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Dignity as a guiding principle for family care partners in the care of an old relative with dementia

Söderberg, Maria LU ; Ståhl, Agneta LU and Melin Emilsson, Ulla LU (2019) In Scandinavian Journal of Caring Sciences
Abstract

Aim: There is a growing number of older people (65+) with dementia, and many family care partners are involved in making help-seeking choices. The aim of this study was to reveal how family care partners with an old relative with dementia proceed in the name of dignity in their desire to secure the best care possible while still maintaining their own dignity. Methods: Data were collected in 2009–2010 in open semi-structured interviews and follow-up contacts with seven family care partners with an old relative with dementia on 14 occasions. From this collected data and for this study, a design based on patterns labelled archetypes was chosen to permit an in-depth data analysis. Results: In the analysis, three archetypes emerged,... (More)

Aim: There is a growing number of older people (65+) with dementia, and many family care partners are involved in making help-seeking choices. The aim of this study was to reveal how family care partners with an old relative with dementia proceed in the name of dignity in their desire to secure the best care possible while still maintaining their own dignity. Methods: Data were collected in 2009–2010 in open semi-structured interviews and follow-up contacts with seven family care partners with an old relative with dementia on 14 occasions. From this collected data and for this study, a design based on patterns labelled archetypes was chosen to permit an in-depth data analysis. Results: In the analysis, three archetypes emerged, emanating from three specific family care partners. A prominent feature in the findings was that the dignity of an old relative with dementia was hard to separate from the dignity as a family care partner, which gave rise to their need to express accounts in terms of excuses and justifications. Conclusion: This study provides an important insight into the connection between different elements of dignity and it contributes to explain the complexity behind family care partners’ decisions in the care of an old relative with dementia. This multifaceted meaning of dignity needs more attention for a better understanding and thereby implementation in practice and in the follow-up of policy for older people.

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author
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organization
publishing date
type
Contribution to journal
publication status
epub
subject
keywords
dementia, elder care, family care
in
Scandinavian Journal of Caring Sciences
publisher
Wiley-Blackwell
external identifiers
  • pmid:31111512
  • scopus:85066138329
ISSN
0283-9318
DOI
10.1111/scs.12708
language
English
LU publication?
yes
id
c365750d-ad5c-4f66-a767-d4396b86748c
date added to LUP
2019-06-13 14:34:34
date last changed
2020-10-27 02:03:56
@article{c365750d-ad5c-4f66-a767-d4396b86748c,
  abstract     = {<p>Aim: There is a growing number of older people (65+) with dementia, and many family care partners are involved in making help-seeking choices. The aim of this study was to reveal how family care partners with an old relative with dementia proceed in the name of dignity in their desire to secure the best care possible while still maintaining their own dignity. Methods: Data were collected in 2009–2010 in open semi-structured interviews and follow-up contacts with seven family care partners with an old relative with dementia on 14 occasions. From this collected data and for this study, a design based on patterns labelled archetypes was chosen to permit an in-depth data analysis. Results: In the analysis, three archetypes emerged, emanating from three specific family care partners. A prominent feature in the findings was that the dignity of an old relative with dementia was hard to separate from the dignity as a family care partner, which gave rise to their need to express accounts in terms of excuses and justifications. Conclusion: This study provides an important insight into the connection between different elements of dignity and it contributes to explain the complexity behind family care partners’ decisions in the care of an old relative with dementia. This multifaceted meaning of dignity needs more attention for a better understanding and thereby implementation in practice and in the follow-up of policy for older people.</p>},
  author       = {Söderberg, Maria and Ståhl, Agneta and Melin Emilsson, Ulla},
  issn         = {0283-9318},
  language     = {eng},
  month        = {05},
  publisher    = {Wiley-Blackwell},
  series       = {Scandinavian Journal of Caring Sciences},
  title        = {Dignity as a guiding principle for family care partners in the care of an old relative with dementia},
  url          = {http://dx.doi.org/10.1111/scs.12708},
  doi          = {10.1111/scs.12708},
  year         = {2019},
}