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Patients' Perceptions of Person-Centered Care in Early Rheumatoid Arthritis: A Qualitative Study

Landgren, Ellen LU orcid ; Bremander, Ann LU ; Lindqvist, Elisabet LU orcid ; Nylander, Maria and Larsson, Ingrid LU orcid (2021) In ACR Open Rheumatology 3(11). p.788-795
Abstract
Objective
Most research on patient experiences of rheumatoid arthritis (RA) care is performed with patients who have established RA and less often with patients with early RA. Experiences of and expectations about health care may change over time, which is why the aim was to explore patients’ perceptions of person-centered care (PCC) early in the RA disease course.
Methods
Thirty-one patients with early RA were interviewed in this qualitative study. An abductive qualitative content analysis was conducted based on the framework of McCormack and McCance (1,2). The four constructs, prerequisites, care environment, person-centered processes, and person-centered outcomes, constituted the four categories in the deductive part of the... (More)
Objective
Most research on patient experiences of rheumatoid arthritis (RA) care is performed with patients who have established RA and less often with patients with early RA. Experiences of and expectations about health care may change over time, which is why the aim was to explore patients’ perceptions of person-centered care (PCC) early in the RA disease course.
Methods
Thirty-one patients with early RA were interviewed in this qualitative study. An abductive qualitative content analysis was conducted based on the framework of McCormack and McCance (1,2). The four constructs, prerequisites, care environment, person-centered processes, and person-centered outcomes, constituted the four categories in the deductive part of the study. An inductive analysis generated 11 subcategories exploring the content of PCC.
Results
For patients with early RA, PCC was described in terms of 1) prerequisites including being treated with respect, meeting dedicated health care professionals, and meeting professional competence; 2) care environment including having access to a multidisciplinary team, having access to health care, and encountering a supportive organization; 3) person-centered processes including being listened to, being supported, and being involved in decision-making; and 4) person-centered outcomes including being satisfied with received health care and achieving optimal health.
Conclusion
Genuine PCC is important for patients early in the RA disease course, supporting the implementation of a person-centered approach during all stages in the health care system. This study contributes to information about how to further develop person-centeredness in rheumatology care. (Less)
Please use this url to cite or link to this publication:
author
; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
ACR Open Rheumatology
volume
3
issue
11
pages
788 - 795
publisher
Wiley
external identifiers
  • pmid:34402602
ISSN
2578-5745
DOI
10.1002/acr2.11326
project
Better care for patients with early rheumatoid arthritis (eRA)
language
English
LU publication?
yes
id
c664531c-e6bc-4517-93d1-2be0fb7e27bd
date added to LUP
2022-02-01 14:57:31
date last changed
2022-05-04 03:00:20
@article{c664531c-e6bc-4517-93d1-2be0fb7e27bd,
  abstract     = {{Objective<br/>Most research on patient experiences of rheumatoid arthritis (RA) care is performed with patients who have established RA and less often with patients with early RA. Experiences of and expectations about health care may change over time, which is why the aim was to explore patients’ perceptions of person-centered care (PCC) early in the RA disease course.<br/>Methods<br/>Thirty-one patients with early RA were interviewed in this qualitative study. An abductive qualitative content analysis was conducted based on the framework of McCormack and McCance (1,2). The four constructs, prerequisites, care environment, person-centered processes, and person-centered outcomes, constituted the four categories in the deductive part of the study. An inductive analysis generated 11 subcategories exploring the content of PCC.<br/>Results<br/>For patients with early RA, PCC was described in terms of 1) prerequisites including being treated with respect, meeting dedicated health care professionals, and meeting professional competence; 2) care environment including having access to a multidisciplinary team, having access to health care, and encountering a supportive organization; 3) person-centered processes including being listened to, being supported, and being involved in decision-making; and 4) person-centered outcomes including being satisfied with received health care and achieving optimal health.<br/>Conclusion<br/>Genuine PCC is important for patients early in the RA disease course, supporting the implementation of a person-centered approach during all stages in the health care system. This study contributes to information about how to further develop person-centeredness in rheumatology care.}},
  author       = {{Landgren, Ellen and Bremander, Ann and Lindqvist, Elisabet and Nylander, Maria and Larsson, Ingrid}},
  issn         = {{2578-5745}},
  language     = {{eng}},
  number       = {{11}},
  pages        = {{788--795}},
  publisher    = {{Wiley}},
  series       = {{ACR Open Rheumatology}},
  title        = {{Patients' Perceptions of Person-Centered Care in Early Rheumatoid Arthritis: A Qualitative Study}},
  url          = {{http://dx.doi.org/10.1002/acr2.11326}},
  doi          = {{10.1002/acr2.11326}},
  volume       = {{3}},
  year         = {{2021}},
}