An international clinical perspective on functioning and disability in adults with cerebral palsy
(2022) In Disability and Health Journal 15(3).- Abstract
Background: This international, multi-center cross-sectional study is one of the preparatory studies in the development of the International Classification of Functioning, Disability and Health (ICF) Core Sets for adults with cerebral palsy (CP) to describe their functioning and health. Objective: To identify the most common problems in functioning of adults with CP presenting in healthcare services, and facilitating and hindering environmental factors, using the ICF as a reference. Methods: Participants were adults with CP who visited healthcare services in the Netherlands, Sweden, Thailand, and the United States. Structured interviews were performed using an adapted version of the generic ICF checklist 2.1a (106 categories) to rate... (More)
Background: This international, multi-center cross-sectional study is one of the preparatory studies in the development of the International Classification of Functioning, Disability and Health (ICF) Core Sets for adults with cerebral palsy (CP) to describe their functioning and health. Objective: To identify the most common problems in functioning of adults with CP presenting in healthcare services, and facilitating and hindering environmental factors, using the ICF as a reference. Methods: Participants were adults with CP who visited healthcare services in the Netherlands, Sweden, Thailand, and the United States. Structured interviews were performed using an adapted version of the generic ICF checklist 2.1a (106 categories) to rate the participant's functioning and the impact of environmental factors. Descriptive statistics were used for frequency analysis. Results: In total, 101 participants were included, of whom 69 without intellectual disability (mean age ± SD of 38.4 ± 14.7 y; 85.5% with spastic type of CP; Gross Motor Function Classification System (GMFCS) levels I–V) and 32 with intellectual disability (mean age ± SD of 25.0 ± 6.4 y; 71.9% with spastic type of CP; GMFCS levels I–V). A total of 104 ICF categories in the ICF checklist were frequently present in adults with CP: 27 body functions, 4 body structures, 53 activities and participation, and 20 environmental factors. Conclusions: The most common problems of adults with CP presenting in healthcare services are diverse and highly prevalent. The study results add the clinical perspective on relevant categories of functioning to the basis for developing the ICF Core Sets for adults with CP.
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- author
- Noten, Suzie ; Rodby-Bousquet, Elisabet LU ; Limsakul, Chonnanid ; Tipchatyotin, Suttipong ; Visser, Fay ; Grootoonk, Anneke ; Thorpe, Deborah E. ; van der Slot, Wilma MA ; Selb, Melissa and Roebroeck, Marij E.
- author collaboration
- organization
- publishing date
- 2022-07
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Adults, Cerebral palsy, Clinical study, Functioning, ICF
- in
- Disability and Health Journal
- volume
- 15
- issue
- 3
- article number
- 101318
- publisher
- Elsevier
- external identifiers
-
- scopus:85129397814
- pmid:35459603
- ISSN
- 1936-6574
- DOI
- 10.1016/j.dhjo.2022.101318
- language
- English
- LU publication?
- yes
- additional info
- Publisher Copyright: © 2022 The Authors
- id
- d4d2f82d-6c12-4b02-9d38-6cf6dce05c8e
- date added to LUP
- 2022-08-15 15:35:50
- date last changed
- 2024-06-13 18:17:48
@article{d4d2f82d-6c12-4b02-9d38-6cf6dce05c8e,
abstract = {{<p>Background: This international, multi-center cross-sectional study is one of the preparatory studies in the development of the International Classification of Functioning, Disability and Health (ICF) Core Sets for adults with cerebral palsy (CP) to describe their functioning and health. Objective: To identify the most common problems in functioning of adults with CP presenting in healthcare services, and facilitating and hindering environmental factors, using the ICF as a reference. Methods: Participants were adults with CP who visited healthcare services in the Netherlands, Sweden, Thailand, and the United States. Structured interviews were performed using an adapted version of the generic ICF checklist 2.1a (106 categories) to rate the participant's functioning and the impact of environmental factors. Descriptive statistics were used for frequency analysis. Results: In total, 101 participants were included, of whom 69 without intellectual disability (mean age ± SD of 38.4 ± 14.7 y; 85.5% with spastic type of CP; Gross Motor Function Classification System (GMFCS) levels I–V) and 32 with intellectual disability (mean age ± SD of 25.0 ± 6.4 y; 71.9% with spastic type of CP; GMFCS levels I–V). A total of 104 ICF categories in the ICF checklist were frequently present in adults with CP: 27 body functions, 4 body structures, 53 activities and participation, and 20 environmental factors. Conclusions: The most common problems of adults with CP presenting in healthcare services are diverse and highly prevalent. The study results add the clinical perspective on relevant categories of functioning to the basis for developing the ICF Core Sets for adults with CP.</p>}},
author = {{Noten, Suzie and Rodby-Bousquet, Elisabet and Limsakul, Chonnanid and Tipchatyotin, Suttipong and Visser, Fay and Grootoonk, Anneke and Thorpe, Deborah E. and van der Slot, Wilma MA and Selb, Melissa and Roebroeck, Marij E.}},
issn = {{1936-6574}},
keywords = {{Adults; Cerebral palsy; Clinical study; Functioning; ICF}},
language = {{eng}},
number = {{3}},
publisher = {{Elsevier}},
series = {{Disability and Health Journal}},
title = {{An international clinical perspective on functioning and disability in adults with cerebral palsy}},
url = {{http://dx.doi.org/10.1016/j.dhjo.2022.101318}},
doi = {{10.1016/j.dhjo.2022.101318}},
volume = {{15}},
year = {{2022}},
}