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Negotiating uncertainties : care-seeking in an algorithmic society

Liu, Rui LU orcid ; Lundin, Susanne LU orcid and Eleonorasdotter, Emma (2025) In Medical Humanities
Abstract
This article examines how different layers of health-related uncertainties emerge and intersect in an algorithmic society. We aim to understand how people’s self-care practices co-evolve with digitalised health systems. Sweden stands out among Western countries due to the population’s high digital consumption of medical and health products. We conceptualise health-related uncertainties as inherent in care-seeking. The uncertainties are embedded in an algorithmic society and hinge on what we term algorithmised medicine. Methods used are open-ended questionnaires and semistructured interviews with Swedish residents. We identify: First, people are aware of algorithm-embedded digital infrastructure and its impact on information access in... (More)
This article examines how different layers of health-related uncertainties emerge and intersect in an algorithmic society. We aim to understand how people’s self-care practices co-evolve with digitalised health systems. Sweden stands out among Western countries due to the population’s high digital consumption of medical and health products. We conceptualise health-related uncertainties as inherent in care-seeking. The uncertainties are embedded in an algorithmic society and hinge on what we term algorithmised medicine. Methods used are open-ended questionnaires and semistructured interviews with Swedish residents. We identify: First, people are aware of algorithm-embedded digital infrastructure and its impact on information access in everyday life. Second, people oscillate on a trust-distrust nexus in different contexts. And third, lived experiences of the body compete with medical advice and online information. We conclude that while formal health systems strive to be robust, access to medicines remains an uncertain practice at the interplay of medicine, algorithms and bodily experiences of sickness. This study contributes to the field of medical humanities by showing that the digital arena is a porous and emergent entity, with inseparable links to people’s lived experiences. (Less)
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author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Medical Humanities
publisher
BMJ Publishing Group
external identifiers
  • pmid:40081966
  • scopus:105002017872
ISSN
1468-215X
DOI
10.1136/medhum-2024-012921
project
Why do we choose the Internet instead of the doctor next door? The Internet as a site for medicines in grey zones.
Medical humanities research node
language
English
LU publication?
yes
id
d4ee42ff-5f7b-4be8-8736-3bfbfa8c463b
date added to LUP
2025-03-17 11:32:04
date last changed
2025-05-15 04:01:31
@article{d4ee42ff-5f7b-4be8-8736-3bfbfa8c463b,
  abstract     = {{This article examines how different layers of health-related uncertainties emerge and intersect in an algorithmic society. We aim to understand how people’s self-care practices co-evolve with digitalised health systems. Sweden stands out among Western countries due to the population’s high digital consumption of medical and health products. We conceptualise health-related uncertainties as inherent in care-seeking. The uncertainties are embedded in an algorithmic society and hinge on what we term algorithmised medicine. Methods used are open-ended questionnaires and semistructured interviews with Swedish residents. We identify: First, people are aware of algorithm-embedded digital infrastructure and its impact on information access in everyday life. Second, people oscillate on a trust-distrust nexus in different contexts. And third, lived experiences of the body compete with medical advice and online information. We conclude that while formal health systems strive to be robust, access to medicines remains an uncertain practice at the interplay of medicine, algorithms and bodily experiences of sickness. This study contributes to the field of medical humanities by showing that the digital arena is a porous and emergent entity, with inseparable links to people’s lived experiences.}},
  author       = {{Liu, Rui and Lundin, Susanne and Eleonorasdotter, Emma}},
  issn         = {{1468-215X}},
  language     = {{eng}},
  month        = {{03}},
  publisher    = {{BMJ Publishing Group}},
  series       = {{Medical Humanities}},
  title        = {{Negotiating uncertainties : care-seeking in an algorithmic society}},
  url          = {{http://dx.doi.org/10.1136/medhum-2024-012921}},
  doi          = {{10.1136/medhum-2024-012921}},
  year         = {{2025}},
}