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A cluster randomized controlled trial of a client-centred, activities of daily living intervention for people with stroke : One year follow-up of caregivers

Bertilsson, Ann Sofie ; Eriksson, Gunilla ; Ekstam, Lisa LU orcid ; Tham, Kerstin ; Andersson, Magnus ; Von Koch, Lena and Johansson, Ulla (2016) In Clinical Rehabilitation 30(8). p.765-775
Abstract

Objective: Compare caregiver burden, provision of informal care, participation in everyday occupations and life satisfaction of caregivers to people with stroke, who either had received a client-centred, activities of daily living intervention or usual activities of daily living interventions. Design: A multicentre cluster randomized controlled trial in which 16 rehabilitation units were randomly assigned to deliver a client-centred, activities of daily living intervention or usual activities of daily living interventions. Caregiver outcomes were compared cross-sectionally at 12 months and changes in outcomes between three and 12 months after people with stroke were included in the study. Setting: Inpatient and outpatient... (More)

Objective: Compare caregiver burden, provision of informal care, participation in everyday occupations and life satisfaction of caregivers to people with stroke, who either had received a client-centred, activities of daily living intervention or usual activities of daily living interventions. Design: A multicentre cluster randomized controlled trial in which 16 rehabilitation units were randomly assigned to deliver a client-centred, activities of daily living intervention or usual activities of daily living interventions. Caregiver outcomes were compared cross-sectionally at 12 months and changes in outcomes between three and 12 months after people with stroke were included in the study. Setting: Inpatient and outpatient rehabilitation. Participants: Caregivers of people with stroke enrolled in the trial. Intervention: A client-centred, activities of daily living intervention aiming to increase agency in daily activities and participation in everyday life for people after stroke. Main measures: Caregiver Burden Scale, Occupational Gaps Questionnaire, LiSat-11. Results: There were no differences in outcomes between caregivers in the client-centred, activities of daily living (n = 88) and the usual activities of daily living (n = 95) group at 12 months. The caregiver burden score was 42.7 vs. 41.8, p = 0.75, mean occupational gaps were 3.5 vs. 4.0, p = 0.52 and satisfaction with life was 53% vs. 50%, p = 0.87. There were no differences in changes between three and 12 months. However, within groups there were significant differences in caregiver burden, factor general strain, for caregivers in the client-centred, activities of daily living group, and in provision of informal care for the usual activities of daily living group. Conclusion: The client-centred intervention did not bring about any difference between caregiver-groups, but within groups some difference was found for caregiver burden and informal care.

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author
; ; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
activities of daily living, carers, patient-centred care, rehabilitation, Stroke
in
Clinical Rehabilitation
volume
30
issue
8
pages
11 pages
publisher
SAGE Publications
external identifiers
  • scopus:84978371273
  • pmid:26396166
  • wos:000380956300005
ISSN
0269-2155
DOI
10.1177/0269215515603780
language
English
LU publication?
yes
id
c3f3db22-19f8-4fd3-9781-d14be3b0b7fd
date added to LUP
2016-08-01 14:06:28
date last changed
2024-05-17 10:08:50
@article{c3f3db22-19f8-4fd3-9781-d14be3b0b7fd,
  abstract     = {{<p>Objective: Compare caregiver burden, provision of informal care, participation in everyday occupations and life satisfaction of caregivers to people with stroke, who either had received a client-centred, activities of daily living intervention or usual activities of daily living interventions. Design: A multicentre cluster randomized controlled trial in which 16 rehabilitation units were randomly assigned to deliver a client-centred, activities of daily living intervention or usual activities of daily living interventions. Caregiver outcomes were compared cross-sectionally at 12 months and changes in outcomes between three and 12 months after people with stroke were included in the study. Setting: Inpatient and outpatient rehabilitation. Participants: Caregivers of people with stroke enrolled in the trial. Intervention: A client-centred, activities of daily living intervention aiming to increase agency in daily activities and participation in everyday life for people after stroke. Main measures: Caregiver Burden Scale, Occupational Gaps Questionnaire, LiSat-11. Results: There were no differences in outcomes between caregivers in the client-centred, activities of daily living (n = 88) and the usual activities of daily living (n = 95) group at 12 months. The caregiver burden score was 42.7 vs. 41.8, p = 0.75, mean occupational gaps were 3.5 vs. 4.0, p = 0.52 and satisfaction with life was 53% vs. 50%, p = 0.87. There were no differences in changes between three and 12 months. However, within groups there were significant differences in caregiver burden, factor general strain, for caregivers in the client-centred, activities of daily living group, and in provision of informal care for the usual activities of daily living group. Conclusion: The client-centred intervention did not bring about any difference between caregiver-groups, but within groups some difference was found for caregiver burden and informal care.</p>}},
  author       = {{Bertilsson, Ann Sofie and Eriksson, Gunilla and Ekstam, Lisa and Tham, Kerstin and Andersson, Magnus and Von Koch, Lena and Johansson, Ulla}},
  issn         = {{0269-2155}},
  keywords     = {{activities of daily living; carers; patient-centred care; rehabilitation; Stroke}},
  language     = {{eng}},
  month        = {{08}},
  number       = {{8}},
  pages        = {{765--775}},
  publisher    = {{SAGE Publications}},
  series       = {{Clinical Rehabilitation}},
  title        = {{A cluster randomized controlled trial of a client-centred, activities of daily living intervention for people with stroke : One year follow-up of caregivers}},
  url          = {{http://dx.doi.org/10.1177/0269215515603780}},
  doi          = {{10.1177/0269215515603780}},
  volume       = {{30}},
  year         = {{2016}},
}