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“Don’t leave us behind” : a qualitative study exploring the feasibility of a palliative care training program for non-health caregivers in Honduras

Ruiz, Sheryl ; Stafström, Martin LU ; Parham, Leda and Orellana, Luis (2025) In Palliative Care and Social Practice 19.
Abstract

Background: Palliative care (PC) can alleviate suffering and improve quality of life. Yet, disparities persist, particularly in Honduras. Training efforts in PC for non-health caregivers have proven to reduce burnout and stress while enhancing the quality of life for both caregivers and patients. Purpose: This study aimed to explore the feasibility of a PC training program for non-health caregivers in Honduras. Methods: This exploratory study utilized latent content analysis within an interpretivist paradigm. Data was collected through individual semi-structured interviews with 25 participants belonging to different key groups: patients diagnosed with cancer, non-health caregivers, PC experts, and health-related decision makers.... (More)

Background: Palliative care (PC) can alleviate suffering and improve quality of life. Yet, disparities persist, particularly in Honduras. Training efforts in PC for non-health caregivers have proven to reduce burnout and stress while enhancing the quality of life for both caregivers and patients. Purpose: This study aimed to explore the feasibility of a PC training program for non-health caregivers in Honduras. Methods: This exploratory study utilized latent content analysis within an interpretivist paradigm. Data was collected through individual semi-structured interviews with 25 participants belonging to different key groups: patients diagnosed with cancer, non-health caregivers, PC experts, and health-related decision makers. Interviews were conducted in Honduras’ three main cities: Tegucigalpa, San Pedro Sula, and La Ceiba. The sampling technique employed was maximum variation. Results: PC patients and caregivers face significant emotional challenges, often worsened by poverty and resource limitations, which leads to a strain in family dynamics. A lack of education, driven by inadequate healthcare education and policies, contributes to widespread misconceptions about PC. However, progress through various sectors aligned with the same goals proves Honduras is a country with potential. A program with a bottom-up approach, with intersectoral collaboration and training tailored to the needs of caregivers and patients, is urgently needed. Conclusion: It highlights the feasibility, necessity, and potential replicability of implementing a PC training program for non-health caregivers in Honduras, which could offer significant benefits at both individual and national levels. A program that truly accounts for health determinants may help mitigate PC shortages in similar regions. Further research and policy advocacy are essential to empower underserved populations and foster health equity across low- and middle-income settings, to ensure no one is left behind.

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author
; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
caregiver, cuidados paliativos, family dynamics, feasibility, health determinants, health equity, Honduras, intersectoral collaboration, palliative care, qualitative study
in
Palliative Care and Social Practice
volume
19
publisher
SAGE Publications
external identifiers
  • pmid:39926419
  • scopus:85219553269
ISSN
2632-3524
DOI
10.1177/26323524251316897
language
English
LU publication?
yes
id
c94b373c-1ae1-4462-bf5b-5514ca486283
date added to LUP
2025-07-01 09:07:22
date last changed
2025-07-02 03:00:03
@article{c94b373c-1ae1-4462-bf5b-5514ca486283,
  abstract     = {{<p>Background: Palliative care (PC) can alleviate suffering and improve quality of life. Yet, disparities persist, particularly in Honduras. Training efforts in PC for non-health caregivers have proven to reduce burnout and stress while enhancing the quality of life for both caregivers and patients. Purpose: This study aimed to explore the feasibility of a PC training program for non-health caregivers in Honduras. Methods: This exploratory study utilized latent content analysis within an interpretivist paradigm. Data was collected through individual semi-structured interviews with 25 participants belonging to different key groups: patients diagnosed with cancer, non-health caregivers, PC experts, and health-related decision makers. Interviews were conducted in Honduras’ three main cities: Tegucigalpa, San Pedro Sula, and La Ceiba. The sampling technique employed was maximum variation. Results: PC patients and caregivers face significant emotional challenges, often worsened by poverty and resource limitations, which leads to a strain in family dynamics. A lack of education, driven by inadequate healthcare education and policies, contributes to widespread misconceptions about PC. However, progress through various sectors aligned with the same goals proves Honduras is a country with potential. A program with a bottom-up approach, with intersectoral collaboration and training tailored to the needs of caregivers and patients, is urgently needed. Conclusion: It highlights the feasibility, necessity, and potential replicability of implementing a PC training program for non-health caregivers in Honduras, which could offer significant benefits at both individual and national levels. A program that truly accounts for health determinants may help mitigate PC shortages in similar regions. Further research and policy advocacy are essential to empower underserved populations and foster health equity across low- and middle-income settings, to ensure no one is left behind.</p>}},
  author       = {{Ruiz, Sheryl and Stafström, Martin and Parham, Leda and Orellana, Luis}},
  issn         = {{2632-3524}},
  keywords     = {{caregiver; cuidados paliativos; family dynamics; feasibility; health determinants; health equity; Honduras; intersectoral collaboration; palliative care; qualitative study}},
  language     = {{eng}},
  publisher    = {{SAGE Publications}},
  series       = {{Palliative Care and Social Practice}},
  title        = {{“Don’t leave us behind” : a qualitative study exploring the feasibility of a palliative care training program for non-health caregivers in Honduras}},
  url          = {{http://dx.doi.org/10.1177/26323524251316897}},
  doi          = {{10.1177/26323524251316897}},
  volume       = {{19}},
  year         = {{2025}},
}