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Living Anonymous Renal Donors Do Not Regret : Intermediate and Long-Term Follow-Up with a Focus on Motives and Psychosocial Outcomes

Wadström, Jonas; von Zur-Mühlen, Bengt; Lennerling, Annette; Westman, Kerstin LU ; Wennberg, Lars and Fehrman Ekholm, Ingela (2019) In Annals of Transplantation 24. p.234-241
Abstract

BACKGROUND Living anonymous donation (LAD) of kidneys was introduced in Sweden in 2004. This study reports on outcomes of Swedish LAD experiences from 2004 to 2016, focusing on donors' motives, the care they received, psychosocial aspects, and medical status at follow-up. MATERIAL AND METHODS Donor data were collected through a physician interview, medical check-up, review of medical charts, the Hospital Anxiety Depression Scale (HADS), and a routine national questionnaire. Of the 26 LADs during the study period, 1 donor died and 1 declined to participate, leaving a study population of 24. RESULTS Half of the donors were male, which is a higher proportion than for directed living donors. The major motive detected was altruism. Of the 24... (More)

BACKGROUND Living anonymous donation (LAD) of kidneys was introduced in Sweden in 2004. This study reports on outcomes of Swedish LAD experiences from 2004 to 2016, focusing on donors' motives, the care they received, psychosocial aspects, and medical status at follow-up. MATERIAL AND METHODS Donor data were collected through a physician interview, medical check-up, review of medical charts, the Hospital Anxiety Depression Scale (HADS), and a routine national questionnaire. Of the 26 LADs during the study period, 1 donor died and 1 declined to participate, leaving a study population of 24. RESULTS Half of the donors were male, which is a higher proportion than for directed living donors. The major motive detected was altruism. Of the 24 LADs, 96% were very satisfied and would donate again if possible, 46% noted increased self-esteem, and a third were happier after the donation. Sixty-two percent received anonymous information about the recipient and 40% would have liked to meet the recipient. HADS scores were normal. Two donors had antidepressant treatment, 1 of whom had received treatment before donation. Half mentioned that the pre-donation assessment took too long. At follow-up, mean eGFR was 62±12 mL/min/1.73 m², of which 16 were in CKD II and 8 were in CKD III. Four donors had developed hypertension, 1 of whom also developed type 2 diabetes. CONCLUSIONS Swedish LADs are very satisfied and medical outcomes are acceptable. We propose that the transplant community and the National Board of Health and Welfare take a more active approach to informing the general public about LAD.

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published
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Annals of Transplantation
volume
24
pages
8 pages
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ISI
external identifiers
  • scopus:85065391831
ISSN
1425-9524
DOI
10.12659/AOT.913827
language
English
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no
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cb8ae9ee-dae1-47dd-9ab9-70792480a425
date added to LUP
2019-05-23 13:25:15
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2019-08-23 03:00:27
@article{cb8ae9ee-dae1-47dd-9ab9-70792480a425,
  abstract     = {<p>BACKGROUND Living anonymous donation (LAD) of kidneys was introduced in Sweden in 2004. This study reports on outcomes of Swedish LAD experiences from 2004 to 2016, focusing on donors' motives, the care they received, psychosocial aspects, and medical status at follow-up. MATERIAL AND METHODS Donor data were collected through a physician interview, medical check-up, review of medical charts, the Hospital Anxiety Depression Scale (HADS), and a routine national questionnaire. Of the 26 LADs during the study period, 1 donor died and 1 declined to participate, leaving a study population of 24. RESULTS Half of the donors were male, which is a higher proportion than for directed living donors. The major motive detected was altruism. Of the 24 LADs, 96% were very satisfied and would donate again if possible, 46% noted increased self-esteem, and a third were happier after the donation. Sixty-two percent received anonymous information about the recipient and 40% would have liked to meet the recipient. HADS scores were normal. Two donors had antidepressant treatment, 1 of whom had received treatment before donation. Half mentioned that the pre-donation assessment took too long. At follow-up, mean eGFR was 62±12 mL/min/1.73 m², of which 16 were in CKD II and 8 were in CKD III. Four donors had developed hypertension, 1 of whom also developed type 2 diabetes. CONCLUSIONS Swedish LADs are very satisfied and medical outcomes are acceptable. We propose that the transplant community and the National Board of Health and Welfare take a more active approach to informing the general public about LAD.</p>},
  author       = {Wadström, Jonas and von Zur-Mühlen, Bengt and Lennerling, Annette and Westman, Kerstin and Wennberg, Lars and Fehrman Ekholm, Ingela},
  issn         = {1425-9524},
  language     = {eng},
  pages        = {234--241},
  publisher    = {ISI},
  series       = {Annals of Transplantation},
  title        = {Living Anonymous Renal Donors Do Not Regret : Intermediate and Long-Term Follow-Up with a Focus on Motives and Psychosocial Outcomes},
  url          = {http://dx.doi.org/10.12659/AOT.913827},
  volume       = {24},
  year         = {2019},
}