Preparedness
in
Progress in Disaster Science
volume
29
article number
100502
pages
10 pages
publisher
Elsevier
ISSN
2590-0617
DOI
10.1016/j.pdisas.2025.100502
project
From passive receiver to active resource in the crisis management system
language
English
LU publication?
yes
id
bcbcb418-fbd5-4c39-a1db-b2d2e622fd72
date added to LUP
2025-12-17 14:37:40
date last changed
2025-12-19 10:14:25
@article{bcbcb418-fbd5-4c39-a1db-b2d2e622fd72,
  abstract     = {{Disaster risk reduction (DRR) strategies must actively include people with disabilities (PWD) to ensure equitable and effective preparedness. Although awareness of disability inclusion in DRR is growing, the literature remains fragmented, and no prior structured literature review has focused specifically on participatory methods involving PWD. This review addresses that gap by identifying and synthesizing evidence on how PWD have been engaged in disaster preparedness and contingency planning. Following a structured process inspired by PRISMA and using the PICO framework, searches in Scopus and Web of Science yielded 720 articles, of which 20 peer-reviewed studies from 12 countries were included. The studies employed diverse participatory methods such as interviews, focus groups, co-design workshops, photovoice, and multi-stakeholder consultations. These approaches led to increased preparedness, empowerment, and leadership among PWD, while also strengthening community networks and collaboration with DRR personnel. However, challenges such as communication barriers, limited resources, and exclusion of marginalized groups were common. To conclude, this review offers the first comprehensive synthesis of participatory methods for disability-inclusive DRR, highlighting both their transformative potential and the need for more inclusive, tailored strategies in future research and practice.}},
  author       = {{Stjernholm, Linda and Borell, Jonas and Osvalder, Anna-Lisa}},
  issn         = {{2590-0617}},
  keywords     = {{Disability; Disaster risk reduction; Participation; Crisis management; Preparedness}},
  language     = {{eng}},
  month        = {{12}},
  publisher    = {{Elsevier}},
  series       = {{Progress in Disaster Science}},
  title        = {{Active participation of people with disabilities in disaster preparedness and contingency work : a systematic literature review on methods, outcomes, and challenges}},
  url          = {{http://dx.doi.org/10.1016/j.pdisas.2025.100502}},
  doi          = {{10.1016/j.pdisas.2025.100502}},
  volume       = {{29}},
  year         = {{2025}},
}