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Patients’ main concerns about having a sibling stem cell donor - A grounded theory study

Kisch, Annika M. LU and Forsberg, Anna LU (2018) In Open Nursing Journal 12. p.46-57
Abstract

Background: There is limited knowledge about the perspective of patients undergoing allogeneic haematopoietic stem cell transplantation (HSCT) about having a sibling as donor. It is essential to understand the main concerns of stem cell recipients in order to enable nurses to provide person-centred care. Objectives: The study aim was to explore patients’ main concerns about having a sibling stem cell donor and how the patients handle them, from immediately before until one year after transplantation. Methods: Twenty-eight interviews were performed prospectively during one year with ten adult sibling stem cell recipients with a mean age of 52 years (range 19-68 years). The interviews were analyzed by the Grounded Theory method. Results:... (More)

Background: There is limited knowledge about the perspective of patients undergoing allogeneic haematopoietic stem cell transplantation (HSCT) about having a sibling as donor. It is essential to understand the main concerns of stem cell recipients in order to enable nurses to provide person-centred care. Objectives: The study aim was to explore patients’ main concerns about having a sibling stem cell donor and how the patients handle them, from immediately before until one year after transplantation. Methods: Twenty-eight interviews were performed prospectively during one year with ten adult sibling stem cell recipients with a mean age of 52 years (range 19-68 years). The interviews were analyzed by the Grounded Theory method. Results: The core category Recompensation summarises the process in the generated grounded theory including the three main categories; Invest, Compensate and Celebrate. Recompensation is defined as a lasting compensation given by the recipient to the sibling donor for the loss or harm suffered or effort made. The sense of having to reward, protect, appreciate, maintain peace and work on the relationship with the sibling donor at the same time as having to accept a serious illness, cope with their situation and promote their own recovery is strenuous for the recipients. Conclusion: The main concern for stem cell recipients during their first post-transplant year is to recompensate the sibling donor by investing, compensating and celebrating her/him. Although there is a positive aspect of recompensation, it can also imply pressure and guilt.

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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Allogeneic haematopoietic stem cell transplantation, Grounded Theory, HSCT, Interviews, Qualitative study, Sibling donor
in
Open Nursing Journal
volume
12
pages
12 pages
publisher
Bentham Science Publishers
external identifiers
  • scopus:85046832380
ISSN
1874-4346
DOI
10.2174/1874434601812010046
language
English
LU publication?
yes
id
ceee1fc7-3274-403e-93ac-ce285560f2d1
date added to LUP
2018-05-24 15:45:45
date last changed
2019-01-06 13:55:33
@article{ceee1fc7-3274-403e-93ac-ce285560f2d1,
  abstract     = {<p>Background: There is limited knowledge about the perspective of patients undergoing allogeneic haematopoietic stem cell transplantation (HSCT) about having a sibling as donor. It is essential to understand the main concerns of stem cell recipients in order to enable nurses to provide person-centred care. Objectives: The study aim was to explore patients’ main concerns about having a sibling stem cell donor and how the patients handle them, from immediately before until one year after transplantation. Methods: Twenty-eight interviews were performed prospectively during one year with ten adult sibling stem cell recipients with a mean age of 52 years (range 19-68 years). The interviews were analyzed by the Grounded Theory method. Results: The core category Recompensation summarises the process in the generated grounded theory including the three main categories; Invest, Compensate and Celebrate. Recompensation is defined as a lasting compensation given by the recipient to the sibling donor for the loss or harm suffered or effort made. The sense of having to reward, protect, appreciate, maintain peace and work on the relationship with the sibling donor at the same time as having to accept a serious illness, cope with their situation and promote their own recovery is strenuous for the recipients. Conclusion: The main concern for stem cell recipients during their first post-transplant year is to recompensate the sibling donor by investing, compensating and celebrating her/him. Although there is a positive aspect of recompensation, it can also imply pressure and guilt.</p>},
  author       = {Kisch, Annika M. and Forsberg, Anna},
  issn         = {1874-4346},
  keyword      = {Allogeneic haematopoietic stem cell transplantation,Grounded Theory,HSCT,Interviews,Qualitative study,Sibling donor},
  language     = {eng},
  month        = {03},
  pages        = {46--57},
  publisher    = {Bentham Science Publishers},
  series       = {Open Nursing Journal},
  title        = {Patients’ main concerns about having a sibling stem cell donor - A grounded theory study},
  url          = {http://dx.doi.org/10.2174/1874434601812010046},
  volume       = {12},
  year         = {2018},
}