Neurology clinicians' views on palliative care communication: "How do you frame this?"
(2020) In Neurology: Clinical Practice 10(6). p.527-534- Abstract
BACKGROUND: The communication process of preparing patients and families facing progressive neurodegenerative diseases for future illness has not been empirically elucidated; the goal of this qualitative study was to explore neurology interdisciplinary health professionals' communication experiences, including current approaches, facilitators, and challenges.
METHODS: Three focus groups were conducted with 22 clinicians representing a range of health professions from several multidisciplinary neurology outpatient clinics at a large academic medical center. A thematic analysis approach was used to develop a coding structure and identify overarching themes.
RESULTS: Neurology clinicians highlighted that in their practice, (1)... (More)
BACKGROUND: The communication process of preparing patients and families facing progressive neurodegenerative diseases for future illness has not been empirically elucidated; the goal of this qualitative study was to explore neurology interdisciplinary health professionals' communication experiences, including current approaches, facilitators, and challenges.
METHODS: Three focus groups were conducted with 22 clinicians representing a range of health professions from several multidisciplinary neurology outpatient clinics at a large academic medical center. A thematic analysis approach was used to develop a coding structure and identify overarching themes.
RESULTS: Neurology clinicians highlighted that in their practice, (1) conversations are triggered by acute events and practical needs; (2) conversations occur routinely but are rarely documented; (3) loss of patient capacity and resultant surrogate decision-making can be ethically fraught, especially in times of family conflict; (4) prognostic uncertainty, unfamiliarity with disease trajectories, and patient or surrogate avoidance pose communication challenges; and (5) generalist- and specialty-level palliative care roles should be better defined.
CONCLUSIONS: There is a need for a systematic, structured approach to communication that can be applied early in the disease trajectory and considered when developing integrated neuro-palliative care programs.
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- author
- Zehm, April ; Hazeltine, Amanda M ; Greer, Joseph A ; Traeger, Lara ; Nelson-Lowe, Margaret ; Brizzi, Kate and Jacobsen, Juliet LU
- publishing date
- 2020-12
- type
- Contribution to journal
- publication status
- published
- in
- Neurology: Clinical Practice
- volume
- 10
- issue
- 6
- pages
- 527 - 534
- publisher
- Lippincott Williams & Wilkins
- external identifiers
-
- pmid:33520415
- scopus:85113317524
- ISSN
- 2163-0402
- DOI
- 10.1212/CPJ.0000000000000794
- language
- English
- LU publication?
- no
- additional info
- © 2019 American Academy of Neurology.
- id
- cc2002b1-bec8-4d23-be05-1e04475dc3a6
- date added to LUP
- 2024-09-18 08:01:33
- date last changed
- 2024-09-19 04:04:01
@article{cc2002b1-bec8-4d23-be05-1e04475dc3a6,
abstract = {{<p>BACKGROUND: The communication process of preparing patients and families facing progressive neurodegenerative diseases for future illness has not been empirically elucidated; the goal of this qualitative study was to explore neurology interdisciplinary health professionals' communication experiences, including current approaches, facilitators, and challenges.</p><p>METHODS: Three focus groups were conducted with 22 clinicians representing a range of health professions from several multidisciplinary neurology outpatient clinics at a large academic medical center. A thematic analysis approach was used to develop a coding structure and identify overarching themes.</p><p>RESULTS: Neurology clinicians highlighted that in their practice, (1) conversations are triggered by acute events and practical needs; (2) conversations occur routinely but are rarely documented; (3) loss of patient capacity and resultant surrogate decision-making can be ethically fraught, especially in times of family conflict; (4) prognostic uncertainty, unfamiliarity with disease trajectories, and patient or surrogate avoidance pose communication challenges; and (5) generalist- and specialty-level palliative care roles should be better defined.</p><p>CONCLUSIONS: There is a need for a systematic, structured approach to communication that can be applied early in the disease trajectory and considered when developing integrated neuro-palliative care programs.</p>}},
author = {{Zehm, April and Hazeltine, Amanda M and Greer, Joseph A and Traeger, Lara and Nelson-Lowe, Margaret and Brizzi, Kate and Jacobsen, Juliet}},
issn = {{2163-0402}},
language = {{eng}},
number = {{6}},
pages = {{527--534}},
publisher = {{Lippincott Williams & Wilkins}},
series = {{Neurology: Clinical Practice}},
title = {{Neurology clinicians' views on palliative care communication: "How do you frame this?"}},
url = {{http://dx.doi.org/10.1212/CPJ.0000000000000794}},
doi = {{10.1212/CPJ.0000000000000794}},
volume = {{10}},
year = {{2020}},
}