Exploring the knowledge contributions of carers involved in a group process aimed at co-creating a targeted support intervention
(2023) In International Journal of Care and Caring 7(3). p.479-497- Abstract
Patient and public involvement is a way of ensuring that research and practices are more responsive to their target groups. This study, inspired by discourse psychology, explores the knowledge contributions of informal carers who participated in group meetings to co-create a support intervention. Findings highlight that carers’ knowledge is complex, including more than practical caring experiences. Acknowledging carers’ knowledge contributions and involving a heterogeneous sample of carers are key considerations for patient and public involvement in research; otherwise, there is a danger of establishing risks of injustice. Accepting the multifaceted knowledge of carers could increase the validity of research and the relevance of... (More)
Patient and public involvement is a way of ensuring that research and practices are more responsive to their target groups. This study, inspired by discourse psychology, explores the knowledge contributions of informal carers who participated in group meetings to co-create a support intervention. Findings highlight that carers’ knowledge is complex, including more than practical caring experiences. Acknowledging carers’ knowledge contributions and involving a heterogeneous sample of carers are key considerations for patient and public involvement in research; otherwise, there is a danger of establishing risks of injustice. Accepting the multifaceted knowledge of carers could increase the validity of research and the relevance of interventions developed.
(Less)
- author
- Malm, Camilla ; Jönson, Håkan LU ; Andersson, Stefan and Hanson, Elizabeth
- organization
- publishing date
- 2023
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- carer knowledge, carers, discourse psychology, patient and public involvement
- in
- International Journal of Care and Caring
- volume
- 7
- issue
- 3
- pages
- 19 pages
- publisher
- Bristol University Press
- external identifiers
-
- scopus:85167419122
- ISSN
- 2397-8821
- DOI
- 10.1332/239788221X16740618578816
- language
- English
- LU publication?
- yes
- id
- bcf84b33-8a27-4e31-8f02-31a456157957
- date added to LUP
- 2023-11-01 10:52:21
- date last changed
- 2023-11-01 10:52:21
@article{bcf84b33-8a27-4e31-8f02-31a456157957,
abstract = {{<p>Patient and public involvement is a way of ensuring that research and practices are more responsive to their target groups. This study, inspired by discourse psychology, explores the knowledge contributions of informal carers who participated in group meetings to co-create a support intervention. Findings highlight that carers’ knowledge is complex, including more than practical caring experiences. Acknowledging carers’ knowledge contributions and involving a heterogeneous sample of carers are key considerations for patient and public involvement in research; otherwise, there is a danger of establishing risks of injustice. Accepting the multifaceted knowledge of carers could increase the validity of research and the relevance of interventions developed.</p>}},
author = {{Malm, Camilla and Jönson, Håkan and Andersson, Stefan and Hanson, Elizabeth}},
issn = {{2397-8821}},
keywords = {{carer knowledge; carers; discourse psychology; patient and public involvement}},
language = {{eng}},
number = {{3}},
pages = {{479--497}},
publisher = {{Bristol University Press}},
series = {{International Journal of Care and Caring}},
title = {{Exploring the knowledge contributions of carers involved in a group process aimed at co-creating a targeted support intervention}},
url = {{http://dx.doi.org/10.1332/239788221X16740618578816}},
doi = {{10.1332/239788221X16740618578816}},
volume = {{7}},
year = {{2023}},
}