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Holistic management of patients with progressive pulmonary fibrosis

Oliveira, Ana ; Fabbri, Gaia ; Gille, Thomas ; Bargagli, Elena ; Duchemann, Boris ; Evans, Rachel ; Pinnock, Hilary ; Holland, Anne E. ; Renzoni, Elisabetta and Ekström, Magnus LU orcid , et al. (2023) In Breathe 19(3).
Abstract

Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially on patients’ daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient’s needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is... (More)

Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially on patients’ daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient’s needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.

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organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Breathe
volume
19
issue
3
article number
230101
publisher
European Respiratory Society
external identifiers
  • pmid:37719243
  • scopus:85171873377
ISSN
1810-6838
DOI
10.1183/20734735.0101-2023
language
English
LU publication?
yes
id
d6cc56d6-691e-4bc3-b76f-18f454ad695a
date added to LUP
2023-12-13 15:17:16
date last changed
2024-06-21 14:04:55
@article{d6cc56d6-691e-4bc3-b76f-18f454ad695a,
  abstract     = {{<p>Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially on patients’ daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient’s needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.</p>}},
  author       = {{Oliveira, Ana and Fabbri, Gaia and Gille, Thomas and Bargagli, Elena and Duchemann, Boris and Evans, Rachel and Pinnock, Hilary and Holland, Anne E. and Renzoni, Elisabetta and Ekström, Magnus and Jones, Steve and Wijsenbeek, Marlies and Dinh-Xuan, Anh Tuan and Vagheggini, Guido}},
  issn         = {{1810-6838}},
  language     = {{eng}},
  month        = {{09}},
  number       = {{3}},
  publisher    = {{European Respiratory Society}},
  series       = {{Breathe}},
  title        = {{Holistic management of patients with progressive pulmonary fibrosis}},
  url          = {{http://dx.doi.org/10.1183/20734735.0101-2023}},
  doi          = {{10.1183/20734735.0101-2023}},
  volume       = {{19}},
  year         = {{2023}},
}