Tight Ties in Collaborative Health Research Puts Research Ethics on Trial? A Discussion on Autonomy, Confidentiality, and Integrity in Qualitative Research
Øye, Christine ; Sørensen, Nelli Øvre ; Dahl, Hellen and Glasdam, Stinne LU
(2019)
In Qualitative Health Research
29(8).
p.1227-1235
- Abstract
- Collaborative research involving different stakeholders is increasingly becoming a preferred way of doing qualitative research to improve health care services. However, ethical research dilemmas arise when collaborative ties are tight. Based on lessons learned from two qualitative collaborative health care research projects in two different municipalities in Norway and Denmark, respectively, this article illuminates ethical research dilemmas around ethical principles and guidelines of autonomy (informed consent), confidentiality (anonymity), and integrity of research. Accordingly, there is a need to revisit and resume international ethical research guidelines formulated in the Declaration of Helsinki, when it comes to research guidelines... (More)
- Collaborative research involving different stakeholders is increasingly becoming a preferred way of doing qualitative research to improve health care services. However, ethical research dilemmas arise when collaborative ties are tight. Based on lessons learned from two qualitative collaborative health care research projects in two different municipalities in Norway and Denmark, respectively, this article illuminates ethical research dilemmas around ethical principles and guidelines of autonomy (informed consent), confidentiality (anonymity), and integrity of research. Accordingly, there is a need to revisit and resume international ethical research guidelines formulated in the Declaration of Helsinki, when it comes to research guidelines of informed consent, anonymity, and integrity of research. Moreover, we suggest that collaborators contemplate and negotiate these ethical research issues to avoid unnecessary misunderstandings, conflicts, and pressures when doing research with stakeholders when collaboration ties are tight. (Less)
- Abstract (Swedish)
- Collaborative research involving different stakeholders is increasingly becoming a preferred way of doing qualitative research to improve health care services. However, ethical research dilemmas arise when collaborative ties are tight.
Based on lessons learned from two qualitative collaborative health care research projects in two different municipalities in Norway and Denmark, respectively, this article illuminates ethical research dilemmas around ethical principles and
guidelines of autonomy (informed consent), confidentiality (anonymity), and integrity of research. Accordingly, there is a need to revisit and resume international ethical research guidelines formulated in the Declaration of Helsinki, when it comes to research... (More) - Collaborative research involving different stakeholders is increasingly becoming a preferred way of doing qualitative research to improve health care services. However, ethical research dilemmas arise when collaborative ties are tight.
Based on lessons learned from two qualitative collaborative health care research projects in two different municipalities in Norway and Denmark, respectively, this article illuminates ethical research dilemmas around ethical principles and
guidelines of autonomy (informed consent), confidentiality (anonymity), and integrity of research. Accordingly, there is a need to revisit and resume international ethical research guidelines formulated in the Declaration of Helsinki, when it comes to research guidelines of informed consent, anonymity, and integrity of research. Moreover, we suggest that collaborators contemplate and negotiate these ethical research issues to avoid unnecessary misunderstandings, conflicts, and pressures when doing research with stakeholders when collaboration ties are tight. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/c25f150e-2588-479a-8f84-7948f1a9b40e
- author
- Øye, Christine
; Sørensen, Nelli Øvre
; Dahl, Hellen
and Glasdam, Stinne
LU
- organization
- publishing date
- 2019-01-09
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- collaborative research, Research Ethics, Informed Consent, Confidentiality, research integrity, qualitative method, ethnographic research, Norway, Denmark
- in
- Qualitative Health Research
- volume
- 29
- issue
- 8
- pages
- 9 pages
- publisher
- SAGE Publications
- external identifiers
-
- scopus:85059894376
- pmid:30623753
- ISSN
- 1049-7323
- DOI
- 10.1177/1049732318822294
- language
- English
- LU publication?
- yes
- id
- c25f150e-2588-479a-8f84-7948f1a9b40e
- date added to LUP
- 2019-01-09 14:27:44
- date last changed
- 2024-06-21 02:21:11
@article{c25f150e-2588-479a-8f84-7948f1a9b40e,
abstract = {{Collaborative research involving different stakeholders is increasingly becoming a preferred way of doing qualitative research to improve health care services. However, ethical research dilemmas arise when collaborative ties are tight. Based on lessons learned from two qualitative collaborative health care research projects in two different municipalities in Norway and Denmark, respectively, this article illuminates ethical research dilemmas around ethical principles and guidelines of autonomy (informed consent), confidentiality (anonymity), and integrity of research. Accordingly, there is a need to revisit and resume international ethical research guidelines formulated in the Declaration of Helsinki, when it comes to research guidelines of informed consent, anonymity, and integrity of research. Moreover, we suggest that collaborators contemplate and negotiate these ethical research issues to avoid unnecessary misunderstandings, conflicts, and pressures when doing research with stakeholders when collaboration ties are tight.}},
author = {{Øye, Christine and Sørensen, Nelli Øvre and Dahl, Hellen and Glasdam, Stinne}},
issn = {{1049-7323}},
keywords = {{collaborative research; Research Ethics; Informed Consent; Confidentiality; research integrity; qualitative method; ethnographic research; Norway; Denmark}},
language = {{eng}},
month = {{01}},
number = {{8}},
pages = {{1227--1235}},
publisher = {{SAGE Publications}},
series = {{Qualitative Health Research}},
title = {{Tight Ties in Collaborative Health Research Puts Research Ethics on Trial? A Discussion on Autonomy, Confidentiality, and Integrity in Qualitative Research}},
url = {{http://dx.doi.org/10.1177/1049732318822294}},
doi = {{10.1177/1049732318822294}},
volume = {{29}},
year = {{2019}},
}