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The Human Right to Science and the Regulation of Human Germline Engineering

Boggio, Andrea ; Knoppers, Bartha ; Almqvist, Jessica LU and Romano, Cesare (2019) In CRISPR Journal 2(3). p.134-142
Abstract
There is currently no international consensus on how human germline engineering should be regulated. Existing national legislation fails to provide the governance framework necessary to regulate germline engineering in the CRISPR era. This is an obstacle to scientific and clinical advancements and inconsistent with human rights requirements. To move forward, we suggest that the human right to science is an ideal starting point for building consensus, at the national and international levels, on governing principles that promote responsible scientific and technological advancements. Regulatory frameworks must recognize the international nature of modern germline genome engineering research, the need for shared governance rather than... (More)
There is currently no international consensus on how human germline engineering should be regulated. Existing national legislation fails to provide the governance framework necessary to regulate germline engineering in the CRISPR era. This is an obstacle to scientific and clinical advancements and inconsistent with human rights requirements. To move forward, we suggest that the human right to science is an ideal starting point for building consensus, at the national and international levels, on governing principles that promote responsible scientific and technological advancements. Regulatory frameworks must recognize the international nature of modern germline genome engineering research, the need for shared governance rather than tech-locked prohibitions, and the fact that humans are not their germline. (Less)
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author
; ; and
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Human rights, Mänskliga rättigheter
in
CRISPR Journal
volume
2
issue
3
pages
134 - 142
publisher
Mary Ann Liebert, Inc.
ISSN
2573-1599
DOI
10.1089/crispr.2018.0053
language
English
LU publication?
no
id
dea51e82-014b-4681-84c1-5afc799d19e7
date added to LUP
2020-08-20 15:32:51
date last changed
2020-08-25 09:50:08
@article{dea51e82-014b-4681-84c1-5afc799d19e7,
  abstract     = {There is currently no international consensus on how human germline engineering should be regulated. Existing national legislation fails to provide the governance framework necessary to regulate germline engineering in the CRISPR era. This is an obstacle to scientific and clinical advancements and inconsistent with human rights requirements. To move forward, we suggest that the human right to science is an ideal starting point for building consensus, at the national and international levels, on governing principles that promote responsible scientific and technological advancements. Regulatory frameworks must recognize the international nature of modern germline genome engineering research, the need for shared governance rather than tech-locked prohibitions, and the fact that humans are not their germline.},
  author       = {Boggio, Andrea and Knoppers, Bartha and Almqvist, Jessica and Romano, Cesare},
  issn         = {2573-1599},
  language     = {eng},
  month        = {06},
  number       = {3},
  pages        = {134--142},
  publisher    = {Mary Ann Liebert, Inc.},
  series       = {CRISPR Journal},
  title        = {The Human Right to Science and the Regulation of Human Germline Engineering},
  url          = {http://dx.doi.org/10.1089/crispr.2018.0053},
  doi          = {10.1089/crispr.2018.0053},
  volume       = {2},
  year         = {2019},
}