The Human Right to Science and the Regulation of Human Germline Engineering
(2019) In CRISPR Journal 2(3). p.134-142- Abstract
- There is currently no international consensus on how human germline engineering should be regulated. Existing national legislation fails to provide the governance framework necessary to regulate germline engineering in the CRISPR era. This is an obstacle to scientific and clinical advancements and inconsistent with human rights requirements. To move forward, we suggest that the human right to science is an ideal starting point for building consensus, at the national and international levels, on governing principles that promote responsible scientific and technological advancements. Regulatory frameworks must recognize the international nature of modern germline genome engineering research, the need for shared governance rather than... (More)
- There is currently no international consensus on how human germline engineering should be regulated. Existing national legislation fails to provide the governance framework necessary to regulate germline engineering in the CRISPR era. This is an obstacle to scientific and clinical advancements and inconsistent with human rights requirements. To move forward, we suggest that the human right to science is an ideal starting point for building consensus, at the national and international levels, on governing principles that promote responsible scientific and technological advancements. Regulatory frameworks must recognize the international nature of modern germline genome engineering research, the need for shared governance rather than tech-locked prohibitions, and the fact that humans are not their germline. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/dea51e82-014b-4681-84c1-5afc799d19e7
- author
- Boggio, Andrea ; Knoppers, Bartha ; Almqvist, Jessica LU and Romano, Cesare
- organization
- publishing date
- 2019-06-24
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Human rights, Mänskliga rättigheter
- in
- CRISPR Journal
- volume
- 2
- issue
- 3
- pages
- 134 - 142
- publisher
- Mary Ann Liebert, Inc.
- ISSN
- 2573-1599
- DOI
- 10.1089/crispr.2018.0053
- language
- English
- LU publication?
- yes
- id
- dea51e82-014b-4681-84c1-5afc799d19e7
- date added to LUP
- 2020-08-20 15:32:51
- date last changed
- 2022-10-12 12:55:21
@article{dea51e82-014b-4681-84c1-5afc799d19e7, abstract = {{There is currently no international consensus on how human germline engineering should be regulated. Existing national legislation fails to provide the governance framework necessary to regulate germline engineering in the CRISPR era. This is an obstacle to scientific and clinical advancements and inconsistent with human rights requirements. To move forward, we suggest that the human right to science is an ideal starting point for building consensus, at the national and international levels, on governing principles that promote responsible scientific and technological advancements. Regulatory frameworks must recognize the international nature of modern germline genome engineering research, the need for shared governance rather than tech-locked prohibitions, and the fact that humans are not their germline.}}, author = {{Boggio, Andrea and Knoppers, Bartha and Almqvist, Jessica and Romano, Cesare}}, issn = {{2573-1599}}, keywords = {{Human rights; Mänskliga rättigheter}}, language = {{eng}}, month = {{06}}, number = {{3}}, pages = {{134--142}}, publisher = {{Mary Ann Liebert, Inc.}}, series = {{CRISPR Journal}}, title = {{The Human Right to Science and the Regulation of Human Germline Engineering}}, url = {{http://dx.doi.org/10.1089/crispr.2018.0053}}, doi = {{10.1089/crispr.2018.0053}}, volume = {{2}}, year = {{2019}}, }