The Personal is Political – And Then What? Ideology, Representation, and Legitimacy in a Swedish Disability Organisation
(2023) In Scandinavian Journal of Disability Research 25(1). p.198-211- Abstract
Background: Who can or cannot claim to represent other members within the disability rights movement has been discussed for decades, mainly concerning being disabled as an eligibility prerequisite. Aim(s): The aim is to analyse arguments concerning representational claims within a Swedish disability rights organisation (DHR, Disability Human Rights). Method: Every member of DHR was given the opportunity to answer three open-ended questions. Answers were subjected to a qualitative content analysis. Results: Two main dimensions of arguments were found. The ideological dimension legitimises representation through lived experience or a human rights approach. The pragmatic dimension legitimises representation through relational claims or... (More)
Background: Who can or cannot claim to represent other members within the disability rights movement has been discussed for decades, mainly concerning being disabled as an eligibility prerequisite. Aim(s): The aim is to analyse arguments concerning representational claims within a Swedish disability rights organisation (DHR, Disability Human Rights). Method: Every member of DHR was given the opportunity to answer three open-ended questions. Answers were subjected to a qualitative content analysis. Results: Two main dimensions of arguments were found. The ideological dimension legitimises representation through lived experience or a human rights approach. The pragmatic dimension legitimises representation through relational claims or organisational necessities. Further analysis revealed a paradox: When a representative is required to have a body with certain characteristics, other knowledge-related aspects risk devaluation. Conclusion(s): Paradoxically, the organisation has a goal of rendering impairment irrelevant in society, while rendering impairment a main issue when electing representatives.
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- author
- Krantz, Oskar LU ; Melander, Stina LU and Bahner, Julia LU
- organization
- publishing date
- 2023-06-21
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Disability rights organisation, elected representative, representation, Sweden
- in
- Scandinavian Journal of Disability Research
- volume
- 25
- issue
- 1
- pages
- 14 pages
- publisher
- Taylor & Francis
- external identifiers
-
- scopus:85163645659
- ISSN
- 1501-7419
- DOI
- 10.16993/sjdr.1001
- project
- Representation in the digital era: Democratic consequences of changing engagement in the Swedish disability movement
- language
- English
- LU publication?
- yes
- additional info
- Publisher Copyright: © 2023, Stockholm University Press. All rights reserved.
- id
- d41af884-f6fb-43a8-8b25-553d6617565c
- date added to LUP
- 2023-07-31 10:01:41
- date last changed
- 2023-08-25 07:46:52
@article{d41af884-f6fb-43a8-8b25-553d6617565c, abstract = {{<p>Background: Who can or cannot claim to represent other members within the disability rights movement has been discussed for decades, mainly concerning being disabled as an eligibility prerequisite. Aim(s): The aim is to analyse arguments concerning representational claims within a Swedish disability rights organisation (DHR, Disability Human Rights). Method: Every member of DHR was given the opportunity to answer three open-ended questions. Answers were subjected to a qualitative content analysis. Results: Two main dimensions of arguments were found. The ideological dimension legitimises representation through lived experience or a human rights approach. The pragmatic dimension legitimises representation through relational claims or organisational necessities. Further analysis revealed a paradox: When a representative is required to have a body with certain characteristics, other knowledge-related aspects risk devaluation. Conclusion(s): Paradoxically, the organisation has a goal of rendering impairment irrelevant in society, while rendering impairment a main issue when electing representatives.</p>}}, author = {{Krantz, Oskar and Melander, Stina and Bahner, Julia}}, issn = {{1501-7419}}, keywords = {{Disability rights organisation; elected representative; representation; Sweden}}, language = {{eng}}, month = {{06}}, number = {{1}}, pages = {{198--211}}, publisher = {{Taylor & Francis}}, series = {{Scandinavian Journal of Disability Research}}, title = {{The Personal is Political – And Then What? Ideology, Representation, and Legitimacy in a Swedish Disability Organisation}}, url = {{http://dx.doi.org/10.16993/sjdr.1001}}, doi = {{10.16993/sjdr.1001}}, volume = {{25}}, year = {{2023}}, }