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Defining Excellence : The First Core Set of Quality Indicators for the European Paediatric Surgical Audit on Hirschsprung's Disease Care

Rossi, Daniel ; Granström, Anna Löf ; Pakarinen, Mikko ; Bjørnland, Kristin ; de Blaauw, Ivo ; Ellebæk, Mark ; Leon, Francesco Fascetti ; Gloudemans, Dirk Jan ; Prato, Alessio Pini and Rolle, Udo , et al. (2025) In Acta Paediatrica, International Journal of Paediatrics
Abstract

Aim: This study aimed to develop a universally applicable core set of quality indicators for Hirschsprung's disease care through a consensus-driven process, to standardise and improve care quality across Europe. Methods: A modified Delphi method was used to achieve consensus among healthcare professionals (HPs) and patient representatives (PRs) across Europe. Participants completed three rounds of anonymous surveys, rating quality indicators for Hirschsprung's disease care. A systematic literature review informed the initial item list. Results were analysed using predefined criteria, and a final consensus meeting established the core set of indicators. Results: An international panel of 8 PRs and 96 multidisciplinary health care... (More)

Aim: This study aimed to develop a universally applicable core set of quality indicators for Hirschsprung's disease care through a consensus-driven process, to standardise and improve care quality across Europe. Methods: A modified Delphi method was used to achieve consensus among healthcare professionals (HPs) and patient representatives (PRs) across Europe. Participants completed three rounds of anonymous surveys, rating quality indicators for Hirschsprung's disease care. A systematic literature review informed the initial item list. Results were analysed using predefined criteria, and a final consensus meeting established the core set of indicators. Results: An international panel of 8 PRs and 96 multidisciplinary health care professionals representing 59 European hospitals completed all questionnaires, eventually including 12 baseline characteristics and 39 indicators. Six of the top 10 indicators were commonly prioritised by both groups. The remaining items were refined through debate and finalised during a consensus meeting. Conclusion: This study established a core set of 12 baseline characteristics and 14 quality indicators for evaluating Hirschsprung's disease care. These indicators will support benchmarking and continuous quality improvement within the European Paediatric Surgical Audit framework, ultimately enhancing outcomes and care for children with Hirschsprung's disease.

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author collaboration
organization
publishing date
type
Contribution to journal
publication status
epub
subject
keywords
auditing, Hirschsprung's disease, quality improvement, quality indicators
in
Acta Paediatrica, International Journal of Paediatrics
publisher
Wiley-Blackwell
external identifiers
  • scopus:85216082661
  • pmid:39865350
ISSN
0803-5253
DOI
10.1111/apa.17594
language
English
LU publication?
yes
additional info
Publisher Copyright: © 2025 The Author(s). Acta Paediatrica published by John Wiley & Sons Ltd on behalf of Foundation Acta Paediatrica.
id
e1878e22-8de0-483d-9e81-06441263c9aa
date added to LUP
2025-03-13 10:01:34
date last changed
2025-07-17 21:18:56
@article{e1878e22-8de0-483d-9e81-06441263c9aa,
  abstract     = {{<p>Aim: This study aimed to develop a universally applicable core set of quality indicators for Hirschsprung's disease care through a consensus-driven process, to standardise and improve care quality across Europe. Methods: A modified Delphi method was used to achieve consensus among healthcare professionals (HPs) and patient representatives (PRs) across Europe. Participants completed three rounds of anonymous surveys, rating quality indicators for Hirschsprung's disease care. A systematic literature review informed the initial item list. Results were analysed using predefined criteria, and a final consensus meeting established the core set of indicators. Results: An international panel of 8 PRs and 96 multidisciplinary health care professionals representing 59 European hospitals completed all questionnaires, eventually including 12 baseline characteristics and 39 indicators. Six of the top 10 indicators were commonly prioritised by both groups. The remaining items were refined through debate and finalised during a consensus meeting. Conclusion: This study established a core set of 12 baseline characteristics and 14 quality indicators for evaluating Hirschsprung's disease care. These indicators will support benchmarking and continuous quality improvement within the European Paediatric Surgical Audit framework, ultimately enhancing outcomes and care for children with Hirschsprung's disease.</p>}},
  author       = {{Rossi, Daniel and Granström, Anna Löf and Pakarinen, Mikko and Bjørnland, Kristin and de Blaauw, Ivo and Ellebæk, Mark and Leon, Francesco Fascetti and Gloudemans, Dirk Jan and Prato, Alessio Pini and Rolle, Udo and Schwarzer, Nicole and Tabbers, Merit and Vilanova, Alejandra and Wijnen, Rene and Sloots, Cornelius E.J. and Wester, Tomas and Hagelsteen, Kristine}},
  issn         = {{0803-5253}},
  keywords     = {{auditing; Hirschsprung's disease; quality improvement; quality indicators}},
  language     = {{eng}},
  publisher    = {{Wiley-Blackwell}},
  series       = {{Acta Paediatrica, International Journal of Paediatrics}},
  title        = {{Defining Excellence : The First Core Set of Quality Indicators for the European Paediatric Surgical Audit on Hirschsprung's Disease Care}},
  url          = {{http://dx.doi.org/10.1111/apa.17594}},
  doi          = {{10.1111/apa.17594}},
  year         = {{2025}},
}