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The Meaning of Being a Living Kidney, Liver, or Stem Cell Donor - A Meta-Ethnography

Kisch, Annika M. LU ; Forsberg, Anna LU ; Fridh, Isabell; Almgren, Matilda LU ; Lundmark, Martina LU ; Lovén, Charlotte; Flodén, Anne; Nilsson, Madeleine; Karlsson, Veronika and Lennerling, Annette (2018) In Transplantation 102(5). p.744-756
Abstract

Background Studies on living donors from the donors' perspective show that the donation process involves both positive and negative feelings involving vulnerability. Qualitative studies of living kidney, liver, and allogeneic hematopoietic stem cell donors have not previously been merged in the same analysis. Therefore, our aim was to synthesize current knowledge of these donors' experiences to deepen understanding of the meaning of being a living donor for the purpose of saving or extending someone's life. Methods The meta-ethnography steps presented by Noblit and Hare in 1988 were used. Results Forty-one qualitative studies from 1968 to 2016 that fulfilled the inclusion criteria were analyzed. The studies comprised experiences of over... (More)

Background Studies on living donors from the donors' perspective show that the donation process involves both positive and negative feelings involving vulnerability. Qualitative studies of living kidney, liver, and allogeneic hematopoietic stem cell donors have not previously been merged in the same analysis. Therefore, our aim was to synthesize current knowledge of these donors' experiences to deepen understanding of the meaning of being a living donor for the purpose of saving or extending someone's life. Methods The meta-ethnography steps presented by Noblit and Hare in 1988 were used. Results Forty-one qualitative studies from 1968 to 2016 that fulfilled the inclusion criteria were analyzed. The studies comprised experiences of over 670 donors. The time since donation varied from 2 days to 29 years. A majority of the studies, 25 of 41, were on living kidney donors. The synthesis revealed that the essential meaning of being a donor is doing what one feels one has to do, involving 6 themes; A sense of responsibility, loneliness and abandonment, suffering, pride and gratitude, a sense of togetherness, and a life changing event. Conclusions The main issue is that one donates irrespective of what one donates. The relationship to the recipient determines the motives for donation. The deeper insight into the donors' experiences provides implications for their psychological care.

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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Transplantation
volume
102
issue
5
pages
13 pages
publisher
Lippincott Williams & Wilkins
external identifiers
  • scopus:85046547061
ISSN
0041-1337
DOI
10.1097/TP.0000000000002073
language
English
LU publication?
yes
id
c363b106-dc7c-4353-9c07-113b78928fe7
date added to LUP
2018-05-24 13:46:56
date last changed
2019-10-08 03:29:49
@article{c363b106-dc7c-4353-9c07-113b78928fe7,
  abstract     = {<p>Background Studies on living donors from the donors' perspective show that the donation process involves both positive and negative feelings involving vulnerability. Qualitative studies of living kidney, liver, and allogeneic hematopoietic stem cell donors have not previously been merged in the same analysis. Therefore, our aim was to synthesize current knowledge of these donors' experiences to deepen understanding of the meaning of being a living donor for the purpose of saving or extending someone's life. Methods The meta-ethnography steps presented by Noblit and Hare in 1988 were used. Results Forty-one qualitative studies from 1968 to 2016 that fulfilled the inclusion criteria were analyzed. The studies comprised experiences of over 670 donors. The time since donation varied from 2 days to 29 years. A majority of the studies, 25 of 41, were on living kidney donors. The synthesis revealed that the essential meaning of being a donor is doing what one feels one has to do, involving 6 themes; A sense of responsibility, loneliness and abandonment, suffering, pride and gratitude, a sense of togetherness, and a life changing event. Conclusions The main issue is that one donates irrespective of what one donates. The relationship to the recipient determines the motives for donation. The deeper insight into the donors' experiences provides implications for their psychological care.</p>},
  author       = {Kisch, Annika M. and Forsberg, Anna and Fridh, Isabell and Almgren, Matilda and Lundmark, Martina and Lovén, Charlotte and Flodén, Anne and Nilsson, Madeleine and Karlsson, Veronika and Lennerling, Annette},
  issn         = {0041-1337},
  language     = {eng},
  month        = {05},
  number       = {5},
  pages        = {744--756},
  publisher    = {Lippincott Williams & Wilkins},
  series       = {Transplantation},
  title        = {The Meaning of Being a Living Kidney, Liver, or Stem Cell Donor - A Meta-Ethnography},
  url          = {http://dx.doi.org/10.1097/TP.0000000000002073},
  volume       = {102},
  year         = {2018},
}