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Experiences of living with persisting post-stroke dysphagia and of dysphagia management–a qualitative study

Helldén, Josefin ; Bergström, Liza and Karlsson, Staffan LU (2018) In International Journal of Qualitative Studies on Health and Well-being 13(sup1).
Abstract

Purpose: The aim of this study was to investigate people’s experiences of living with dysphagia after stroke, and their experiences of dysphagia management. Methods: The study design was qualitative, and an open-ended approach to data collection was used, with follow-up probing questions to gain more information as needed. Personal interviews were conducted with five persons who had persisting moderate to severe dysphagia after stroke, living in the south-west part of Sweden. The data were analysed with qualitative content analysis. Results: When analysing the data, the following theme emerged; “Dysphagia impacts life situations negatively and requires individually adapted, long term support from skilled health care professionals”. The... (More)

Purpose: The aim of this study was to investigate people’s experiences of living with dysphagia after stroke, and their experiences of dysphagia management. Methods: The study design was qualitative, and an open-ended approach to data collection was used, with follow-up probing questions to gain more information as needed. Personal interviews were conducted with five persons who had persisting moderate to severe dysphagia after stroke, living in the south-west part of Sweden. The data were analysed with qualitative content analysis. Results: When analysing the data, the following theme emerged; “Dysphagia impacts life situations negatively and requires individually adapted, long term support from skilled health care professionals”. The theme consists of three categories: “Learning to manage dysphagia and its complications”, “Professional support with dysphagia varies” and “Finding small moments of joy despite large restrictions in life situations”. Conclusions: Findings indicated that people with dysphagia experienced a lack of support from health care professionals. Better health care support following discharge from hospital is required to ensure an optimal quality of life. Actions to achieve this may include developing national guidelines for adequate dysphagia follow-up and establishing multidisciplinary dysphagia teams in hospitals and long-term care facilities.

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author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
life situations, patient reported outcome, qualitative research, speech–language pathology, Swallowing difficulties
in
International Journal of Qualitative Studies on Health and Well-being
volume
13
issue
sup1
article number
1522194
publisher
Taylor & Francis
external identifiers
  • pmid:30257150
  • scopus:85054145508
ISSN
1748-2623
DOI
10.1080/17482631.2018.1522194
language
English
LU publication?
yes
id
c1ea5ec3-91e9-42cb-94cf-15ff70836532
date added to LUP
2018-10-19 07:21:35
date last changed
2021-10-06 04:36:22
@article{c1ea5ec3-91e9-42cb-94cf-15ff70836532,
  abstract     = {<p>Purpose: The aim of this study was to investigate people’s experiences of living with dysphagia after stroke, and their experiences of dysphagia management. Methods: The study design was qualitative, and an open-ended approach to data collection was used, with follow-up probing questions to gain more information as needed. Personal interviews were conducted with five persons who had persisting moderate to severe dysphagia after stroke, living in the south-west part of Sweden. The data were analysed with qualitative content analysis. Results: When analysing the data, the following theme emerged; “Dysphagia impacts life situations negatively and requires individually adapted, long term support from skilled health care professionals”. The theme consists of three categories: “Learning to manage dysphagia and its complications”, “Professional support with dysphagia varies” and “Finding small moments of joy despite large restrictions in life situations”. Conclusions: Findings indicated that people with dysphagia experienced a lack of support from health care professionals. Better health care support following discharge from hospital is required to ensure an optimal quality of life. Actions to achieve this may include developing national guidelines for adequate dysphagia follow-up and establishing multidisciplinary dysphagia teams in hospitals and long-term care facilities.</p>},
  author       = {Helldén, Josefin and Bergström, Liza and Karlsson, Staffan},
  issn         = {1748-2623},
  language     = {eng},
  month        = {09},
  number       = {sup1},
  publisher    = {Taylor & Francis},
  series       = {International Journal of Qualitative Studies on Health and Well-being},
  title        = {Experiences of living with persisting post-stroke dysphagia and of dysphagia management–a qualitative study},
  url          = {http://dx.doi.org/10.1080/17482631.2018.1522194},
  doi          = {10.1080/17482631.2018.1522194},
  volume       = {13},
  year         = {2018},
}