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Networked research infrastructures and their governance : The case of biobanking

Meijer, Ingeborg ; Molas-Gallart, Jordi and Mattsson, Pauline LU (2012) In Science and Public Policy 39(4). p.491-499
Abstract

Research infrastructures such as biobanks are increasingly important for science and society. This paper focuses on the transition of biobanks from being a research tool of individual research groups to complex, internationally networked research infrastructures supporting large-scale biomedical investigations, and the challenges that this change poses for governance in relation to management, funding, ethical and legal issues. A major problem for most publicly funded biobanks is that funding remains time-limited and is normally associated with specific research projects. Yet, as biobanks are becoming large research infrastructures, they are requiring new forms of sustainable funding. Based on ten in-depth case studies with biobanks of... (More)

Research infrastructures such as biobanks are increasingly important for science and society. This paper focuses on the transition of biobanks from being a research tool of individual research groups to complex, internationally networked research infrastructures supporting large-scale biomedical investigations, and the challenges that this change poses for governance in relation to management, funding, ethical and legal issues. A major problem for most publicly funded biobanks is that funding remains time-limited and is normally associated with specific research projects. Yet, as biobanks are becoming large research infrastructures, they are requiring new forms of sustainable funding. Based on ten in-depth case studies with biobanks of different sizes from different EU countries, we conclude that the growth in scale triggers the need for different governance structures, based on the specialization and professionalization of technical tasks, the formalization of many management practices and a shift in funding structures.

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author
; and
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Biobanks, Governance, Networking, Research infrastructures
in
Science and Public Policy
volume
39
issue
4
pages
9 pages
publisher
Oxford University Press
external identifiers
  • scopus:84871368144
ISSN
0302-3427
DOI
10.1093/scipol/scs033
language
English
LU publication?
no
id
d8547a9c-d170-414a-9e42-2513cd397cce
date added to LUP
2019-06-14 18:04:50
date last changed
2024-01-01 10:40:25
@article{d8547a9c-d170-414a-9e42-2513cd397cce,
  abstract     = {{<p>Research infrastructures such as biobanks are increasingly important for science and society. This paper focuses on the transition of biobanks from being a research tool of individual research groups to complex, internationally networked research infrastructures supporting large-scale biomedical investigations, and the challenges that this change poses for governance in relation to management, funding, ethical and legal issues. A major problem for most publicly funded biobanks is that funding remains time-limited and is normally associated with specific research projects. Yet, as biobanks are becoming large research infrastructures, they are requiring new forms of sustainable funding. Based on ten in-depth case studies with biobanks of different sizes from different EU countries, we conclude that the growth in scale triggers the need for different governance structures, based on the specialization and professionalization of technical tasks, the formalization of many management practices and a shift in funding structures.</p>}},
  author       = {{Meijer, Ingeborg and Molas-Gallart, Jordi and Mattsson, Pauline}},
  issn         = {{0302-3427}},
  keywords     = {{Biobanks; Governance; Networking; Research infrastructures}},
  language     = {{eng}},
  month        = {{12}},
  number       = {{4}},
  pages        = {{491--499}},
  publisher    = {{Oxford University Press}},
  series       = {{Science and Public Policy}},
  title        = {{Networked research infrastructures and their governance : The case of biobanking}},
  url          = {{http://dx.doi.org/10.1093/scipol/scs033}},
  doi          = {{10.1093/scipol/scs033}},
  volume       = {{39}},
  year         = {{2012}},
}